epgp.org
The Epilepsy Phenome/Genome ProjectThe Epilepsy Phenome/Genome Project is an international consoritum of 27 clinical centers worldwide to understand the genes of epilepsy.
http://www.epgp.org/
The Epilepsy Phenome/Genome Project is an international consoritum of 27 clinical centers worldwide to understand the genes of epilepsy.
http://www.epgp.org/
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The Epilepsy Phenome/Genome Project | epgp.org Reviews
https://epgp.org
The Epilepsy Phenome/Genome Project is an international consoritum of 27 clinical centers worldwide to understand the genes of epilepsy.
Dravet | Linkuri utile
http://www.dravet.ro/informatii-medicale/linkuri-utile
Ce este Sindromul Dravet. Noi, Părinţii (blog). Pentru cei abia diagnosticați. Dispozitive de detectare a crizelor. Centrul de zi “Există Speranță”. Elev în clasa I. Alimentație sănătoasă pentru copiii cu epilepsie. Poţi ajuta şi tu. Cum să te implici. Aceasta este o listă de site-uri unde se găsesc informații utile pentru familii legate de Sindromul Dravet și alte epilepsii rare. Asociația pentru Dravet și alte Epilepsii Rare nu își asumă răspunderea pentru conținutul acestora. Italia Dravet Italia Onlus.
Resources | Dravet Syndrome Foundation
http://www.dravetfoundation.org/dravet-syndrome/medical-information/resources
Directors & Staff. What is Dravet Syndrome? International Ion Channel Patient Registry. Patient Assistance Grant Program. Making A Difference For Dravet. American Epilepsy Outreach Foundation. Epilepsy Therapy Development Project. Joey’s Song The Joseph Gomoll Foundation. National Institute of Neurological Disorders and Stroke (NINDS). International Dravet Syndrome Organizations. Alliance Syndrome de Dravet). La Fundación Síndrome de Dravet). Dravets Syndrome Association Sweden). My Seizures No More.
indianaepilepsyservices.iusm.iu.edu
Resource Links : Comprehensive Epilepsy Center : Indiana University
http://indianaepilepsyservices.iusm.iu.edu/links.html
IUCEC Activities and Functions. Epilepsy Staff and Educators. How to find more information:. The following links are provided for informational purposes only. Indiana Epilepsy Services cannot be responsible for the content or accuracy of these websites. Access Indiana Information Network:. Wwwindianafind.com/Government/Access Indiana Information Network L7876/. Description: Official web site of the State of Indiana. 317) 977-2375 or (800) 382-9100. ADA Great Lakes Technical Assistance Center:. Descriptio...
'Omics Medicine | Precision Medicine at UCSF
http://precisionmedicine.ucsf.edu/content/omics-medicine
Skip to main content. University of California, San Francisco. Precision Medicine at UCSF. Elements of Precision Medicine. Women's Precision Medicine. Children's Precision Medicine. Proteins in proteomics, metabolites in metabolomics) or systems (. Microbes in microbiomics). Born in basic research, ‘omics have become a powerful contributor across precision medicine. Integration of ‘omics information into the knowledge network. UCSF’s Genomic Medicine Initiative. Omic technologies are speeding up diagnosi...
Childhood Epilepsy | Ice Epilepsy Alliance
http://www.ice-epilepsy.org/epilepsy
ICE Epilepsy’s Actvities. Sample Resource Request Letters. Progress & Prognosis. Progress & Prognosis. Science & Genetics. Drug Info & Treatments. Ketogenic Diet & Epilepsy. Collaboration & Advocacy for families living with Rare Chromosome Disorder. FDA Approves ONFI (clobazam). Can Transplanted Neuronal Progenitor Cells Develop into Functioning Neurons. Epilepsy research is reaching beyond improving the means for quelling symptoms to the exploration of potential modalities for correcting or reversing al...
