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The Fight Against Hypokalemic Periodic Paralysis

Thursday, August 13, 2015. Big News for HKPP Patients: FDA Approves dichlorphenamide (KEVEYIS) for treatment of Primary Periodic Paralyses. I am so behind on everything, I am just now getting to this news:. Earlier this week, the FDA approved carbonic anhydrase inhibitor dichlorphenamide (KEVEYIS) for the treatment of all forms of Primary (Familial) Periodic Paralysis. Thanks to the Muscular Dystrophy Association, other Periodic Paralysis researchers, and study participants who made this possible. 2012 ...

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The Fight Against Hypokalemic Periodic Paralysis | fightinghkpp.blogspot.com Reviews

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Thursday, August 13, 2015. Big News for HKPP Patients: FDA Approves dichlorphenamide (KEVEYIS) for treatment of Primary Periodic Paralyses. I am so behind on everything, I am just now getting to this news:. Earlier this week, the FDA approved carbonic anhydrase inhibitor dichlorphenamide (KEVEYIS) for the treatment of all forms of Primary (Familial) Periodic Paralysis. Thanks to the Muscular Dystrophy Association, other Periodic Paralysis researchers, and study participants who made this possible. 2012 ...

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The Fight Against Hypokalemic Periodic Paralysis | fightinghkpp.blogspot.com Reviews

https://fightinghkpp.blogspot.com

Thursday, August 13, 2015. Big News for HKPP Patients: FDA Approves dichlorphenamide (KEVEYIS) for treatment of Primary Periodic Paralyses. I am so behind on everything, I am just now getting to this news:. Earlier this week, the FDA approved carbonic anhydrase inhibitor dichlorphenamide (KEVEYIS) for the treatment of all forms of Primary (Familial) Periodic Paralysis. Thanks to the Muscular Dystrophy Association, other Periodic Paralysis researchers, and study participants who made this possible. 2012 ...

INTERNAL PAGES

fightinghkpp.blogspot.com

1

The Fight Against Hypokalemic Periodic Paralysis: June's Hospital Stay

http://www.fightinghkpp.blogspot.com/2014/11/junes-hospital-stay.html

Sunday, November 2, 2014. Just kidding. I'm practically a cartoon character, folks). The therapist said she loved talking to me, and she tried to get me transferred to her wing (she was in charge of the addicted, suicidal, anxious, violent patients of various ages.they were all lovely, by the way). However, I was discharged before that happened. I was a happy camper when I left (if interested, you can see how hard I hit the ground running upon my discharge on my other blog. Welcome and thanks for visiting.

2

The Fight Against Hypokalemic Periodic Paralysis: Another short sleep update

http://www.fightinghkpp.blogspot.com/2015/04/another-short-sleep-update.html

Tuesday, April 21, 2015. Another short sleep update. My experience with pressurized oxygen is going like this:. One thing I will also mention is that I had a paralytic episode last night and was having trouble breathing. I put on the cpap and it seemed to help a little. Take that info for what it's worth. MDA and Renal clinics were rescheduled to June 2nd. Edit: renal clinic was rescheduled again to June 10th). Edit: renal clinic was rescheduled yet again to late August). Welcome and thanks for visiting.

3

The Fight Against Hypokalemic Periodic Paralysis: CPAP

http://www.fightinghkpp.blogspot.com/2015/03/cpap.html

Wednesday, March 4, 2015. Really appreciate the folks who donated this equipment to me. I have no idea what I would have done otherwise. I'll give a review of my sleeping habits in a few weeks. Subscribe to: Post Comments (Atom). Welcome and thanks for visiting. I am a 38 year old female from. The United States Gulf Coast, and this is my battle with Familial Hypokalemic Periodic Paralysis. My Article (previously published by Yahoo! Now here on the blog). The Battle Against Periodic Paralysis.

4

The Fight Against Hypokalemic Periodic Paralysis: Updated Medication and Supplement List 11/01/14

http://www.fightinghkpp.blogspot.com/2014/11/updated-medication-and-supplement-list.html

Saturday, November 1, 2014. Updated Medication and Supplement List 11/01/14. Hello my friends,. I figure this would be a good time to update my medication and supplement list. I've decided to include all supplements including all PRN medications and the topical gel I use for muscle spasms (it works.I recommend). Each one is hyperlinked to more information. I'll fix it in the sidebar as well. 150mg 1 x daily. 50mg x 4 daily. 5mg 1 x daily. 25mg 1 x daily. M20 x 5 daily. 25mEq PRN up to 3 a day. I will tal...

