every90minutes.org every90minutes.org

every90minutes.org

Inspiring the Fight Against ALS #every90minutes - 90 Foundation

Our mission is to bring awareness and innovation to finding a cure for ALS, also know as Lou Gehrig's Disease. PLEASE DONATE TO ALS RESEARCH AND TREATMENT.

http://www.every90minutes.org/

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Inspiring the Fight Against ALS #every90minutes - 90 Foundation | every90minutes.org Reviews
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Our mission is to bring awareness and innovation to finding a cure for ALS, also know as Lou Gehrig's Disease. PLEASE DONATE TO ALS RESEARCH AND TREATMENT.
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Inspiring the Fight Against ALS #every90minutes - 90 Foundation | every90minutes.org Reviews

https://every90minutes.org

Our mission is to bring awareness and innovation to finding a cure for ALS, also know as Lou Gehrig's Disease. PLEASE DONATE TO ALS RESEARCH AND TREATMENT.

INTERNAL PAGES

every90minutes.org every90minutes.org
1

Where do donations go? - 90 Foundation

http://www.every90minutes.org/information/where-do-donations-go

Where do donations go? Through our fundraising efforts, we will ensure that 100% of the money we raise will go directly to research and treatment to find a cure. We’ve done a survey of existing ALS research and we’ve identified and are working with the two organizations leading the charge on the fight to cure ALS. We have outlined the efforts so you can see how our fundraising efforts will help lead to a cure. ALS Therapy Development Institute. Ouston Methodist Neurological Institute. Research team has s...

2

About - 90 Foundation

http://www.every90minutes.org/about

About the 90 Foundation. Our mission is to support the most promising research to find a cure for ALS. We imagine a world where ALS is a treatable and manageable illness, rather than an underfunded and terminal disease, which devastates the lives of individuals and their families receiving a diagnosis every 90 minutes. We created the 90 Foundation, a 501(c)3, to raise money for research to treat and cure ALS. We are dedicated to making sure that 100% of the money we raise goes directly towards resear...

3

Take Action - 90 Foundation

http://www.every90minutes.org/take-action

Be part of the cure. ALS in not an incurable disease. it is an underfunded disease. With your help we can change that. Our fundraising efforts go directly to research to find a cure for ALS. We accept all major credit cards as well as PayPal. 90 Foundation – ALS Research. Donations made to the 90 Foundation (a non profit 501c3) go directly towards the most innovative ALS research. All donations made to the Foundation are tax deductible. We accept all major credit cards as well as PayPal. Austin, TX 78750.

4

Stories - 90 Foundation

http://www.every90minutes.org/stories

Award-winning journalist Susan Spencer-Wendel was in her prime when she got a devastating diagnosis: ALS, sometimes known as Lou Gehrig’s disease. Knowing she only had a few years to live, she and her family started tackling all the items on her bucket list. In May 2014, Susan passed away from ALS. Heart of a Champion. Former NFL New Orleans Saints player Steve Gleason has been battling ALS since 2011. Athletes, especially soccer and football players are no stranger to ALS. These athletes are fou...

5

Events - 90 Foundation

http://www.every90minutes.org/events

Monday, June 27th from 6-10 PM at Balcones Country Club. Family Fun Night with food, silent auction, kids games, swimming, 50/50, live music, cash bar. Benefit for Jay Smith Medical Trust. Tickets: $10 kids, $25 adults, $60 family Tickets Family $60.00 USDAdult $25.00 USDChild $10.00 USD. Motorcycle Rally and Auction. Preliminary Approval for GM6. Beat ALS Vol. 1. Beyond moving bodies and stirring emotion, music can also be a powerful vehicle for social change. Every90Minutes, in conjunction with Gra...

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bluskreen.com bluskreen.com

Beat ALS Vol. 1 - BLUSKREEN

http://bluskreen.com/beat-als-vol-1

Beat ALS Vol. 1. Beat ALS Vol. 1 by Various Artists. In conjunction with Gravitas Recordings. Has curated a unique compilation of electronic music for an important cause. “Beat ALS” spans 17 tracks across a number of genres with 100% of the proceeds directly benefiting The 90 Foundation. Jay Smith, my close friend, Sinch. Band-mate, founder of Livid Instruments. And collaborator on many other projects for years, founded Every90Minutes.org. After being diagnosed with ALS. 1 Bassnectar – Ephemeral.

moretimetolove.com moretimetolove.com

ALS Info & Links | More Time to Love

https://moretimetolove.com/als-resources-links

More Time to Love. ALS Info & Links. Reviews & Press. One Father's Extraordinary Journey, Living Longer With ALS. ALS Info and Links. To learn more about ALS, find resources, or to support the cause, please visit any of these links below:. Images contained on this website may not be copied or reproduced without the express written consent of Julie Wions.

