FIGHTFORJESSICA.COM

Fight For Jessica!

Her name is Jessica Leoni. She will be 15 this July. Jessica has the devastating neurological condition known as Niemann-Pick Type C (NP-C) disease. Her family and friends have joined together to fight for Jessica, and you are invited to join them. View regular updates on how Jessica is doing,. Or send a special note to Jessica and her family by clicking on. The Caring Bridges Website. Jessica and the Leoni's have an amazing opportunity to get a wheelchair accessible van from Mobility Van Sales! See the ...

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Fight For Jessica! | fightforjessica.com Reviews

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Her name is Jessica Leoni. She will be 15 this July. Jessica has the devastating neurological condition known as Niemann-Pick Type C (NP-C) disease. Her family and friends have joined together to fight for Jessica, and you are invited to join them. View regular updates on how Jessica is doing,. Or send a special note to Jessica and her family by clicking on. The Caring Bridges Website. Jessica and the Leoni's have an amazing opportunity to get a wheelchair accessible van from Mobility Van Sales! See the ...

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Fight For Jessica! | fightforjessica.com Reviews

https://fightforjessica.com

Her name is Jessica Leoni. She will be 15 this July. Jessica has the devastating neurological condition known as Niemann-Pick Type C (NP-C) disease. Her family and friends have joined together to fight for Jessica, and you are invited to join them. View regular updates on how Jessica is doing,. Or send a special note to Jessica and her family by clicking on. The Caring Bridges Website. Jessica and the Leoni's have an amazing opportunity to get a wheelchair accessible van from Mobility Van Sales! See the ...

INTERNAL PAGES

fightforjessica.com

1

Christa: Jane Erikson's Article

http://www.fightforjessica.com/christa.htm

Parseghians mourn death of Christa, 10. Christa Parseghian died from rare genetic disease. The Parseghian family of Tucson is mourning the death of 10-year-old Christa, who died Tuesday night from a rare genetic disease that killed her brother Michael in March 1997, just days before his 10th birthday. Called Niemann-Pick Type C disease, it afflicts fewer than 600 children nationwide. Dr Mary Cochran, a pediatrician and family friend, described Cindy Parseghian, a certified public accountant, and Mike Par...

2

Christa: Pauline Arrillaga's Article

http://www.fightforjessica.com/christa_ap.htm

A Lesson in Dying. In their children's deaths, one family learns a lesson in living. TUCSON, Ariz. (AP) On the wall of Cindy Parseghian's office hangs a giant bulletin board, a tribute to four children from a mother who once wasn't sure she wanted kids. There are photos of Michael, Christa and Marcia in their karate uniforms, Ara at a high school dance. Greeting cards filled with quotes about faith and will, a napkin with a scribbled message: "Love U More.". The year 2001 brought so much heartache to so ...

3

Niemann-Pick Type C (NP-C)

http://www.fightforjessica.com/niemann.htm

About Niemann-Pick Type C:. This disorder causes progressive deterioration of the central nervous system due to the body's inability to metabolize cholesterol. Consequently, large amount of cholesterol accumulate within the liver, spleen, and brain. This metabolic disorder leads to a series of neurological problems. It has been termed as a childhood form of Alzheimer's. Children with this disorder rarely live into their teenage years. Currently, there is no treatment for this disease. Please visit these ...

4

Whats New?

http://www.fightforjessica.com/whatsnew.htm

149; Jessica featured on CNN:. A Photo Journalist from CNN has produced a feature of Jessica. (we will add the link as soon as we have it). 149; See Regular Updates on Jessica:. Visit the CaringBridges website for updates on Jessica's condition or to send a special note to Jessica and her family. Take me to CaringBridges.org. 149; USA Today. Published an article on the Leoni Family in the May 1, 2006 edition! 149; Spiritual Convergence:. 149; (Below) Articles. About the Fight for Jessica. 149;Jessica has...

