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evans-story.blogspot.com

Evan's Story

This site was created to help all families with an interest is Short Rib Polydactyly Syndrome (SRPS). It is an effort to provide information and support on a topic that is dominated by obscure, cold medical journals. We have personally gone through what you, or someone close to you, has gone through or may be going through now. Please to not hesitate to get a hold of us with any questions you may have. We're also here if you just need to talk. Thank You, Eric and Erin, EGL2004@gmail.com.

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Evan's Story | evans-story.blogspot.com Reviews
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This site was created to help all families with an interest is Short Rib Polydactyly Syndrome (SRPS). It is an effort to provide information and support on a topic that is dominated by obscure, cold medical journals. We have personally gone through what you, or someone close to you, has gone through or may be going through now. Please to not hesitate to get a hold of us with any questions you may have. We&#39;re also here if you just need to talk. Thank You, Eric and Erin, EGL2004@gmail.com.
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1 evan's story
2 totally off topic
3 enjoy the pic
4 eric
5 posted by
6 39 comments
7 1 comment
8 you don't
9 enjoy the picture
10 4 comments
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evan's story,totally off topic,enjoy the pic,eric,posted by,39 comments,1 comment,you don't,enjoy the picture,4 comments,hospital/de/aidhc/service/,skeletal/disorder/hypoplasia,html,read more here,3 comments,lack of apology,older posts,followers,about me
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Evan's Story | evans-story.blogspot.com Reviews

https://evans-story.blogspot.com

This site was created to help all families with an interest is Short Rib Polydactyly Syndrome (SRPS). It is an effort to provide information and support on a topic that is dominated by obscure, cold medical journals. We have personally gone through what you, or someone close to you, has gone through or may be going through now. Please to not hesitate to get a hold of us with any questions you may have. We&#39;re also here if you just need to talk. Thank You, Eric and Erin, EGL2004@gmail.com.

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evans-story.blogspot.com evans-story.blogspot.com
1

Evan's Story: Totally Off Topic

http://evans-story.blogspot.com/2009/07/totally-off-topic.html

Friday, July 10, 2009. February 26, 2010 at 3:26 AM. 若對自己誠實,日積月累,就無法對別人不忠了。 . March 17, 2010 at 3:35 AM. March 28, 2010 at 9:28 PM. Thank for share, it is very important . ̄︿ ̄. April 7, 2010 at 2:41 AM. Pleasure to find such a good artical! April 16, 2010 at 7:46 PM. April 24, 2010 at 4:00 AM. 思想與理論,貴呼先於行動,但行動較思想或理論更高貴 . April 30, 2010 at 10:49 AM. 您的blog蠻不錯的耶,祝你快樂哦!期待您的更新! . May 5, 2010 at 12:56 PM. 行動養成習慣,習慣培養人格,人格影響命運 . May 10, 2010 at 10:24 AM. May 20, 2010 at 8:03 PM. May 29, 2010 at 1:47 AM. 好地方&#65...

2

Evan's Story: December 2008

http://evans-story.blogspot.com/2008_12_01_archive.html

Tuesday, December 16, 2008. Short Rib Polydactyly Syndrome - SRPS. This is my first shot at creating a blog. I'm sure it will get better as time goes on. I just wanted to get something started so if there were any other families out there that are currently going through this they have somewhere to go and someone to reach out to. There are very few places you can go online that discuss SRPS aside from obscure medical journals. I'm hoping to change this. Subscribe to: Posts (Atom). View my complete profile.

3

Evan's Story: How Life is Measured

http://evans-story.blogspot.com/2009/04/how-life-is-measured.html

Saturday, April 4, 2009. How Life is Measured. Here's another example of why I think that disclaimer should be required:. Http:/ www.howlifeismeasured.blogspot.com/. How Life Is Measured. April 22, 2009 at 12:24 PM. So glad you wrote me! I wish we lived closer! April 27, 2009 at 12:53 PM. December 6, 2010 at 8:28 AM. Subscribe to: Post Comments (Atom). CHH - The Facts. They Found the Gene! How Life is Measured. View my complete profile.

