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The FAP Gene Support Group
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FAP Gene | fapgene.com Reviews
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FAP Gene Curcumin A Personal Trial Page 3
http://www.fapgene.com/curcuminpersonaltrial.html
FAP Gene Support Group. Click on photo's to enlarge). More studies on Curcumin. University of Leicester Curcumin Research. FAP Polyps Management November 2015 update. White Curcumin (Tetrahydrocurcumoid THC) and EPA oil. A family trial with three teenagers since 2008. Page 96 contains small part of trial 'Powder to Clinical Significance' Link to Amazon. By Peter a member of The FAP Gene Support Group. FAP Gene would like to thank Peter and his family for the information in this update. Our second son now...
FAP Events
http://www.fapgene.com/events.html
FAP Gene Support Group. Click on photo's to enlarge). MD Anderson Clinic Texas Family Day. Please use menu on the left hand side.
Fap Gene Curcumin Questionnaire
http://www.fapgene.com/questionnaire.html
FAP Gene Support Group. Click on photo's to enlarge). Facebook Forums and Blogs. Daniel Personal Story (AFAP). Links to other Websites. Trials and Research Menu. Supporting Families with Genetic Cancers. Questionnaire - University of Leicester Researchers. Curcumin use in Children and Young Adults. Researchers from the University of Leicester are requesting your help. Please follow this link to access the survey:. Https:/ www.survey.bris.ac.uk/leicester/fap.
FAP Gene Facebook Links
http://www.fapgene.com/fapgenefacebook.html
FAP Gene Support Group. Click on photo's to enlarge). FAP Gene Support Group Facebook. August 11th 2016 - The FAP gene Support Group now has its own Facebook Page. This was discussed at last years Chat Day and John together with Karen have set up the Closed Group Page. (which needs registration and approval). John and Karen are the Moderators as well. Following Link to Page opens in New Window FAP Gene Support Group. If you would like any links added to this page please e mail Mick Mason.
FAP Gene Verona Article
http://www.fapgene.com/veronaarticle.html
FAP Gene Support Group. Click on photo's to enlarge). From The IA Forum. FAP Gene Article and Verona Presentation. The Role of Support Groups or Patient Associations. Polyps and Polyposis From Genetics to Treatment and follow-up. Prof Gian Gaetano Delaini and Dr. Gianluca Colucci (editors). Springer Link July 2009 Free Introduction and Preview. Whole Chapter now $25. Springer Link July 2009 Complete Previews. Cover photo of the book. Rosa Gallo Foundation Page. John wrote a short piece on how FAPgene had...
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familyhistorybowelcancer.wordpress.com
Lifestyle and Reducing your Risk | The Family History of Bowel Cancer Clinic
https://familyhistorybowelcancer.wordpress.com/2012/08/11/lifestyle-and-reducing-your-risk
The Family History of Bowel Cancer Clinic. West Middlesex University Hospital, London, UK. Family History of Bowel Cancer? 8216;My Semicolon Life’. Variants of Uncertain Significance (VUS). Lynch Syndrome Patient Blog. Lifestyle and risk video. Curcumin and cancer risk. Aspirin for a family history? Information for Health Professionals. UK Screening Guidelines Familial Cancer. Bowel Cancer Screening Programme. Hereditary Colorectal Cancer Syndromes. Lynch Syndrome / HNPCC. Low penetrance genetic risk.
Life's a Polyp: Depression: An Ongoing Battle
http://lifesapolyp.blogspot.com/2015/05/depression-ongoing-battle.html
Life's a Polyp Shop for the NORD FAP Research Fund. Donate to NORD Familial Polyposis Research Fund. Saturday, May 9, 2015. Depression: An Ongoing Battle. That has been quietened over the years but remains lurking in the dark waiting to be resurrected at the most unwelcomed times once triggered. Together they lie at the edges of my life, waiting for entrance cues. A couple years following my first round of surgeries my depression was primarily turned outwards. And for months I didn't know if I'd make it ...
Life's a Polyp: Lessons Learned
http://lifesapolyp.blogspot.com/2015/01/lessons-learned.html
Life's a Polyp Shop for the NORD FAP Research Fund. Donate to NORD Familial Polyposis Research Fund. Thursday, January 15, 2015. I think it goes without saying, again, that one lesson learned by any type of chronic illness is that we reach a whole new level of appreciation and cherish of the good times, the good days we have. So I'll move on to my lessons learned. 1 Chronic Illness Changes You. I wouldn't be terrified of pain. With everything I do, I think about how to avoid or minimize risk of pain.
