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Fibrolamellar Registry | A Source of Hope & Action For Patients & Families Fighting Fibrolamellar

A patient-powered registry linking medical histories with tissue samples to help cure fibrolamellar hepatocellular carcinoma.

http://www.fibroregistry.org/

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CONTACTS AT FIBROREGISTRY.ORG

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325 E●●●●●h St.

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Rachael Migler

325 E●●●●●h St.

N●Y , New York, 10028

US

1.21●●●●5564
rd●●●●●●@gmail.com

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FibroRegistry

Rachael Migler

325 E●●●●●h St.

N●Y , New York, 10028

US

1.21●●●●5564
rd●●●●●●@gmail.com

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Fibrolamellar Registry | A Source of Hope & Action For Patients & Families Fighting Fibrolamellar | fibroregistry.org Reviews
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A patient-powered registry linking medical histories with tissue samples to help cure fibrolamellar hepatocellular carcinoma.
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Fibrolamellar Registry | A Source of Hope & Action For Patients & Families Fighting Fibrolamellar | fibroregistry.org Reviews

https://fibroregistry.org

A patient-powered registry linking medical histories with tissue samples to help cure fibrolamellar hepatocellular carcinoma.

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fibroregistry.org fibroregistry.org
1

Intro To The Literature | Fibrolamellar Registry

https://www.fibroregistry.org/intro-to-the-literature

Skip to main content. A Source of Hope and Action For Patients and Families Fighting Fibrolamellar. Intro To The Literature. Volunteer Your Time or Tissue to Research. Dictionary of Key Terms. Introduction to the scientific literature about fibrolamellar. How to keep up with the latest articles:. Open any web browser, and type in the address: http:/ www.pubmed.com. Fortunately, in the past three years the NIH has started a policy that requires that any work that is done with NIH funds MUST be made availa...

2

User account | Fibrolamellar Registry

https://www.fibroregistry.org/forum

Skip to main content. A Source of Hope and Action For Patients and Families Fighting Fibrolamellar. Intro To The Literature. Volunteer Your Time or Tissue to Research. Dictionary of Key Terms. Log in (active tab). Enter your Fibrolamellar Registry username. Enter the password that accompanies your username. Fibrolamellar Registry, Inc., a registered 501(c)(3) tax-exempt charity. This site does not provide medical advice, diagnosis or treatment.

3

ABOUT | Fibrolamellar Registry

https://www.fibroregistry.org/about

Skip to main content. A Source of Hope and Action For Patients and Families Fighting Fibrolamellar. Intro To The Literature. Volunteer Your Time or Tissue to Research. Dictionary of Key Terms. What's a patient registry and why is one needed? How does a joining a patient registry assist me and my fellow patients? How do I join? The Registry will launch mid-September, 2016. At that time, we will post the survey homepage, where you can register and take the survey. To join the discussion forums. Fibrolamell...

4

Web Resources | Fibrolamellar Registry

https://www.fibroregistry.org/web-resources

Skip to main content. A Source of Hope and Action For Patients and Families Fighting Fibrolamellar. Intro To The Literature. Volunteer Your Time or Tissue to Research. Dictionary of Key Terms. Fibrolamellar Communities, Fund-Raising Efforts and Bloggers. 1 The Facebook group Fibrolamellars of the World Unite! Is the place to meet fellow patients and engage in a wide range of discussions. To join this closed group, email one of the administrators. 3 The Fibrolamellar Cancer Foundation.

5

FAQ | Fibrolamellar Registry

https://www.fibroregistry.org/faq

Skip to main content. A Source of Hope and Action For Patients and Families Fighting Fibrolamellar. Intro To The Literature. Volunteer Your Time or Tissue to Research. Dictionary of Key Terms. Frequently Asked Questions (FAQ). FAQ about the Fibrolamellar Registry. FAQ about Fibrolamellar Hepatocellular Carcinoma. Fibrolamellar Registry, Inc., a registered 501(c)(3) tax-exempt charity. This site does not provide medical advice, diagnosis or treatment.

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What is Fibrolamellar? What is The Max Burdette Fibrolamellar Cancer Research Foundation?

http://www.maxburdette.com/threecolumn.html

Casi Pharmaceuticals is sponsoring a Phase 2 clinical trial which is currently recruiting patients. The purpose of the study is to determine whether once-daily dosing with ENMD-2076 will be a safe and effective treatment in patients with fibrolamellar. Study of Enzalutamide With and Without Sorafenib. Partial Liver Transplantation Followed by Bone Marrow Transplantation for Hepatocellular Carcinoma. Liver Cancer - Mayo Clinic. From immunotherapy to gene therapy. For those who've passed. Send a check: 905...

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Max's story. The Max Burdette Story

http://www.maxburdette.com/onecolumn.html

Dr Scott listened to Max’s symptoms and felt his abdomen and right side. He didn’t feel anything unusual, but he sent Max for an ultrasound because he didn’t like where the pain was located and he thought it would quickly rule out anything bad. The ultrasound wasn’t very helpful though, because something appeared to be blocking Max’s pancreas. So he was sent for more tests: a CT scan and an MRI. In Stowe, VT. Back to home page. Links about Livers, Cancer, plus other diseases. Intl Liver Cancer Assoc.

patientinform.org patientinform.org

patientINFORM - Participating Health Organizations

http://www.patientinform.org/health-organizations

INFORM is a collaborative effort by trusted and experienced patient health organizations, medical societies, health information professionals, and scholarly and medical publishers. The participating voluntary health organizations create online material to help patients or their caregivers more fully understand the implications of research and provide links to the full text of research articles they’ve selected from participating journals. The publishers allow readers following links from. The American Co...

maxburdette.com maxburdette.com

Comments about Max. The Max Burdette Memorial

http://maxburdette.com/comment.html

Share your memories of Max. Please enter a memory, a little story, or just post a winking emoticon in memory of Max. Thank you. Back to home page. Links about Livers, Cancer, plus other diseases. Intl Liver Cancer Assoc. Seek II Destroy Cancer. Living with rare diseases. Liver cancer at St. Jude. Please join the fight. Learn about fibrolamellar .

maxburdette.com maxburdette.com

The motorcycle saga and some pictures that still make us smile. The Max Burdette Memorial

http://www.maxburdette.com/twocolumn1.html

The Max Burdette Fibrolamellar Cancer Research foundation. The motorcycle saga, continued. The safety course lasted an entire weekend and three guesses who was the best student in the class? Max took to bikes like he’d been riding them his entire life. Alec wasn’t too bad either. I was the one who was afraid that I wouldn’t graduate. Go anywhere at 15. Off to biker's night. The biker school brothers. We even rode our bikes once or twice twenty plus miles from our house to St. Jude. So these are all metri...

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Fibrolamellar Registry | A Source of Hope & Action For Patients & Families Fighting Fibrolamellar

Skip to main content. A Source of Hope and Action For Patients and Families Fighting Fibrolamellar. Intro To The Literature. Volunteer Your Time or Tissue to Research. Dictionary of Key Terms. Http:/ www.fibroregistry.org/survey. Http:/ www.fibroregistry.org/faq-fibrolamellar. Http:/ www.fibroregistry.org/survey. Http:/ www.fibroregistry.org/fibrolamellar-tissue-bank. Http:/ www.fibroregistry.org/donate. Join us on Facebook. To see and learn even more!

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