4

Evan's Story: July 2009

http://evans-story.blogspot.com/2009_07_01_archive.html

Friday, July 10, 2009. Alrighty, let the rice cereal begin! Feeding Evan is more like a fight in the ring. You have to juke and jive and wait for the right second for his mouth to be open to shove the spoon in . Even then, your lucky if that "wild card" tongue doesn't push it out all over himself. Ever since starting this endeavor I have felt a compulsion to buy a power washer. Is that bad? He's still very happy and a pretty easy going guy. Growing lot's and packing on the pounds. View my complete profile.

5

Evan's Story: You CAN'T Resist This!!!!!!!

http://evans-story.blogspot.com/2009/06/you-cant-resist-this.html

Monday, June 22, 2009. You CAN'T Resist This! Okayokay, I know. I've been TERRIBLE about making posts. It's been 2 MONTHS! Uh ohI've said too much.now I'm embarrassed. I promise to be better about making posts. June 23, 2009 at 10:47 AM. Your a dork brutha hes a handsome son of a good looking dad :-D. June 23, 2009 at 11:44 PM. Sokay - makes me feel a little better for being over a month behind already! July 4, 2009 at 7:02 PM. Ive been wondering about you all. Glad to see you all are still out there.

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lovinglittleleah.blogspot.com lovinglittleleah.blogspot.com

Loving Leah, Tommy, Nic and Kenny: Out of the Ashes

http://lovinglittleleah.blogspot.com/2009/11/out-of-ashes.html

Tuesday, 24 November 2009. Out of the Ashes. A friend and counselor of mine during our long walk through Leah's death and Tommy's adoption recently asked to share our story during a devotional she was preparing. She asked for some pictures of both Leah and Tommy, so I made a little slideshow. I used music from Steven Curtis Chapman's newest album Beauty Will Rise. This album rocks my world. Which helps hundreds of families bring home kids every year (including us! A few weeks ago I saw an article on CNN&...

lovinglittleleah.blogspot.com lovinglittleleah.blogspot.com

Loving Leah, Tommy, Nic and Kenny: Seven Years

http://lovinglittleleah.blogspot.com/2015/06/seven-years.html

Wednesday, 24 June 2015. So sad. So beautiful. Your growing family is just beautiful. Thank you for sharing these pictures. 3 July 2015 at 16:46. Subscribe to: Post Comments (Atom). As our lives moved forward we continued to blog about the adoption of our precious son Tommy from Uganda, his homecoming, and the everyday moments that now compose our lives. Now we find ourselves on yet another adoption journey to bring home another son from Africa. Thank you for reading and walking this road with us. The Lu...

lovinglittleleah.blogspot.com lovinglittleleah.blogspot.com

Loving Leah, Tommy, Nic and Kenny: Our Prayer for Our Baby

http://lovinglittleleah.blogspot.com/2008/07/our-prayer-for-our-baby.html

Wednesday, 23 July 2008. Our Prayer for Our Baby. After we received Leah’s diagnosis, our prayers changed. We prayed for a miracle, we prayed for comfort and peace, for wisdom in our decision making process, and that our baby would survive labor and have some time to spend with us. But our number one prayer remained the same, that God would use our baby’s life to bring glory to His name. Thank you for doing this blog! 24 July 2008 at 00:18. You help sharpen on MY faith! 24 July 2008 at 21:49. I was just ...

lovinglittleleah.blogspot.com lovinglittleleah.blogspot.com

Loving Leah, Tommy, Nic and Kenny: The Second Ultrasound

http://lovinglittleleah.blogspot.com/2008/07/second-ultrasound.html

Thursday, 31 July 2008. Labels: Potters Syndrome and Oligohydramnios. Again, thank you for sharing your story. Your love for Leah, for God, and for each other is so obvious and inspirational. My prayers for you continue. 31 July 2008 at 11:21. Subscribe to: Post Comments (Atom). Please feel free to contact us at lovinglittleleah@gmail.com. Subscribe to Loving Leah. Our Prayer for Our Baby. Labor and Delivery, Part One. Labor and Delivery, Part Two. Out of the Ashes. Worth a Thousand Words. Some Much Need...

