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Our Little Braveheart

Friday, December 21, 2012. Merry Christmas and a whole lot more. Monday, May 14, 2012. Brave Hearts night at the ballgame. I'm so incredibly proud of our local support group, Brave Hearts. We have gone from being a few families that happened upon each other and came up with a dream of helping other families, to doing exactly that. Signing on with the Kosair Children's Hospital Foundation was a big group decision but one we don't regret taking. What an amazing year! Friday, March 09, 2012. I think he is g...

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Our Little Braveheart | evanbraveheart.blogspot.com Reviews

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Friday, December 21, 2012. Merry Christmas and a whole lot more. Monday, May 14, 2012. Brave Hearts night at the ballgame. I'm so incredibly proud of our local support group, Brave Hearts. We have gone from being a few families that happened upon each other and came up with a dream of helping other families, to doing exactly that. Signing on with the Kosair Children's Hospital Foundation was a big group decision but one we don't regret taking. What an amazing year! Friday, March 09, 2012. I think he is g...

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7 evan is 8

8 my sensitive guy

9 another great report

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Our Little Braveheart | evanbraveheart.blogspot.com Reviews

https://evanbraveheart.blogspot.com

Friday, December 21, 2012. Merry Christmas and a whole lot more. Monday, May 14, 2012. Brave Hearts night at the ballgame. I'm so incredibly proud of our local support group, Brave Hearts. We have gone from being a few families that happened upon each other and came up with a dream of helping other families, to doing exactly that. Signing on with the Kosair Children's Hospital Foundation was a big group decision but one we don't regret taking. What an amazing year! Friday, March 09, 2012. I think he is g...

INTERNAL PAGES

evanbraveheart.blogspot.com

1

Our Little Braveheart: August 2011

http://evanbraveheart.blogspot.com/2011_08_01_archive.html

Wednesday, August 17, 2011. Happy 1 year mendaversary Evan! One year ago today we struggled with not getting an IV for versed and Evan wanting to walk into the operating room which resulted in me suiting up and carrying him in the OR. Monday, August 01, 2011. A Good Report - whoot whoot! When he told him "better than ever" Evan jumped down from the table and I asked him if he wanted to do a happy dance - he declined but let out a "YIPPEE! Will be starting 2nd Grade next Wednesday! We are gearing up for o...

2

Our Little Braveheart: My Sensitive Guy

http://evanbraveheart.blogspot.com/2012/01/my-sensitive-guy.html

Wednesday, January 18, 2012. Like I should be surprised. I'm always trying to encourage him to give people a break or to remember that sometimes people, including himself, have bad days. He is so sensitive. Have I said that? Mom I did it again and I wondered afterwards if I was doing a bad thing or not. Did you mean it to be bad. No, I was just popping my fingers. Then it wasn't bad, it's only bad if you mean for it to be bad Evan. Also the strong academics and the pushing mama to the absolute limits!

3

Our Little Braveheart: Merry Christmas & a whole lot more

http://evanbraveheart.blogspot.com/2012/12/merry-christmas-whole-lot-more.html

Friday, December 21, 2012. Merry Christmas and a whole lot more. Subscribe to: Post Comments (Atom). Kosair Childrens Hospital; Congenital Heart Center. Little Hearts: A Collection of Stories. Merry Christmas and a whole lot more.

4

Our Little Braveheart: March 2011

http://evanbraveheart.blogspot.com/2011_03_01_archive.html

Tuesday, March 08, 2011. Dance Marathon and my "crazy" kid. Age 7 and 48 inches can drive the slower go carts. Oh my goodness, are you serious? Anyhoo. I talked him into letting me drive the 2 mile track and then he could decide if he wanted to drive. The whole way around he kept saying - how do we get back? I would tell him you just keep following the road. I was sure he wouldn't want to do it himself. When we pulled into our spot he jumped out and said. okay which one do I drive? Way to go ULDM!

5

Our Little Braveheart: November 2011

http://evanbraveheart.blogspot.com/2011_11_01_archive.html

Sunday, November 06, 2011. Caroline Jane and Fall Break. Evan is Star of the Week this week! We are so proud of him. Isn't that poster the cutest thing. He is so cute! I love that he picked his cardio as his hero! I hope he is always so proud of his heart story and continues to share it. I'm also glad he see's himself as a Tae Kwon Do, baseball, regular little boy as well. He is my sunshine. I'm starting turkey stickers this week! Great Wolf Lodge - Fall Break 2011. Great Wolf Lodge - Fall Break 2011.

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suggs.blogspot.com

Suggs Family: May 2008

http://suggs.blogspot.com/2008_05_01_archive.html

This is our blog is to keep family and friends up to date on the Suggs' happenings. Mostly pertaining to our son and his Congenital Heart Defect, Tetralogy of Fallot w/Pulmonary Atresia. Saturday, May 24, 2008. All is well. Miles is doing great. Riley finishes kindergarten next week! Can you believe it! I have started the process to have Miles evaluated for Pre-K (PPCD). (only a year late! He did puke at the movies yesterday - right out in front of the box office! Tuesday, May 06, 2008. Anyone from Houst...

suggs.blogspot.com

Suggs Family: June 2008

http://suggs.blogspot.com/2008_06_01_archive.html

This is our blog is to keep family and friends up to date on the Suggs' happenings. Mostly pertaining to our son and his Congenital Heart Defect, Tetralogy of Fallot w/Pulmonary Atresia. Tuesday, June 03, 2008. Is this just part of the gig? Are there any other parents that are required to accompany their child on a field trip? Why do we not have this in writing? Speaking of in writing - they sent me a legal agreement about the medication. It says:. From some of the kids. I think his teacher may have ...