5

The Fight Against Hypokalemic Periodic Paralysis: Reminder

http://www.fightinghkpp.blogspot.com/2014/10/just-reminder.html

Monday, October 20, 2014. Subscribe to: Post Comments (Atom). Welcome and thanks for visiting. I am a 38 year old female from. The United States Gulf Coast, and this is my battle with Familial Hypokalemic Periodic Paralysis. My Article (previously published by Yahoo! Now here on the blog). The Battle Against Periodic Paralysis. A Bottle of Lies. Local Clinic Update 10/20/14. The Battle Against Periodic Paralysis Article - Ne. A blog rant, humanity, and the state of medical ca. Fall MDA and Renal Clinics.

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periodicparalysis.blogspot.com

Periodic Paralysis - A Journey: Atypical Periodic Paralysis - Maybee Syndrome

http://periodicparalysis.blogspot.com/2014/06/atypical-periodic-paralysis-maybee.html

Periodic Paralysis - A Journey. My family has a rare variant of Hypokalemic Periodic Paralysis. It spans 6 known generations. Our variant is called Periodic Paralysis Plus. The mutation is currently unknown. Saturday, September 13, 2014. Atypical Periodic Paralysis - Maybee Syndrome. These are the features of Atypical Periodic Paralysis for my family. My family has been the the United States and Canada since the 1600's. My family tree is extensive which has allowed for many variants of the same disorder.

periodicparalysis.blogspot.com

Periodic Paralysis - A Journey: My True and Personal Story of Periodic Paralysis (why it sucks to be rare)

http://periodicparalysis.blogspot.com/2013/11/my-hkpp-story-at-least-beginning.html

Periodic Paralysis - A Journey. My family has a rare variant of Hypokalemic Periodic Paralysis. It spans 6 known generations. Our variant is called Periodic Paralysis Plus. The mutation is currently unknown. Thursday, April 21, 2016. My True and Personal Story of Periodic Paralysis (why it sucks to be rare). Rule 1: Choose your words carefully when visiting a doctor. After six month of counseling, my psychologist could find nothing wrong. He declared me mentally healthy and sent me on my way. Rule 2: Doc...

periodicparalysis.blogspot.com

Periodic Paralysis - A Journey: Hypokalemic Periodic Paralysis, GERD, Gastroparesis or POTS

http://periodicparalysis.blogspot.com/2012/04/hypokalemic-periodic-paralysis-and-gerd.html

Periodic Paralysis - A Journey. My family has a rare variant of Hypokalemic Periodic Paralysis. It spans 6 known generations. Our variant is called Periodic Paralysis Plus. The mutation is currently unknown. Thursday, October 09, 2014. Hypokalemic Periodic Paralysis, GERD, Gastroparesis or POTS. It is believed that this constellation of symptoms is related to a Hypokalemic Periodic Paralysis / Ehlers-Danlos Syndrome. And Treatment of gastroparesis. PPI-Related Hypomagnesemia: Putting it in Perspective.

periodicparalysis.blogspot.com

Periodic Paralysis - A Journey: Disability Services at Universities - Why they fail.

http://periodicparalysis.blogspot.com/2015/03/disability-services-at-universities-why.html

Periodic Paralysis - A Journey. My family has a rare variant of Hypokalemic Periodic Paralysis. It spans 6 known generations. Our variant is called Periodic Paralysis Plus. The mutation is currently unknown. Thursday, March 03, 2016. Disability Services at Universities - Why they fail. That is not an answer! Now I must call a number of different department heads. I spend hours on the phone trying to resolve these simple issues. Some of the issues have not been simple and have required daily phone...It is...

periodicparalysis.blogspot.com

Periodic Paralysis - A Journey: Doctors often misdiagnose zinc deficiency, unaware of impact of excess zinc

http://periodicparalysis.blogspot.com/2015/06/doctors-often-misdiagnose-zinc.html

Periodic Paralysis - A Journey. My family has a rare variant of Hypokalemic Periodic Paralysis. It spans 6 known generations. Our variant is called Periodic Paralysis Plus. The mutation is currently unknown. Monday, June 22, 2015. Doctors often misdiagnose zinc deficiency, unaware of impact of excess zinc. Quoted from Science Daily: June 19, 2015. Journal of Clinical Pathology. Too much zinc, taken in the form of dietary supplements, may disrupt copper uptake. In particular, they looked at the reasons fo...