Dravet Syndrome | Ice Epilepsy Alliance
http://www.ice-epilepsy.org/dravet-syndrome/dravet-syndrome-dravet-syndrome
ICE Epilepsy’s Actvities. Sample Resource Request Letters. Progress & Prognosis. Progress & Prognosis. Science & Genetics. Drug Info & Treatments. Ketogenic Diet & Epilepsy. Participate in a Dravet syndrome Genetic Study. The Genetic Investigation of Child Neurological Disorders Joseph Gleeson, M.D. And his team at UCSD seek to identify new causes of Dravet syndrome Who Can Help? Vision 20/20 Task Force. Tomorrow Isn’t Soon Enough. This page hosts a link to download a power point file that uses illustrat...
Advisory Board | Ice Epilepsy Alliance
http://www.ice-epilepsy.org/advisory-board/advisory-board-advisory-board
ICE Epilepsy’s Actvities. Sample Resource Request Letters. Progress & Prognosis. Progress & Prognosis. Science & Genetics. Drug Info & Treatments. Ketogenic Diet & Epilepsy. Michelle Welborn, PharmD. ICE Alliance's Professional Advisory Board is a group of leading intractable childhood epilepsy, genetics, and drug development researchers from both academia and industry, clinicians who work with patients with intractable epilepsy, and experts from related fields. James C. Cloyd III, PharmD. Linda Laux, MD.
About ICE | Ice Epilepsy Alliance
http://www.ice-epilepsy.org/advisory-board
ICE Epilepsy’s Actvities. Sample Resource Request Letters. Progress & Prognosis. Progress & Prognosis. Science & Genetics. Drug Info & Treatments. Ketogenic Diet & Epilepsy. Michelle Welborn, PharmD President Lewisville, NC’ Peter Haeberli, JD Counsel, Merk Betsy English, MD Winston Salem NC . Michelle Welborn, PharmD. Peter Haeberli, JD. As many as 40% of children with epilepsy do not find seizure freedom with anti-epileptic drug therapy and are considered "refractory" , "intractable", or "drug resistan...
Childhood Epilepsy | Ice Epilepsy Alliance
http://www.ice-epilepsy.org/epilepsy/childhood-epilepsy
ICE Epilepsy’s Actvities. Sample Resource Request Letters. Progress & Prognosis. Progress & Prognosis. Science & Genetics. Drug Info & Treatments. Ketogenic Diet & Epilepsy. Collaboration & Advocacy for families living with Rare Chromosome Disorder. Can Transplanted Neuronal Progenitor Cells Develop into Functioning Neurons. Epilepsy research is reaching beyond improving the means for quelling symptoms to the exploration of potential modalities for correcting or reversing alterations in neural function t...
Board of Directors | Ice Epilepsy Alliance
http://www.ice-epilepsy.org/advisory-board/bord-of-directors
ICE Epilepsy’s Actvities. Sample Resource Request Letters. Progress & Prognosis. Progress & Prognosis. Science & Genetics. Drug Info & Treatments. Ketogenic Diet & Epilepsy. Michelle Welborn, PharmD President Lewisville, NC’ Peter Haeberli, JD Counsel, Merk Betsy English, MD Winston Salem NC . Michelle Welborn, PharmD. Peter Haeberli, JD. Want to receive our Newsletter? Support the ICE 20/20 Fundraising Effort for a CURE. Participate in a Dravet Syndrome Genetic Study. Combined Role of PET and MEG in Non...
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The Epilepsy Phenome/Genome Project
Visit the publications page. For the latest findings and the resources page. We are thrilled to report that over the 7 years. That EPGP was enrolling and phenotyping, our final dataset contains 4,199 people with epilepsy and their family members. And more than 38,000 study activities. Interviews, EEGs, blood samples, etc) more than 6.9 million data points. Together we have worked to create, in EPGP, a scientific resource that is changing the way we think about genetics of epilepsy . Continue to emerge fr...
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