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Eos SuckOur journey through food allergies and eosinophilic esophagitis
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Our journey through food allergies and eosinophilic esophagitis
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Our journey through food allergies and eosinophilic esophagitis
eossuck.blogspot.com
Eos Suck: July 2011
http://eossuck.blogspot.com/2011_07_01_archive.html
Monday, July 18, 2011. In and Out in 60 minutes! Kaylin's followup appointment in the EE clinic was today and we were in and out in 60 minutes flat.that has to be a record! It's been six months since her last appointment and she's doing great as long as she doesn't eat any of her "trigger" foods. Her last scope was June 2010 and we will not be scoping until the end of the year! Links to this post. Wednesday, July 13, 2011. If I can't serve it to everyone, I won't serve it to anyone". Hapner, author of "A...
Eos Suck: Pizza
http://eossuck.blogspot.com/2012/07/pizza.html
Tuesday, July 17, 2012. Can't say enough how much we love Daiya cheese! 160; We can finally make pizza at home and Kaylin isn't left out. Subscribe to: Post Comments (Atom). This is our family's story of Eosinophilic Esophagitis. There's no book on EE, so we're writing our own. Eosinophilic Family Support Network on Facebook. Yahoo Eosinophilogastro Support Group. Picture Window template. Powered by Blogger.
Eos Suck: August 2011
http://eossuck.blogspot.com/2011_08_01_archive.html
Monday, August 8, 2011. It's funny when we tell friends or new acquaintance about Kaylin having EoE, the first response is usually, "Is there medication you can give her? But on the opposite side, when we explain she's on meds to friends in the EoE community, they ask "why? Links to this post. Thursday, August 4, 2011. I completely understand how difficult it is on Kaylin to be on a restricted diet at school but I also know she is the kid that will rise to meet expectations. It's so nice to know that...
Eos Suck: August 2012
http://eossuck.blogspot.com/2012_08_01_archive.html
Monday, August 27, 2012. Flourless Fudge Cookies : King Arthur Flour. Links to this post. Subscribe to: Posts (Atom). This is our family's story of Eosinophilic Esophagitis. There's no book on EE, so we're writing our own. Eosinophilic Family Support Network on Facebook. Yahoo Eosinophilogastro Support Group. Picture Window template. Powered by Blogger.
Eos Suck: Flourless Fudge Cookies
http://eossuck.blogspot.com/2012/08/flourless-fudge-cookies.html
Monday, August 27, 2012. Flourless Fudge Cookies : King Arthur Flour. Subscribe to: Post Comments (Atom). This is our family's story of Eosinophilic Esophagitis. There's no book on EE, so we're writing our own. Eosinophilic Family Support Network on Facebook. Yahoo Eosinophilogastro Support Group. Picture Window template. Powered by Blogger.
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19
Kennedy Connection: December 2012
http://kennedyfive.blogspot.com/2012_12_01_archive.html
To Blog or Not to Blog? That is the question! When I (we) started THIS blog a LONG time ago it was mainly to keep family and friends up to date with what was going on with our family as we headed off to Bible school. Well. it has dwindled down to a select few (who refuse to get on board with Facebook? I (we) love you all but it really is a pain in the rear end to do this AND facebook, when nearly the same stuff is posted. Sometimes Facebook just doesn't provide enough space for what I'd LIKE to write.
Aidan... With Eos: Checking In...
http://aidanwitheos.blogspot.com/2015/04/checking-in.html
Living, Loving, and Thriving with a Medically Complicated Child. Friday, April 3, 2015. Sometimes, so much time passes since I last wrote, I feel like I should have something monumental to say. But I don't, so I don't say anything at all, and then you don't hear anything from us until something awful happens. Nothing awful has happened. We're still here, taking things one day at a time and trying to keep it all in perspective when I think it's all too much. Hi, I'm checking in for my Awake Study? We chec...
Aidan... With Eos: August 2013
http://aidanwitheos.blogspot.com/2013_08_01_archive.html
Living, Loving, and Thriving with a Medically Complicated Child. Thursday, August 1, 2013. It's every parent's nightmare - one that feels all too real for those of us whose children are dealing with food allergies. Natalie Giorgi. A 13 year old girl, camping with her family, took a bite ( one bite. Where did everything go so wrong? I think this article ( Click here for The Article. Explains it very well. So many of our allergy action plans list EpiPens as a second line of defense. I'll admit - ou...Yes, ...
