fdmasregistry.org
Home Page - FD/MAS Patient RegistryFD/MAS Patient Registry registry powered by NORD platform.
http://www.fdmasregistry.org/
FD/MAS Patient Registry registry powered by NORD platform.
http://www.fdmasregistry.org/
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Lisa Heral
Lisa Heral
Fibrous D●●●●●●●●●oundation
Wash●●●●n DC , DC, 20003
US
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Lisa Heral
Lisa Heral
Fibrous D●●●●●●●●●oundation
Wash●●●●n DC , DC, 20003
US
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Lunarpages
System Administrator
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An●●im , CA, 92807
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Home Page - FD/MAS Patient Registry | fdmasregistry.org Reviews
https://fdmasregistry.org
FD/MAS Patient Registry registry powered by NORD platform.
fdmasregistry.org
News - FD/MAS Patient Registry
https://www.fdmasregistry.org/News
Welcome to the FD/MAS Patient Registry. Written by: Deanna Portero. Last update by: Deanna Portero. First posted: 10/31/2016 5:41:43 PM. Last updated: 10/31/2016 5:44:00 PM. FD/MAS Patient Registry is Open for Enrollment. If you are a person living with FD/MAS, or are the legal guardian of a person living with FD/MAS, you can enroll is this study. For more information about the study or how to enroll, please visit the About page for patients. Subscribe to the FDF newsletter.
About FD/MAS Patient Registry - FD/MAS Patient Registry
https://www.fdmasregistry.org/Home/About
About FD/MAS Patient Registry. About FD/MAS Patient Registry. The FD/MAS Patient Registry is a research project that allows patients and families to share their experiences with fibrous dysplasia/McCune-Albright syndrome (FD/MAS) by completing a series of surveys. The surveys were created in collaboration with patients, parents, clinicians and researchers, so that the data can be used to answer some of the most important questions about FD/MAS, including:. How and when diagnoses are made,. Participation ...
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Home Page - FD/MAS Patient Registry
The Fibrous Dysplasia/McCune-Albright Syndrome Patient Registry: Your story powers research! Learn more ». This is a unique rare disease patient registry. Are you interested in using our data to further your rare disease research? Participating in This Study. Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the rare disaease community. Please create an account and provide consent to participate in the study.
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