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Polycythemias

Initiated 2004 as national registry in Germany (PV-ERY-KA 03) by Holger Cario. Web-based International database developed 2005 by ML. Ribeiro and C. Bento,. Hematology Unit, Centro Hospitalar de Coimbra, Portugal. Prospective registration and data collection of patients with congenital or idiopathic erythrocytosis (priority for patients with defined genetic cause). Characterisation of these diseases by clinical examination, hematological, biochemical, and molecular genetic analyses.

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Polycythemias | erythrocytosis.org Reviews
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Initiated 2004 as national registry in Germany (PV-ERY-KA 03) by Holger Cario. Web-based International database developed 2005 by ML. Ribeiro and C. Bento,. Hematology Unit, Centro Hospitalar de Coimbra, Portugal. Prospective registration and data collection of patients with congenital or idiopathic erythrocytosis (priority for patients with defined genetic cause). Characterisation of these diseases by clinical examination, hematological, biochemical, and molecular genetic analyses.
<META>
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1 consortium guidelines
2 laboratories
3 published mutations
4 background
5 objectives
6 curators
7 celeste bento
8 holger cario
9 mary frances mcmullin
10 françois girodon
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Polycythemias | erythrocytosis.org Reviews

https://erythrocytosis.org

Initiated 2004 as national registry in Germany (PV-ERY-KA 03) by Holger Cario. Web-based International database developed 2005 by ML. Ribeiro and C. Bento,. Hematology Unit, Centro Hospitalar de Coimbra, Portugal. Prospective registration and data collection of patients with congenital or idiopathic erythrocytosis (priority for patients with defined genetic cause). Characterisation of these diseases by clinical examination, hematological, biochemical, and molecular genetic analyses.

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erythrocytosis.org erythrocytosis.org
1

Polycythemias

http://www.erythrocytosis.org/scid/polycythemias_en/defaultConsortium.asp

European Congenital Erythrocytosis Consortium (ECE-C) Guidelines. 1 - The European Congenital Erythrocytosis Consortium (ECE-C) is a non-profit organization formed by clinical pediatrics, hematologists and molecular geneticists committed to improve quality of patient care related to clinical and genetic diagnostic of Congenital Erythrocytosis. 5 - Each member can have access only to the data of the patients he reported, only statistics on clinical and mutation data will be accessible to all the Consortiu...

2

Polycythemias

http://www.erythrocytosis.org/scid/polycythemias_en/defaultUserEdit.asp

If your hospital is not listed, please fill in the following fields. If you accept the conditions specified on the consortium guidelines. And would like to join the European Congenital Erythrocytosis Consortium (ECE-C) please select the agree option. Serviço de Hematologia do Centro Hospitalar de Coimbra 2005. Site Desenvolvido com SensoComum.

3

Polycythemias

http://www.erythrocytosis.org/scid/polycythemias_en/defaultLaboratories.asp

Hematology Department, Centro Hospitalar e Universitário de Coimbra. Exon 7 - 8. Exon 9, 12. Institute for Clinical Transfusion Medicine and Immunogenetics (IKT Ulm) and Dept. of Pediatrics and Adolescent Medicine (Ped). Exon 7 - 8. Exon 7 - 8. Exons 1 - 4. MLL - Munich Leukemia Laboratory. P317 and R371 only. Exon 7 - 8. Hospital del Mar, Barcelona. P317, R371 and flanking regions. M535, G537 and flanking regions. Department of Woman, Child and General and Specialist Surgery, Second University of Naples.

4

Polycythemias

http://www.erythrocytosis.org/scid/polycythemias_en/default.asp

Initiated 2004 as national registry in Germany (PV-ERY-KA 03) by Holger Cario. Web-based International database developed 2005 by ML. Ribeiro and C. Bento,. Hematology Unit, Centro Hospitalar de Coimbra, Portugal. Prospective registration and data collection of patients with congenital or idiopathic erythrocytosis (priority for patients with defined genetic cause). Characterisation of these diseases by clinical examination, hematological, biochemical, and molecular genetic analyses.

5

Polycythemias

http://www.erythrocytosis.org/scid/polycythemias_en/defaultMutationsStats.asp

Serviço de Hematologia do Centro Hospitalar de Coimbra 2005. Site Desenvolvido com SensoComum.

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Initiated 2004 as national registry in Germany (PV-ERY-KA 03) by Holger Cario. Web-based International database developed 2005 by ML. Ribeiro and C. Bento,. Hematology Unit, Centro Hospitalar de Coimbra, Portugal. Prospective registration and data collection of patients with congenital or idiopathic erythrocytosis (priority for patients with defined genetic cause). Characterisation of these diseases by clinical examination, hematological, biochemical, and molecular genetic analyses.

erythrocytosis.org erythrocytosis.org

Polycythemias

Initiated 2004 as national registry in Germany (PV-ERY-KA 03) by Holger Cario. Web-based International database developed 2005 by ML. Ribeiro and C. Bento,. Hematology Unit, Centro Hospitalar de Coimbra, Portugal. Prospective registration and data collection of patients with congenital or idiopathic erythrocytosis (priority for patients with defined genetic cause). Characterisation of these diseases by clinical examination, hematological, biochemical, and molecular genetic analyses.

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