Aidan... With Eos: December 2014
http://aidanwitheos.blogspot.com/2014_12_01_archive.html
Living, Loving, and Thriving with a Medically Complicated Child. Tuesday, December 30, 2014. The Flu, and Farewell to 2014. Two posts in one week? We must be inpatient. The Great Influenza of 2014. You know, I'd just been saying to Tom that it was going to be so nice to have one nice healthy Christmas for Aidan. So, truly, I asked for this. Around the mall on his own feet. Feverish, lethargic, and still retching. The ER was a madhouse - clearly, everyone ELSE in the world was ALSO sick on Christmas week,...
Kennedy Connection: January 2011
http://kennedyfive.blogspot.com/2011_01_01_archive.html
Finally we are getting somewhere! Yesterday Miles and I met with a wonderful psychologist that a friend recommended for Andrew. She was very encouraging! And she thinks he has enough traits of autism to warrant formal evaluations! So the process has begun. it starts with us (me) filling out A LOT of history and questionaires about behavior, development, and tendencies. A lot of which is from his first year and his first three years! Like we've been watching it snow when it comes to Andrew's issues. Schoo...
Kennedy Connection: November 2010
http://kennedyfive.blogspot.com/2010_11_01_archive.html
Ten Year Wedding Anniversary! On November 25, 2000 over 100 of our family members and friends joined us in. Encinitas, California to witness us becoming husband and wife. Please enjoy this little picture story and fondest memories of our day. It was a beautiful and perfect day for a wedding! In fact, it was a little too warm for late November! Miles bringing Salyna flowers and a gift (earrings) before the ceremony. With his body guard, I mean, best man, Chris. Friends, roommates, co-workers. Miles was th...
Kennedy Connection: September 2011
http://kennedyfive.blogspot.com/2011_09_01_archive.html
Webster's definition of Anniversary: the annual recurrence of a date marking a notable event. Obviously not all anniversaries are happy ones, like September 11. I just held her and cried with news repeating over and over. I talked to Miles on the phone several times that day, begging him to come home from work. It is amazing how the people of our country had seemed to be changed by that day, yet all these years later, the more it seems that no one has changed at all. Reminds of the Israelites. Wichita, K...
Kennedy Connection: April 2011
http://kennedyfive.blogspot.com/2011_04_01_archive.html
Videos. bouncing and chainsaws! Amelleah hs started this weird wiggle type thing to get of a position she isn't particularly fond of. here is a super cute example! Amelleah loves her bouncer and she finally started figuring it out although it looks more like swinging here. Now this is bouncing! Even though Miles grew up in San Diego I always knew he was a true redneck. He LOVES his chainsaw! And has a perfect reason to use it,. This dead pine tree in our yard! So when he said "you wanna try it? We've als...
Aidan... With Eos: January 2015
http://aidanwitheos.blogspot.com/2015_01_01_archive.html
Living, Loving, and Thriving with a Medically Complicated Child. Thursday, January 22, 2015. Tube Change - January 2015. January found us inpatient for a tube change (I can't believe it's already been three months! It's been a tough month for Aidan for a number of reasons, so I wasn't sure how this hospital visit would go, but they're certainly not optional, so off we went. This was an important visit for Aidan. For starters, it was his first hospital stay where he used a hospital bed. He "woke up" from ...
Aidan... With Eos: January 2014
http://aidanwitheos.blogspot.com/2014_01_01_archive.html
Living, Loving, and Thriving with a Medically Complicated Child. Friday, January 3, 2014. My Sweet Little Boy is THREE! I'm almost certain it was only a few days ago that he was born. I just found this comparison shot of Aidan on the day I brought him home from the hospital, and then 11 weeks later. How did either one of those Baby Bears turn into the little meatball rolling around my living room today? A visit to Nutrition yesterday told us that he is up to 27lb 5oz (8th Percentile! Aidan adores his bes...
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Eos Suck
Monday, August 27, 2012. Flourless Fudge Cookies : King Arthur Flour. Links to this post. Tuesday, July 17, 2012. Can't say enough how much we love Daiya cheese! 160; We can finally make pizza at home and Kaylin isn't left out. Links to this post. Friday, March 23, 2012. The APFED conference is back in San Diego this year! Http:/ apfed.org/drupal/drupal/annual conference. Links to this post. Tuesday, March 20, 2012. Eos on Anderson Cooper. What if your child were deathly allergic to food? We also get a l...
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