enigmab.blogspot.com

Living With Phelan-McDermid Syndrome

Living With Phelan-McDermid Syndrome. This blog started off as Living Without A Diagnosis. But after 5 and half years we have a diagnosis. Monday, 18 May 2015. A poem about living with disability. I submitted a poem for Carers UK. Writing competition with the theme noone should have to care alone. Try to read it in one breath! Being the parent of a disabled child is like riding a rollercoaster that never stops! When suddenly I realise I’m in the wrong queue! Before I have a chance to argue. I wanted to s...

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Living With Phelan-McDermid Syndrome | enigmab.blogspot.com Reviews

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Living With Phelan-McDermid Syndrome. This blog started off as Living Without A Diagnosis. But after 5 and half years we have a diagnosis. Monday, 18 May 2015. A poem about living with disability. I submitted a poem for Carers UK. Writing competition with the theme noone should have to care alone. Try to read it in one breath! Being the parent of a disabled child is like riding a rollercoaster that never stops! When suddenly I realise I’m in the wrong queue! Before I have a chance to argue. I wanted to s...

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Living With Phelan-McDermid Syndrome | enigmab.blogspot.com Reviews

https://enigmab.blogspot.com

Living With Phelan-McDermid Syndrome. This blog started off as Living Without A Diagnosis. But after 5 and half years we have a diagnosis. Monday, 18 May 2015. A poem about living with disability. I submitted a poem for Carers UK. Writing competition with the theme noone should have to care alone. Try to read it in one breath! Being the parent of a disabled child is like riding a rollercoaster that never stops! When suddenly I realise I’m in the wrong queue! Before I have a chance to argue. I wanted to s...

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enigmab.blogspot.com

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Living With Phelan-McDermid Syndrome: October 2013

http://www.enigmab.blogspot.com/2013_10_01_archive.html

Living With Phelan-McDermid Syndrome. This blog started off as Living Without A Diagnosis. But after 5 and half years we have a diagnosis. Monday, 28 October 2013. The doctor could see I was getting upset and she kept changing the subject back to the sleep medication but then returning to the autism again! Saturday, 12 October 2013. Return of the poo. And do they want sweetcorn or not? We get to the hospital and B knows exactly where he is going. But we get to the children's' OPD and it's closed! When I ...

2

Living With Phelan-McDermid Syndrome: May 2015

http://www.enigmab.blogspot.com/2015_05_01_archive.html

Living With Phelan-McDermid Syndrome. This blog started off as Living Without A Diagnosis. But after 5 and half years we have a diagnosis. Monday, 18 May 2015. A poem about living with disability. I submitted a poem for Carers UK. Writing competition with the theme noone should have to care alone. Try to read it in one breath! Being the parent of a disabled child is like riding a rollercoaster that never stops! When suddenly I realise I’m in the wrong queue! Before I have a chance to argue. I wanted to s...

3

Living With Phelan-McDermid Syndrome: October 2012

http://www.enigmab.blogspot.com/2012_10_01_archive.html

Living With Phelan-McDermid Syndrome. This blog started off as Living Without A Diagnosis. But after 5 and half years we have a diagnosis. Monday, 22 October 2012. I've got a letter this week from Brainwave letting me that B is on the waiting list for an initial assessment in 2013. I can't wait for this opportunity as Brainwave have come highly recommended. More waiting. They are temporarily suspending initial assessments due to a recruitment programme. Subscribe to: Posts (Atom). View my complete profile.

4

Living With Phelan-McDermid Syndrome: Return of the poo

http://www.enigmab.blogspot.com/2013/10/return-of-poo.html

Living With Phelan-McDermid Syndrome. This blog started off as Living Without A Diagnosis. But after 5 and half years we have a diagnosis. Saturday, 12 October 2013. Return of the poo. And do they want sweetcorn or not? Sorry if this is too much information (no I'm not sorry you are reading this blog because you are joining me on this adventure all the way - insert maniacal laugh here). We get to the hospital and B knows exactly where he is going. But we get to the children's' OPD and it's closed!

5

Living With Phelan-McDermid Syndrome: Autism (again)

http://www.enigmab.blogspot.com/2013/10/autismagain.html

Living With Phelan-McDermid Syndrome. This blog started off as Living Without A Diagnosis. But after 5 and half years we have a diagnosis. Monday, 28 October 2013. The doctor could see I was getting upset and she kept changing the subject back to the sleep medication but then returning to the autism again! Subscribe to: Post Comments (Atom). View my complete profile. Baby After A Disabled Child. A poem about living with disability. Follow my blog with Bloglovin. Pageviews from the past week.

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Living With Phelan-McDermid Syndrome

Living With Phelan-McDermid Syndrome. This blog started off as Living Without A Diagnosis. But after 5 and half years we have a diagnosis. Monday, 18 May 2015. A poem about living with disability. I submitted a poem for Carers UK. Writing competition with the theme noone should have to care alone. Try to read it in one breath! Being the parent of a disabled child is like riding a rollercoaster that never stops! When suddenly I realise I’m in the wrong queue! Before I have a chance to argue. I wanted to s...

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