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CARE-NMD: Improving care for Duchenne muscular dystrophyImproving care for Duchenne muscular dystrophy
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Improving care for Duchenne muscular dystrophy
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CARE-NMD: Improving care for Duchenne muscular dystrophy | en.care-nmd.eu Reviews
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Improving care for Duchenne muscular dystrophy
en.care-nmd.eu
CARE-NMD: Improving care for Duchenne muscular dystrophy
http://en.care-nmd.eu/www.care-nmd.eu/international/training-resources
Improving care for Duchenne muscular dystrophy. 2013 International Conference on DMD. CARE-NMD IN YOUR COUNTRY. CARE-NMD is a European Project improving care for Duchenne muscular dystrophy. CARE-NMD aims to improve patient quality of life and life expectancy, reducing health inequalities between and within countries. Of care and quality of life for DMD. Or who wishes to conduct the Patient Survey in their country. Please email the project co-ordinators. We are delighted to announce that the family guide...
CARE-NMD: Patient Organisations
http://en.care-nmd.eu/international/patient-organisations
Improving care for Duchenne muscular dystrophy. 2013 International Conference on DMD. CARE-NMD IN YOUR COUNTRY. The diagnosis of a rare disease such as Duchenne muscular dystrophy is often a life-changing event, but there are many organisations dedicated to helping patients and their families. Depending on the country in question some address a range of neuromuscular diseases while others are specific to Duchenne muscular dystrophy. Belarussian Neuro-Muscular Disorders Section of BelAPDliMI. 36 1 215 0712.
CARE-NMD: Standards of Care
http://en.care-nmd.eu/international/care-standards
Improving care for Duchenne muscular dystrophy. 2013 International Conference on DMD. CARE-NMD IN YOUR COUNTRY. Although there is currently no cure for Duchenne, high quality care can significantly improve the both the quality of life and life expectancy of patients. In early 2010, a major international consensus document,. The diagnosis and management of Duchenne muscular dystrophy. Was published in the journal The Lancet Neurology. From Elsevier (Lancet Neurology, 2010, 9, 77-93 and 177-189).
CARE-NMD: Get Involved
http://en.care-nmd.eu/international/get-involved
Improving care for Duchenne muscular dystrophy. 2013 International Conference on DMD. CARE-NMD IN YOUR COUNTRY. CARE-NMD needs your help to increase awareness of best-practice care. As Duchenne muscular dystrophy is a rare disease, many clinicians are not aware of best-practice care for patients. Increasing the availability of this information through training and dissemination is a key part of CARE-NMD, as improved knowledge forms the basis of the high quality care. Care and Trial Site Registry.
CARE-NMD: Training Resources
http://en.care-nmd.eu/international/training-resources
Improving care for Duchenne muscular dystrophy. 2013 International Conference on DMD. CARE-NMD IN YOUR COUNTRY. To increase awareness of DMD and best-practice care amongst medical professionals worldwide, CARE-NMD is pleased to highlight and make available various resources aimed at this audience. These include training slides, academic articles, and the DMD Family Guide. The Lancet Neurology article. These Standards of Care represent the current international consensus on best-practice care for DMD.
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CARE-NMD: Improving care for Duchenne muscular dystrophy
Improving care for Duchenne muscular dystrophy. 2013 International Conference on DMD. CARE-NMD IN YOUR COUNTRY. Results of the CARE-NMD project have been published in the Journal of Neuromuscular Diseases ( see here. CARE-NMD is a European Project improving care for Duchenne muscular dystrophy. CARE-NMD aims to improve patient quality of life and life expectancy, reducing health inequalities between and within countries. Of care and quality of life for DMD. We are delighted to announce that the family gu...
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