ourjourneywithdoose.blogspot.com
Our Journey With Doose Syndrome: 912
http://ourjourneywithdoose.blogspot.com/2014/07/912.html
Sunday, July 6, 2014. That's how many days it has been since his last seizure. Two and a half years. Things were at their worst. Then and even though we rejoiced about a "no helmet day". In my heart, I was so worried that things would only spiral downhill again. That's the part that still always amazes me. God can see further down the road than we can, but trusting Him is not always the easiest for me. I'm thankful for His grace. I'm also reminded that the fight is not over yet for too many kids. Ben was...
ourjourneywithdoose.blogspot.com
Our Journey With Doose Syndrome: Team Ben
http://ourjourneywithdoose.blogspot.com/p/team-ben.html
We are blessed wtih so many people supporting us! We are encouraged each time we receive a note or a message! November 26, 2012 at 7:33 AM. Great pictures and a great story. Our son is diagnosed with doose since April this year. We are on the diet since 6 weeks Keppra Orfiril Petnidan. He isn´t seizures free yesterday there were 4 Grand mal seizures. But we are hopeful. someday things will change and our son will come back. God bless you! Subscribe to: Posts (Atom). Ben's Story - how it all began. Second...
ourjourneywithdoose.blogspot.com
Our Journey With Doose Syndrome: Today is a no-helmet day!
http://ourjourneywithdoose.blogspot.com/2012/01/today-is-no-helmet-day.html
Saturday, January 7, 2012. Today is a no-helmet day! January 7, 2012 at 4:27 PM. January 7, 2012 at 7:38 PM. January 7, 2012 at 8:04 PM. Thankful for every good thing, every bit of respite; thankful for Gods goodness and provision. April 30, 2012 at 4:16 PM. WOW YOU HAVE A AMAZING LITTLE BOY! Subscribe to: Post Comments (Atom). Ben was diagnosed with Myoclonic Astatic Epilepsy of Doose (also referred to as Doose Syndrome) in August of 2011. This blog documents our experiences with this syndrome. Its the ...
ourjourneywithdoose.blogspot.com
Our Journey With Doose Syndrome: June 2014
http://ourjourneywithdoose.blogspot.com/2014_06_01_archive.html
Monday, June 30, 2014. How being a parent is helping me become a better teacher. Working with children has been my passion for my entire life. As I’ve been reflecting on this past school year, I’ve realized that parenting Ben has given me a fresh perspective on the classroom experience. We have been beyond pleased with Ben’s teachers and his school. In fact, these things have been modeled all year by his teachers. This list is NOT a reflection on his. It’s a reflection on my own. I’m excited about. Kids ...
ourjourneywithdoose.blogspot.com
Our Journey With Doose Syndrome: how being a parent is helping me become a better teacher...
http://ourjourneywithdoose.blogspot.com/2014/06/how-being-parent-is-helping-me-become.html
Monday, June 30, 2014. How being a parent is helping me become a better teacher. Working with children has been my passion for my entire life. As I’ve been reflecting on this past school year, I’ve realized that parenting Ben has given me a fresh perspective on the classroom experience. We have been beyond pleased with Ben’s teachers and his school. In fact, these things have been modeled all year by his teachers. This list is NOT a reflection on his. It’s a reflection on my own. I’m excited about. Kids ...
ourjourneywithdoose.blogspot.com
Our Journey With Doose Syndrome: Second Grade looks good to me!
http://ourjourneywithdoose.blogspot.com/2014/08/second-grade-looks-good-to-me.html
Sunday, August 24, 2014. Second Grade looks good to me! Tomorrow is the big day! First day of school! I think he's a little excited. He woke up telling us, "Don't say anything about what tomorrow is." :) But as the day has gone on, I think he's excited to see his friends again. I just know it's going to be a great year! Who said he could grow up? They are so big! Let's hope they are this excited after the first week. :). Thanks Angie for the pics! Subscribe to: Post Comments (Atom). Rest secure in Him.
ourjourneywithdoose.blogspot.com
Our Journey With Doose Syndrome: What does Doose look like? {video footage}
http://ourjourneywithdoose.blogspot.com/p/what-does-doose-look-like.html
What does Doose look like? There are many types of seizures. Before we started on this journey, I was only aware of two. I watched a classmate have a 'grand mal' seizure in high school. I had heard that sometimes when people appear to be daydreaming, it could be a seizure (absence seizures). Ben has 3 different types of seizures. Used to be referred to as 'grand mal'; lots of convulsions; most often he completely stops breathing; usually sleeps for at least an hour after each one. The promise we cling to.
ourjourneywithdoose.blogspot.com
Our Journey With Doose Syndrome: Understanding is different than fixing.
http://ourjourneywithdoose.blogspot.com/2014/06/understanding-is-different-than-fixing.html
Thursday, June 19, 2014. Understanding is different than fixing. First grade has taught Ben some important lessons. But we have learned a lot as well. We went into first grade with some big fears. Will he catch up? Will he grow to love learning? Will he make friends? Will being pulled out for speech, occupational therapy, and resource be too much for him? In the end, it's been a tremendous year of growth for him. He's made a years worth of progress and more in some areas! But it hasn't been easy. Love Ca...
ourjourneywithdoose.blogspot.com
Our Journey With Doose Syndrome: Lemonade Stand - Saturday, July 26th
http://ourjourneywithdoose.blogspot.com/2014/07/lemonade-stand-saturday-july-26th.html
Saturday, July 19, 2014. Lemonade Stand - Saturday, July 26th. We have changed the date of the lemonade stand from Friday to Saturday, July 26th. According to Livys Hope, there are only 6 states left to host a lemonade stand. Do you know anyone living in Delaware, New Mexico, North Dakota, Oregon, or Tennessee? Maybe they would consider helping out and turning the country purple for epilepsy awareness. Go to www.livyshope.com to find out more! Subscribe to: Post Comments (Atom). What does Doose look like?
