pwsgulley.blogspot.com
Amazing Adventures of Ayden Jane: September 2014
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Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Tuesday, September 30, 2014. Fine Motor and Written Expression. It has been fascinating to watch Ayden Jane work on learning to express her thoughts on paper. I was amazed both by how hard this process is for her and her perseverance to stick with it until the very end. Monday, September 22, 2014. Ayden Jane loved it! I just love that Mrs. C has Ayden Jane do the written work li...
pwsgulley.blogspot.com
Amazing Adventures of Ayden Jane: May 2015
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Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Sunday, May 31, 2015. PWS Awareness month - wrap up. As this years edition of PWS posts come to a close, what is most on my mind is how much less I have to say about PWS at this point. Wait. Maybe it's not less as I have tons of information packed in this head of mine that has been acquired over the past 7 years. Maybe it's just different? The waiting to see which of the long list o...
pwsgulley.blogspot.com
Amazing Adventures of Ayden Jane: February 2015
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Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Saturday, February 28, 2015. Today was Saturday. It was a wonderful Saturday. It started like any other Saturday with Ayden Jane waking me up to ask if I could turn on cartoons for her to watch so she could cuddle up in bed for a bit before breakfast. (she still gets up early.) By 7:30 or 8 we were headed out to the kitchen and had a nice breakfast. While on the sideline I was talki...
pwsgulley.blogspot.com
Amazing Adventures of Ayden Jane: October 2014
http://pwsgulley.blogspot.com/2014_10_01_archive.html
Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Tuesday, October 21, 2014. Busy - Life's Theme. This fall is racing by. Ayden Jane is doing great in school and she is participating in several after school activities. She is one happy, busy little first grader. Thursday she has her other day of swim team. Instilling the idea of daily exercise has been a great benefit to Ayden Jane. Since she is a routine kid she does not feel ...
pwsgulley.blogspot.com
Amazing Adventures of Ayden Jane: July 2015
http://pwsgulley.blogspot.com/2015_07_01_archive.html
Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Thursday, July 30, 2015. Cranking up the Carnitine. So as usual, I was not satisfied with things going well. I needed to know if they could be even better! I did the math and decided I was going to go for a third dose of carnitine. It will put Ayden Jane at a total of about 46 mg/kg. Sunday, July 26, 2015. The added carntine has been just the ticket for Ayden Jane. Her energy le...
pwsgulley.blogspot.com
Amazing Adventures of Ayden Jane: Her Number
http://pwsgulley.blogspot.com/2015/07/her-number.html
Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Sunday, July 12, 2015. Dealing with and discussing weight management with a 7 year old just seems wrong. We have taken to just having a scale out and Ayden Jane jumps on it from time to time. No schedules or charts or whatever. I get a kick out of how Ayden Jane calls her weight her 'number.'. Subscribe to: Post Comments (Atom). View my complete profile. Cranking up the Carnitine.
pwsgulley.blogspot.com
Amazing Adventures of Ayden Jane: January 2015
http://pwsgulley.blogspot.com/2015_01_01_archive.html
Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Friday, January 30, 2015. A friend saw a piece that a fellow mom of a child with PWS wrote for The Mighty. The challenge was put out to answer this question: If you could go back to the day you (or a loved one) got a diagnosis, what would you tell yourself? She challenged me to answer the same question. You will be frustrated beyond words at times. You will at times feel isolate...
sassyclassylife.blogspot.com
Sassy Classy: February 2011
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Wednesday, February 23, 2011. I'm going to start having a "theme" for a post every day of the week. Thursday is officially. Every Thursday I'll list a few confessions of mine. I'm going to warn you ahead of time, if you're not used to me, I'm brutally honest and I tend to over share.oops. Here we go! I don't wash my hair everyday (and sometimes I don't shower everyday). I can't stand to look at myself naked. To be honest with you it completely freaks me out. I warned you.sometimes I overshare! I'm not th...
mtenderemeanspeace.blogspot.com
Mtendere means Peace: January 2013
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Thursday, January 31, 2013. One Step at a TIme. It's been awhile :) We'll see if I become more regular this time or not, but as we begin a new phase of our parenting journey, I've found myself with more to say. Needless to say, this is the beginning of a new emotional roller coaster and it's going to take a lot of patience and a lot of prayer. Hopefully, I'll have more to say about all kinds of things as we move forward. Thanks to the few dedicated followers that haven't given up on my little blog! I was...
enjoyingthelittlethings-shell.blogspot.com
Enjoying the little things: August 2010
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Enjoying the little things. Grab the code to put on your page here:. Tuesday, August 31, 2010. Glad to have a baby Not SSTN. I was asked by a wonderful girl Jav. About Nanie's sleeping habits. Well actually she posted a poll about it and I answered :) Anyway, I proudly proclaimed that my daughter went to bed at 7-7:30pm, we took a bath, brushed teeth, lotioned up, fed and put to bed. Then the question was asked. Does your little one get up for a night time feeding? Post last week :). The day came when I ...