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pro-rbdd - rare bleeding disorders PRO | eu.rbdd.org Reviews
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Resources | Rare Coagulation Disorders | Rare Bleeding Disorders
http://www.rarecoagulationdisorders.org/endorsements
European Haemophilia Network (EUHANET). International Society on Thrombosis and Haemostasis (ISTH). National Hemophilia Foundation (NHF). Rare Bleeding Disorders Database (RBDD). World Federation of Hemophilia (WFH). WFH Rare Clotting Factor Deficiencies. Skip to primary content. Skip to secondary content. Rare Coagulation Disorders Subcommittee and Authors. The Rare Coagulation Disorders Resource Room, an extension of the RBDD Registry ( http:/ www.rbdd.org/. A collaboration of RBDD and IHTC.
Rare Bleeding Disorders EHC - European Haemophilia Consortium
http://www.ehc.eu/bleeding-disorders/rare-bleeding-disorders
Women with Bleeding Disorders. Support and Empower National Member Organisations. Promote access to Treatment and Care. Policy-making, Advocacy and Awareness. Disorders that affect any of the coagulation factors besides FVIII, FIX and VWF are called rare bleeding disorders because they are less prevalent than haemophilia or VWD. Below you will find a table of information on rare bleeding disorders. Characteristics of Rare Bleeding Disorders. Also known as Rare Clotting Factor Deficiencies). 1 in 1 million.
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http://www.fondazioneluigivilla.org/link.htm
Via Pace, 9. Tel: 39 02 55 10 709. 39 02 55 03 54 14. Fax: 39 02 54 100 12. European Network of R. Centro Emofilia e Trombosi Angelo Bianchi Bonomi. Fondazione IRCCS di natura pubblica Ospedale Maggiore, Mangiagalli e Regina Elena di Milano. World Federation of Hemophilia. Università degli Studi di Milano. Porpora trombotica trombocitopenica (TTP). AICE (Associazione Italiana Centri Emofilia). ISTH (International Society of Thrombosis and Haemostasis). FEDEMO (Federazione delle associazioni Emofilici).
EUHANET – EAHAD
http://eahad.org/euhanet
32 (0) 2 893 24 89. Memorandum and Articles of Association. Coagulation Factor Variant Databases. Prospective Rare Bleeding Disorders Database (PRO-RBDD). European Principles of Haemophilia Care. European Curriculum for Thrombosis and Haemostasis. European Curriculum for Nurses working in Haemophilia. European Haemophilia Network (EUHANET). The project involved 4 main areas of work:. 2) the creation of the Haemophilia Central Website ( www.haemophiliacentral.org. 4) the collection of prospective data on ...
Fondazione Luigi Villa - Laboratorio di Patologia Molecolare Applicata alla Clinica
http://www.fondazioneluigivilla.org/new/new.htm
Via Pace, 9. Tel: 39 02 55 10 709. 39 02 55 03 54 14. Fax: 39 02 54 100 12. The past and future of haemophilia: diagnosis, treatments, and its complications. Prof Flora Peyvandi, MD, Isabella Garagiola, PhD,Guy Young, MD. The New England Journal of Medicine. Caplacizumab for Acquired TTP. February 11, 2016 F. Peyvandi and Others. Il Premio Grande Ippocrate per la ricerca e divulgazione scientifica. La Professoressa Peyvandi sarà premiata per aver saputo comunicare ai media le sue ricerche sulla ca...
Fondazione Luigi Villa - Laboratorio di Patologia Molecolare Applicata alla Clinica
http://www.fondazioneluigivilla.org/index.html
Via Pace, 9. Tel: 39 02 55 10 709. 39 02 55 03 54 14. Fax: 39 02 54 100 12. Ultimo aggiornamento 8 febbraio 2016. La Fondazione Luigi Villa. Egrave; impegnata nella prevenzione e nella cura delle malattie emorragiche. E' nostra cura fornire al paziente il miglior servizio di diagnosi e terapia sulla base della nostra esperienza Nazionale e Internazionale nel campo dell'emostasi e della biologia molecolare. Il nostro team. Presso il nostro Centro. Egrave; presente un ambulatorio.
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pro-rbdd - rare bleeding disorders PRO
State of the Art. Last Updated on Monday, 16 February 2015 15:18. Is part of the. PRO-RBDD is an international collaborating network that has developed a web database designed to prospectively collect clinical and laboratory data of patients with coagulation factor deficiencies in order to evaluate prevalence, bleeding frequency and management, as well as consumption of treatment products and related complications. Current studies are analysing fibrinogen and factor XIII deficiencies.
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