ugottafriend.com

My Roller Coaster Life: November 2014

http://www.ugottafriend.com/2014_11_01_archive.html

Tuesday, November 25, 2014. If I could only have one purpose on this Earth, one life goal, one daily motto, one publication, one website banner, one profile picture, or one piece of advice to anyone, everywhere, it is this. I may not have much or be much, but may God help me, in spite of myself, to give it my all. Sunday, November 23, 2014. I would have been willing to see a sleep psychiatrist again, but I'm happy that he ended up being a sleep pulmonologist instead. With my breathing issues and musc...

periodicparalysis.blogspot.com

Periodic Paralysis - A Journey: Better Understanding of Dysmorphism in Andersen-Tawil Syndrome

http://periodicparalysis.blogspot.com/2014/09/better-understanding-of-dysmorphism-in.html

Periodic Paralysis - A Journey. My family has a rare variant of Hypokalemic Periodic Paralysis. It spans 6 known generations. Our variant is called Periodic Paralysis Plus. The mutation is currently unknown. Saturday, September 13, 2014. Better Understanding of Dysmorphism in Andersen-Tawil Syndrome. The inward rectifier potassium channel Kir2.1 is required for osteoblastogenesis. 2014 Sep 8 pg. Subscribe to: Post Comments (Atom). Symptoms of Hypokalemic Periodic Paralysis (Plus). Links related to HKPP.

periodicparalysis.blogspot.com

Periodic Paralysis - A Journey: Your Cell Phone Carrier Matters When You Have a Chronic Illness.

http://periodicparalysis.blogspot.com/2015/06/your-mobile-provider-matters-when-you.html

Periodic Paralysis - A Journey. My family has a rare variant of Hypokalemic Periodic Paralysis. It spans 6 known generations. Our variant is called Periodic Paralysis Plus. The mutation is currently unknown. Tuesday, June 23, 2015. Your Cell Phone Carrier Matters When You Have a Chronic Illness. Fastest Mobile Networks - PC magazine. Subscribe to: Post Comments (Atom). Symptoms of Hypokalemic Periodic Paralysis (Plus). Huffington Post article on Periodic Paralysis. Links related to HKPP. HKPP Blog: The F...

periodicparalysis.blogspot.com

Periodic Paralysis - A Journey: Symptoms of Hypokalemic Periodic Paralysis (Plus)

http://periodicparalysis.blogspot.com/p/symptoms-of-hypokalemic-periodic.html

Periodic Paralysis - A Journey. My family has a rare variant of Hypokalemic Periodic Paralysis. It spans 6 known generations. Our variant is called Periodic Paralysis Plus. The mutation is currently unknown. Symptoms of Hypokalemic Periodic Paralysis (Plus). Weakness can affect skeletal, cardiac, smooth, gastrointestinal, respiratory, facial and/or eye muscles (including the muscles of the iris that control entry of light). These are generalized or reported symptoms. BIRTH TO AGE 10:. AGE 10 TO 21:.

periodicparalysis.blogspot.com

Periodic Paralysis - A Journey: Huffington Post article on Periodic Paralysis

http://periodicparalysis.blogspot.com/p/huffington-post-article-on-periodic.html

Periodic Paralysis - A Journey. My family has a rare variant of Hypokalemic Periodic Paralysis. It spans 6 known generations. Our variant is called Periodic Paralysis Plus. The mutation is currently unknown. Huffington Post article on Periodic Paralysis. Http:/ www.huffingtonpost.com/david-katz-md/individualized-care b 941220.html. Alas, sometimes it seems we are. My passions on this topic have recently been stirred by my ongoing correspondence with Alexia Norton-Jones. Periodic paralysis is an example o...

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The Fight Against Hypokalemic Periodic Paralysis

Thursday, August 13, 2015. Big News for HKPP Patients: FDA Approves dichlorphenamide (KEVEYIS) for treatment of Primary Periodic Paralyses. I am so behind on everything, I am just now getting to this news:. Earlier this week, the FDA approved carbonic anhydrase inhibitor dichlorphenamide (KEVEYIS) for the treatment of all forms of Primary (Familial) Periodic Paralysis. Thanks to the Muscular Dystrophy Association, other Periodic Paralysis researchers, and study participants who made this possible. 2012 ...

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Tim's fight...inspiring and bringing HOPE | My fight against Hodgkins Lymphoma

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