suggs.blogspot.com

Suggs Family: July 2008

http://suggs.blogspot.com/2008_07_01_archive.html

This is our blog is to keep family and friends up to date on the Suggs' happenings. Mostly pertaining to our son and his Congenital Heart Defect, Tetralogy of Fallot w/Pulmonary Atresia. Friday, July 25, 2008. This is a little video I took of Miles when he was having his allergic reaction. It came in handy when the docs came by after he started to get back to normal. He was SO asleep here! Like a rag doll! Sorry it took so long to update.We are home! He didn't want the IVs out (he wanted to leave them in...

suggs.blogspot.com

Suggs Family: November 2009

http://suggs.blogspot.com/2009_11_01_archive.html

This is our blog is to keep family and friends up to date on the Suggs' happenings. Mostly pertaining to our son and his Congenital Heart Defect, Tetralogy of Fallot w/Pulmonary Atresia. Wednesday, November 11, 2009. Cardio.Miles is doing well cardiac wise. His next check up is in February. He gets tired alot but I am not sure if that is behavioral or heart stuff. His fingertips are red all the time but who knows.that could be marker! NeuroHe has not had a seizure since June which rocks! We are all swine...

suggs.blogspot.com

Suggs Family: October 2008

http://suggs.blogspot.com/2008_10_01_archive.html

This is our blog is to keep family and friends up to date on the Suggs' happenings. Mostly pertaining to our son and his Congenital Heart Defect, Tetralogy of Fallot w/Pulmonary Atresia. Monday, October 20, 2008. Sorry it has been so long. Since he has started to take the higher dose he has done sooo well! My dad had his surgery for the cancer. I could write all night on how things went but the short version is this:. My mom has really been holding up great! I miss my home! Riley is doing really well in ...

suggs.blogspot.com

Suggs Family: May 2009

http://suggs.blogspot.com/2009_05_01_archive.html

This is our blog is to keep family and friends up to date on the Suggs' happenings. Mostly pertaining to our son and his Congenital Heart Defect, Tetralogy of Fallot w/Pulmonary Atresia. Tuesday, May 12, 2009. We got some pictures taken.they are great! Monday, May 04, 2009. Two posts in one. Today is Miles' 5th birthday! I can't believe he is so big! He had a great birthday party over the weekend at Chuck E Cheese and loved playing with all of his new toys/games. But then the little stinker had a seizure...

suggs.blogspot.com

Suggs Family: March 2009

http://suggs.blogspot.com/2009_03_01_archive.html

This is our blog is to keep family and friends up to date on the Suggs' happenings. Mostly pertaining to our son and his Congenital Heart Defect, Tetralogy of Fallot w/Pulmonary Atresia. Friday, March 20, 2009. So he upped it to 10mls BID - which is 1200mg/day! Aunt Christy, don't you take 1500mg/day at 32yrs old? He said there won't be anything to worry about with that quantity of meds in his system (really? The normal dose of trileptal is 25mg/kg and now Miles is at 70.5mg/kg! What the heck is it?

suggs.blogspot.com

Suggs Family: still no answers...

http://suggs.blogspot.com/2009/07/still-no-answers.html

This is our blog is to keep family and friends up to date on the Suggs' happenings. Mostly pertaining to our son and his Congenital Heart Defect, Tetralogy of Fallot w/Pulmonary Atresia. Friday, July 10, 2009. Today he did well. He finished the holter and that will get turned in tomorrow. I am so tired! I am off to dream land. Love and hugs to all! Im sorry to hear that about no answers. I just saw the email on yahoo and wanted to drop in and let you all know Im praying for Miles. Welcome to my Blog!

shamirakarim.blogspot.com

Sugar & Spice: Connecting with Alysha

http://shamirakarim.blogspot.com/2007/03/connecting-with-alysha.html

Now that I have 2 little angels, life is truely full of flavour. Friday, March 16, 2007. And so Alysha is disconnected to me? This is how it goes with me. I have the need to connect with ALysha from time to time when I feel she is disconnected to me. I don’t know if other moms feel this and can relate to this or it’s just something that I feel. My personal need. Inarah on the other hand wants to nurse as soon as she sees me, so she is in my arms for a good 10-15 min (this is when I feel connected to her)...

shamirakarim.blogspot.com

Sugar & Spice: It finally here-Cath and Surgery date

http://shamirakarim.blogspot.com/2008/09/it-finally-here-cath-and-surgery-date.html

Now that I have 2 little angels, life is truely full of flavour. Thursday, September 04, 2008. It finally here-Cath and Surgery date. It’s finally here. Inarah’s surgery or rather it was here. We had to postpone it. I know it's confusing. Please bear with me. I'll start from the begining. I did not blog about it earlier coz I just could get myself to do it yet, I think. Inarah’s cardiologist finally said very firmly, fix a date for surgery. It’s no point waiting. Her heart is ready-fully developed. Got a...

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Our Little Braveheart

Friday, December 21, 2012. Merry Christmas and a whole lot more. Monday, May 14, 2012. Brave Hearts night at the ballgame. I'm so incredibly proud of our local support group, Brave Hearts. We have gone from being a few families that happened upon each other and came up with a dream of helping other families, to doing exactly that. Signing on with the Kosair Children's Hospital Foundation was a big group decision but one we don't regret taking. What an amazing year! Friday, March 09, 2012. I think he is g...

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