q4tw.com q4tw.com

Quinn For The Win

http://www.q4tw.com/index.html

Give toward the cause. Donate now and help find a cure. 3rd Annual Golf Outing. QUINN 4 THE WIN. 3rd Annual Quinn Golf Outing. Yonkers, NY 1:00pm. I was diagnosed with ALS. I know the road ahead may be difficult, but I am ready to give this disease everything I have. My name is Patrick Quinn. My life changed on March 8, 2013, I was diagnosed with ALS. Let the battle begin. Join in the battle! We believe collaboration and working together is key to beating this disease! We need your support! ALS is a dise...

stephenfinger.wordpress.com stephenfinger.wordpress.com

May | 2015 | Stephen Finger

https://stephenfinger.wordpress.com/2015/05

Husband, father, brother, son, living with ALS. May 31, 2015. ALS Awareness Month. Beyond the Ice Bucket Challenge. My ALS Story. May 2013. Comments on Guidance for Industry Drug Development for Amyotrophic Lateral Sclerosis. How are you doing? Response to “The 21st Century Cures Act could be a harmful step backward”. On Comments on Guidance for Indu…. On Comments on Guidance for Indu…. On Comments on Guidance for Indu…. Ron Malone on Comments on Guidance for Indu…. Daniel Brownstein on How are you doing?

stephenfinger.wordpress.com stephenfinger.wordpress.com

Donate | Stephen Finger

https://stephenfinger.wordpress.com/fundraising

Husband, father, brother, son, living with ALS. We are committed to raising funds to help more rapidly develop an effective treatment for ALS. Our family and friends have contributed over $200,000 to the fight. We support the ALS Therapy Development Institute. For more information, visit http:/ community.als.net/rootforacure. We also supports Team Gleason and all they do to improve the lives of people living with ALS. http:/ www.teamgleason.org. One thought on “ Donate. August 20, 2014 at 10:20 am. Ron M...

niecyisms.com niecyisms.com

Get Your #ALSIceBucketChallenge Survival Kit- #EveryAugustUntilaCure | niecyisms and nestlings

http://www.niecyisms.com/2015/08/get-your-alsicebucketchallenge-survival.html

Disclosure Policy for niecyisms. Featured Guest Post Guidelines. Noted Novelties by Niecy. Get Your #ALSIceBucketChallenge Survival Kit- #EveryAugustUntilaCure. I am nominating you to get your ALS Ice Bucket Challenge Survivor Kit. You have 24 hours to complete the download. And share with three friends. So I am committed to sharing awareness of the ALS Ice Bucket Challenge, every August, until a cure. Let's share a little understanding and awareness,. ALS, also referred to as Lou Gehrig’s disease,...

lividinstruments.com lividinstruments.com

Livid Instruments

http://lividinstruments.com/company

Livid Instruments was founded in 2004 by Jay Smith, Travis Redding, and Peter Nyboer. They took their passion for building unique instruments for computer music and helped spark a controller revolution. Today Livid Instruments still manufactures their products in Austin, TX The live music capital of the world , and employs a team of creative engineers, designers, and musicians with the same sense of innovation and inventiveness that started the company. Jay Smith, Founder and CEO. Travis Redding, COO.

stephenfinger.wordpress.com stephenfinger.wordpress.com

March | 2015 | Stephen Finger

https://stephenfinger.wordpress.com/2015/03

Husband, father, brother, son, living with ALS. March 29, 2015. The Case for Granting Accelerated Approval to GM604. This past week I went to Washington DC to speak at a rally urging the FDA to grant Accelerated Approval for GM604. I saw old friends, made new friends, connected with many families in the ALS community, and met with members of Congress. Here is the text of my speech in which I lay out why I believe Accelerated Approval should be granted:. March 25, 2015. Two years ago I was diagnosed with ...

stephenfinger.wordpress.com stephenfinger.wordpress.com

January | 2015 | Stephen Finger

https://stephenfinger.wordpress.com/2015/01

Husband, father, brother, son, living with ALS. January 22, 2015. Over 75,000 members of the ALS community have signed a petition encouraging the FDA to grant the approval ( https:/ www.change.org/p/food-and-drug-administration-accelerated-fda-approval-of-genervon-s-gm6-for-use-in-als. Https:/ www.change.org/p/food-and-drug-administration-accelerated-fda-approval-of-genervon-s-gm6-for-use-in-als. January 13, 2015. My ALS Story. May 2013. How are you doing? On Comments on Guidance for Indu…. A Life Story ...

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Inspiring the Fight Against ALS #every90minutes - 90 Foundation

Inspiring the fight against ALS. Our mission is to bring awareness and innovation to finding a cure for ALS, also know as Lou Gehrig’s Disease. We imagine a world where ALS is a treatable, manageable illness rather than an underfunded, terminal disease that devastates the lives of individuals and their families every 90 minutes. 90 Foundation A Non-Profit 501c3. ALS in not an incurable disease. it is an underfunded disease. With your help we can change that. Website Design by RASTERFORM.

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