Mutant Me » previvor
http://www.mutantme.com/previvor
Adventures with Lynch Syndrome. September 13, 2014. Coming to terms with what lurks within your DNA. Are you familiar with the word? Chances are if you’ve seen or heard it before, it’s been in reference to someone who carries one of the BRCA genes that predisposes them to breast and ovarian cancer. (Think Angelina Jolie.). BUT the thing is, by it’s definition, the word previvor. A little history lesson. How did the term “previvor” originate? 8220;Cancer previvors” are individuals who are survivors ...
Life's a Polyp: Evils of Food
http://lifesapolyp.blogspot.com/2012/05/evils-of-food.html
Life's a Polyp Shop for the NORD FAP Research Fund. Donate to NORD Familial Polyposis Research Fund. Sunday, May 20, 2012. There are so many activities and hobbies that I enjoy that I want to participate in but sometimes I just can't. Sometimes walking inside from the car is a difficult task in itself much less any real physically strenuous activity. The evils of food, that wonderful tasting, life preserving particles of food create infuriating, excruciating obstacles. How I hate thou! I need to make a d...
Life's a Polyp: Helping Someone Who's Hurting
http://lifesapolyp.blogspot.com/2015/07/helping-someone-whos-hurting.html
Life's a Polyp Shop for the NORD FAP Research Fund. Donate to NORD Familial Polyposis Research Fund. Thursday, July 30, 2015. Helping Someone Who's Hurting. In my darkest moments. I realize I need help. The pit becomes too deep, too inviting and I am at risk of being lost. It isn't always easy to open the door and reach out to someone and ask for support through the darkness. 1 There Are People Worse Off. 2 You're Being Selfish. 3 That's a Cowards Way Out. 3 Don't Give Up On Them. Subscribe to: Post Comm...
familyhistorybowelcancer.wordpress.com
My Semicolon Life: Tracing my family’s cancer history – by Brian Mansfield | The Family History of Bowel Cancer Clinic
https://familyhistorybowelcancer.wordpress.com/2012/09/22/my-semicolon-life-tracing-my-familys-cancer-history-by-brian-mansfield
The Family History of Bowel Cancer Clinic. West Middlesex University Hospital, London, UK. Family History of Bowel Cancer? 8216;My Semicolon Life’. Variants of Uncertain Significance (VUS). Lynch Syndrome Patient Blog. Lifestyle and risk video. Curcumin and cancer risk. Aspirin for a family history? Information for Health Professionals. UK Screening Guidelines Familial Cancer. Bowel Cancer Screening Programme. Hereditary Colorectal Cancer Syndromes. Lynch Syndrome / HNPCC. Low penetrance genetic risk.
Life's a Polyp: June 2015
http://lifesapolyp.blogspot.com/2015_06_01_archive.html
Life's a Polyp Shop for the NORD FAP Research Fund. Donate to NORD Familial Polyposis Research Fund. Saturday, June 20, 2015. Refeeding is a Pain. I started the weekend early. Normally I try to sleep in, catch up on my rest and delay eating. The sound of my husband preparing for work kept me awake. My short to-do list for the day running through my mind. I'm awake, no need to try to force a return to sleep. Want to eat in order to prevent the resulting pain. Albeit slowly, I'll commit to a liquid diet fo...
Mutant Me » 2014 » September
http://www.mutantme.com/2014/09
Adventures with Lynch Syndrome. Monthly Archives: September 2014. Coming to terms with what lurks within your DNA. Are you familiar with the word? Chances are if you’ve seen or heard it before, it’s been in reference to someone who carries one of the BRCA genes that predisposes them to breast and ovarian cancer. (Think Angelina Jolie.). BUT the thing is, by it’s definition, the word previvor. A little history lesson. How did the term “previvor” originate? 8220;Cancer previvors” are individuals who ...
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FAP Gene
FAP Gene Support Group. Click on photo's to enlarge). Daniel Personal Story (AFAP). Links to other Websites. Trials and Research Menu. Supporting Families with Genetic Cancers. The FAP Gene Support Group. Sept 19th 2015 8th Annual Free Informal Chat Day Details Here. May 14th 2015 Plymouth Musketeers Running Club Fundraiser. April 9th 2015 USA Trial for Desmoid Tumours. March 17th 2015 New trial for Patients with FAP. FAP is a serious condition unless detected early when it can be treated.
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