5

Jessica’s Home Page

http://www.fightforjessica.com/home.htm

On July 6, Jessica turned 13 years old. About twelve and a half years ago, she was diagnosed with a rare and deadly disease, Niemann-Pick Type C. It is a genetic condition that affects every cell in the body. So much is unknown about this disease. All our family knows for sure is that we must do something to help our Jessica. So many people have assured us that Jessica is in their prayers. We know they are helping. The Jessica Leoni Trust. Los Angeles, CA 90083-0744. Please find it in your heart to join ...

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niemannpick.nd.edu

The Children's Stories // Ara Parseghian Medical Research Fund // University of Notre Dame

http://niemannpick.nd.edu/the-childrens-stories

University of Notre Dame. Ara Parseghian Medical Research Fund. A Legacy of Hope. The following are the stories of the children and their families struggling against Niemann-Pick Type C. Will you help join the fight? When Ty was diagnosed with Niemann-Pick Type C, we were like a deer in headlights wanting to run but where to and why. Then my daughters friends stated, Let’s do something. This disorder cant keep us down. Visit Tys Site. On our worst days, she is so off-balance that she struggles to walk ac...

gabriellesgift.blogspot.com

Gabrielle's Gift: December 2007

http://gabriellesgift.blogspot.com/2007_12_01_archive.html

We are a non-profit organization created to raise public awareness. Provide financial help to families of children with this disease and support research for treatment. We have created an original bracelet design to raise awareness for the disease - click here. To learn more about how to donate and receive a bracelet. The creation of Gabrielle's Gift was inspired by Gabrielle LaVerde. Friday, December 14, 2007. If you'd like to receive a braclet, select a size and "Add to Cart". Adult Regular (7.5").

fightnpc.wordpress.com

Reversal Of Alzheimer’s Symptoms Within Minutes In Human Study | Fighting Niemann-Pick Type C disease - Childhood Alzheimer's

https://fightnpc.wordpress.com/2009/05/18/reversal-of-alzheimers-symptoms-within-minutes-in-human-study

Fighting Niemann-Pick Type C disease – Childhood Alzheimer’s. 8220;Once you choose hope, anything’s possible.” –Christopher Reeve. Laquo; Mo. Votes to Add 5 Diseases to Newborn Screenings. Back Home – Thank You Make-A-Wish Foundation! Reversal Of Alzheimer’s Symptoms Within Minutes In Human Study. May 18, 2009 by fightnpc. A good start: Reversal Of Alzheimer’s Symptoms Within Minutes In Human Study. Learn about Niemann-Pick Type C. Leave a Reply Cancel reply. Enter your comment here. Brisan & Parker.

fightnpc.wordpress.com

Back Home – Thank You Make-A-Wish Foundation! | Fighting Niemann-Pick Type C disease - Childhood Alzheimer's

https://fightnpc.wordpress.com/2009/06/18/back-home-thank-you-make-a-wish-foundation

Fighting Niemann-Pick Type C disease – Childhood Alzheimer’s. 8220;Once you choose hope, anything’s possible.” –Christopher Reeve. Laquo; Reversal Of Alzheimer’s Symptoms Within Minutes In Human Study. Meet Brisan, Parker, and Duncan (Wash DC Jan 09). Back Home – Thank You Make-A-Wish Foundation! June 18, 2009 by fightnpc. We made it back from Disney World all in one piece! We want to say Thank you to the Make-A-Wish Foundation for giving this special opportunity to us to make memories with our family!

fightnpc.wordpress.com

Check out the new BriParDun.com | Fighting Niemann-Pick Type C disease - Childhood Alzheimer's

https://fightnpc.wordpress.com/2010/04/15/check-out-the-new-bripardun-com

Fighting Niemann-Pick Type C disease – Childhood Alzheimer’s. 8220;Once you choose hope, anything’s possible.” –Christopher Reeve. Laquo; All future posts have moved to www.Blog.BriParDun.com. Check out the new BriParDun.com. April 15, 2010 by fightnpc. Check out the new site for Brisan and Parker Stults. This one was our first go around and you will see we have evolved! You can also view our non-profit Niemann-Pick Children’s Fund, Inc. Posted in Brisan and Parker. Niemann-Pick Type C Disease. An error ...