lovinglittleleah.blogspot.com lovinglittleleah.blogspot.com

Loving Leah, Tommy, Nic and Kenny: Cub Scout Fun

http://lovinglittleleah.blogspot.com/2015/04/cub-scout-fun.html

Saturday, 4 April 2015. Tommy has really been loving cub scouting. It has been fun to try so many new things, and the while family has been enjoying the outings and pack meetings. Here are some pictures from the Pinewood Derby. He and Jeff crafted his car to look like Jeff's "cool car." It didn't win, but it sure was fun to watch! It does look like a lot of fun. 4 April 2015 at 21:47. Subscribe to: Post Comments (Atom). Please feel free to contact us at lovinglittleleah@gmail.com. Subscribe to Loving Leah.

lovinglittleleah.blogspot.com lovinglittleleah.blogspot.com

Loving Leah, Tommy, Nic and Kenny: Happy Birthday Tommy!

http://lovinglittleleah.blogspot.com/2015/04/happy-birthday-tommy.html

Friday, 24 April 2015. Sometimes I'm not sure how we got here, but we now officially have a seven year old! Speaking of socializing, Tommy had a friend birthday party too. He loves his birthday, and starts discussing his party and invite lists months in advance (which is nice because it usually starts with "I want to invite the entire school! We are so proud of you and are blessed to be your parents! I cannot and will not believe it! But the proof is in the pictures:) What a mature guy 3. As our lives mo...

lovinglittleleah.blogspot.com lovinglittleleah.blogspot.com

Loving Leah, Tommy, Nic and Kenny: Catching Up Pt. 1: Easter

http://lovinglittleleah.blogspot.com/2015/04/catching-up-pt-1-easter.html

Tuesday, 21 April 2015. Catching Up Pt. 1: Easter. Here are a few pictures from our Easter festivities - the egg hunt after church, our impromptu backyard picnic (because it was such a beautiful day that the kids begged to eat outside), and our neighborhood egg hunt in the park. It was a wonderful day! Subscribe to: Post Comments (Atom). Please feel free to contact us at lovinglittleleah@gmail.com. Subscribe to Loving Leah. Our Prayer for Our Baby. Labor and Delivery, Part One. Out of the Ashes. Resistin...

lovinglittleleah.blogspot.com lovinglittleleah.blogspot.com

Loving Leah, Tommy, Nic and Kenny: The First Ultrasound

http://lovinglittleleah.blogspot.com/2008/07/first-ultrasound.html

Saturday, 26 July 2008. We knew that we were not going to make any decisions without a second opinion and the best diagnostic assessment possible, and lots of time to weigh our options and pray. We also knew there was no way we would deliver prior to 24 weeks, the standard time when doctors consider babies able to survive labor and viable outside the womb. We would not deliver if no chance of survival existed. Labels: Potters Syndrome and Oligohydramnios. 28 July 2008 at 00:21. 3 November 2009 at 19:13.

lovinglittleleah.blogspot.com lovinglittleleah.blogspot.com

Loving Leah, Tommy, Nic and Kenny: Whale Carrot vs. Pink Mustache

http://lovinglittleleah.blogspot.com/2015/04/whale-carrot-vs-pink-mustache.html

Saturday, 25 April 2015. Whale Carrot vs. Pink Mustache. Followed by The Time Kenny Rubbed His Upper Lip So Raw That He Gave Himself a Mustache Which He Wore Proudly For About a Week. I have a pink mustache. Subscribe to: Post Comments (Atom). Please feel free to contact us at lovinglittleleah@gmail.com. Subscribe to Loving Leah. Our Prayer for Our Baby. Labor and Delivery, Part One. Labor and Delivery, Part Two. Out of the Ashes. Worth a Thousand Words. The One in Our Arms. Waiting, Waiting, Waiting.

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Evan's Story

Friday, July 10, 2009. Alrighty, let the rice cereal begin! Feeding Evan is more like a fight in the ring. You have to juke and jive and wait for the right second for his mouth to be open to shove the spoon in . Even then, your lucky if that "wild card" tongue doesn't push it out all over himself. Ever since starting this endeavor I have felt a compulsion to buy a power washer. Is that bad? He's still very happy and a pretty easy going guy. Growing lot's and packing on the pounds. Monday, June 22, 2009.

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