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Reflections of Perception: The Art of Memory
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Ask a Question | Our Life with Ehlers Danlos Syndrome
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Our Life with Ehlers Danlos Syndrome. What I wish I knew then. Down the Rabbit Hole Essay and Primer. Dosages, Tips, Etc…. The Driscoll Theory Questions. Suffering the Slings and Arrows of Outrageous Fortune. First, A Necessary Disclaimer:. We Are All In This Together. To join one of the forums for EDSers – the EDNF. Message boards, the UK Hypermobility Syndrome Association’s forum. Or the forum on prettyill.com. Particularly helpful for those who have questions about the Driscoll Theory) are all great r...
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Invisible Illness Questions | Our Life with Ehlers Danlos Syndrome
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Our Life with Ehlers Danlos Syndrome. What I wish I knew then. Down the Rabbit Hole Essay and Primer. Dosages, Tips, Etc…. The Driscoll Theory Questions. Suffering the Slings and Arrows of Outrageous Fortune. If you have questions about living with an Invisible Illness or what being a medical zebra is all about, feel free to post a question in the comments. Invisible Illness Questions" (2). 09/14/2013 at 2:48 am. Meanwhile, my poor young daughter has also been suffering with pain, pretty much as you desc...
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Diamox Pointers | Our Life with Ehlers Danlos Syndrome
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Our Life with Ehlers Danlos Syndrome. What I wish I knew then. Down the Rabbit Hole Essay and Primer. Dosages, Tips, Etc…. The Driscoll Theory Questions. Suffering the Slings and Arrows of Outrageous Fortune. If you are hoping to get a doctor to prescribe a trial of Diamox, and are frustrated because no one will listen, I feel your pain! To go to a post I published with all of my tips that may help you convince a doctor to let you give Diamox a try…. Leave a Reply Cancel reply. Enter your comment here.
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General EDS Questions | Our Life with Ehlers Danlos Syndrome
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Our Life with Ehlers Danlos Syndrome. What I wish I knew then. Down the Rabbit Hole Essay and Primer. Dosages, Tips, Etc…. The Driscoll Theory Questions. Suffering the Slings and Arrows of Outrageous Fortune. If you have a general EDS question, feel free to ask it here. Things like wheelchairs, bracing, dislocations/subluxations, injuries, diagnosis, etc. come under this topic. General EDS Questions" (11). 09/25/2013 at 2:25 pm. What were the red flags for you? How did you handle this with your child?
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What I wish I knew then | Our Life with Ehlers Danlos Syndrome
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Our Life with Ehlers Danlos Syndrome. What I wish I knew then. Down the Rabbit Hole Essay and Primer. Dosages, Tips, Etc…. The Driscoll Theory Questions. Suffering the Slings and Arrows of Outrageous Fortune. What I wish I knew then. Maybe but maybe not. We would have at least had a chance to be proactive for 8 years before things went bad and then act quickly when they did get bad. Hindsight is 20/20 but maybe our experience can help one person catch EDS early…. The odd thing was she never had any swell...
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Dosages, Tips, Etc… | Our Life with Ehlers Danlos Syndrome
https://slingsandarrowsofoutrageousfortune.wordpress.com/diamox-pointers/dosages-tips-etc
Our Life with Ehlers Danlos Syndrome. What I wish I knew then. Down the Rabbit Hole Essay and Primer. Dosages, Tips, Etc…. The Driscoll Theory Questions. Suffering the Slings and Arrows of Outrageous Fortune. Dosages, Tips, Etc…. If you are wanting information that you can pass along to a doctor that might help convince him to let you trial Diamox, go to this post: Diamox Pointers. My daughter started out on 125 mgs of Diamox at night although I know some people have found relief with half of that dose&#...
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Our Story | Our Life with Ehlers Danlos Syndrome
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Our Life with Ehlers Danlos Syndrome. What I wish I knew then. Down the Rabbit Hole Essay and Primer. Dosages, Tips, Etc…. The Driscoll Theory Questions. Suffering the Slings and Arrows of Outrageous Fortune. Our Story, Just One of Thousands. It Was All As Clear As Mud. It is Always Darkest Before Dawn. Finally, A Diagnosis. Since then, her pain and poor sleep are successfully being addressed and we have found a way to address the Neurological and POTS symptoms that hopefully allows her to avoid surgery&...
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Please Take This Poll | Our Life with Ehlers Danlos Syndrome
https://slingsandarrowsofoutrageousfortune.wordpress.com/2014/08/21/please-take-this-poll
Our Life with Ehlers Danlos Syndrome. What I wish I knew then. Down the Rabbit Hole Essay and Primer. Dosages, Tips, Etc…. The Driscoll Theory Questions. Suffering the Slings and Arrows of Outrageous Fortune. Please Take This Poll. All you need to do is take a moment and answer the questions in this poll if you are affected by chronic illness. The more responses I get, the better! Check all that apply:. Need your help again…. Please Take This Poll" (1). 10/17/2014 at 10:05 am. I await your book eagerly!
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Mast Cell Questions | Our Life with Ehlers Danlos Syndrome
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Our Life with Ehlers Danlos Syndrome. What I wish I knew then. Down the Rabbit Hole Essay and Primer. Dosages, Tips, Etc…. The Driscoll Theory Questions. Suffering the Slings and Arrows of Outrageous Fortune. Ask mast cell questions here…. MCAS, anti-histamines, food intolerances, etc. Mast Cell Questions" (4). 08/25/2015 at 7:38 pm. What supplements and at what dosages would you recommend taking for someone with severe diarrhea due to MCAD, POTS, and gastro issues secondary to EDS? 10/05/2015 at 11:48 am.
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Endless, A Silent Whisper
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Thursday, August 13, 2009. In Un-related EO news. So with that, rest in peace Harry Patch, and let the burden of war, age, pain, and heartbreak be lifted off your shoulders. Monday, July 20, 2009. And now X is back. Anyway, atleast one or twice every time I log on, I see someone ask, " HEY U GUISE, WEN IS VERSON 29 OF EO COMING OUT? Thursday, April 16, 2009. I have not posted anything a while I have good reason and it's basically this: Nothing's happening! Sunday, March 1, 2009. What are you doing? This ...