fightnpc.wordpress.com

fightnpc | Fighting Niemann-Pick Type C disease - Childhood Alzheimer's

https://fightnpc.wordpress.com/author/fightnpc

Fighting Niemann-Pick Type C disease – Childhood Alzheimer’s. 8220;Once you choose hope, anything’s possible.” –Christopher Reeve. Http:/ www.bripardun.com. I am a loving husband and a farther of three beautiful boys. My two oldest son's have a rare fatal neurological disease, "Niemann-Pick Type. Posts by Michael Stults:. April 15, 2010. Check out the new BriParDun.com. July 1, 2009. All future posts have moved to www.Blog.BriParDun.com. June 25, 2009. June 24, 2009. Pictures from Disney World. Trump Spe...

fightnpc.wordpress.com

April | 2010 | Fighting Niemann-Pick Type C disease - Childhood Alzheimer's

https://fightnpc.wordpress.com/2010/04

Fighting Niemann-Pick Type C disease – Childhood Alzheimer’s. 8220;Once you choose hope, anything’s possible.” –Christopher Reeve. Archive for April, 2010. Check out the new BriParDun.com. Posted in Brisan and Parker. Niemann-Pick Type C Disease. On April 15, 2010 Leave a Comment. Check out the new site for Brisan and Parker Stults. This one was our first go around and you will see we have evolved! You can also view our non-profit Niemann-Pick Children’s Fund, Inc. Read Full Post ». Addie and Cassi Hempel.

fightnpc.wordpress.com

Donate | Fighting Niemann-Pick Type C disease - Childhood Alzheimer's

https://fightnpc.wordpress.com/donate

Fighting Niemann-Pick Type C disease – Childhood Alzheimer’s. 8220;Once you choose hope, anything’s possible.” –Christopher Reeve. Niemann-Pick Children’s Fund, Inc. Is a Missouri Non-Profit Corporation 501[c]3. Tax ID# 80-0317862. It was created in honor of our two eldest sons; Brisan and Parker who are suffering from Niemann-Pick Type C disease (NPC) or “Childhood Alzheimer’s”. If you would like to make a kind donation you have a couple of options. Niemann-Pick Children’s Fund, Inc. Cathryn and Corynne...

fightnpc.wordpress.com

Fighting Niemann-Pick Type C disease - Childhood Alzheimer's | “Once you choose hope, anything’s possible.” –Christopher Reeve | Page 2

https://fightnpc.wordpress.com/page/2

Fighting Niemann-Pick Type C disease – Childhood Alzheimer’s. 8220;Once you choose hope, anything’s possible.” –Christopher Reeve. Mo Votes to Add 5 Diseases to Newborn Screenings. May 11, 2009 by fightnpc. This is huge because testing for Lysosomal Storage Disease’s (Niemann-Pick A,B, and C,Krabbe, Pompe, Gaucher, and Fabry) can help immensely for families and eliminate some struggles with “What is wrong with my child! Please visit the article here: Mo. Votes to Add 5 Diseases to Newborn Screenings.

golftreasures.net

Special Olympics Competition

http://www.golftreasures.net/new/special-olympics.html

Special Olympics 2016 Signup. Special Olympics 2010 Gallery. Golf Courses and Places to Stay. Putt My Way and Win! Special Olympics 2016 Signup. Special Olympics 2010 Gallery. Golf Courses and Places to Stay. Putt My Way and Win! Keoki Putters and USGA. Special Players.Special Results. 2008 East Hawaii Special Olympics Golf Tournament Results. TO GEORGE LEWITZKI WHO GAVE SO MUCH OF HIS TIME TO OUR ATHLETES SO THAT THEY COULD EXPERIENCE THE SPORT OF GOLF! Designed by ChoozitandUzit.com.

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Fight For Jessica!

Her name is Jessica Leoni. She will be 15 this July. Jessica has the devastating neurological condition known as Niemann-Pick Type C (NP-C) disease. Her family and friends have joined together to fight for Jessica, and you are invited to join them. View regular updates on how Jessica is doing,. Or send a special note to Jessica and her family by clicking on. The Caring Bridges Website. Jessica and the Leoni's have an amazing opportunity to get a wheelchair accessible van from Mobility Van Sales! See the ...

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