FIGHTSMA.ORG
FightSMASpinal muscular atrophy organization raising public awareness and funds for research. Features SMA fact sheets, research updates, blog and more.
http://www.fightsma.org/
Spinal muscular atrophy organization raising public awareness and funds for research. Features SMA fact sheets, research updates, blog and more.
http://www.fightsma.org/
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FightSMA | fightsma.org Reviews
https://fightsma.org
Spinal muscular atrophy organization raising public awareness and funds for research. Features SMA fact sheets, research updates, blog and more.
fightsma.org
Store | FightSMA
http://fightsma.org/store
Be an Original. Be a Fighter. The Original Fighter Tee from FightSMA is a fun and stylish way to wear Your FIGHT. This ultra soft tri-blend tee comes in every size! A New Classic. The FightSMA Rally Tee is now available! Made with 100% super-smooth, fineknit, ultrasoft soft cotton, it's a must have! Register for our e-newsletter. Spinal Muscular Atrophy News.
Race to a Cure in August, with Graham Rahal, Steak 'n Shake, and FightSMA | FightSMA
http://fightsma.org/august-2015-race-rahal-steak-shake
Spinal Muscular Atrophy News. Latest News and Press Releases. Race to a Cure in August, with Graham Rahal, Steak 'n Shake, and FightSMA. IndyCar Driver Graham Rahal with Tori, daughter. Of FightSMA Canada President Tracy Lacey. It might be the dog days of summer, but August is going to feature some of the coolest ways to support FightSMA in 2015. Dr Brian Kaspar, a longtime friend of FightSMA and well known SMA researcher, is the principal investigator in the Center for Gene Therapy at The Research Insti...
FightSMA
http://fightsma.org/home
UPDATED FOR AUGUST 2016: SMA Clinical Trials News. Promising New SMA Drug from Lorson Labs. AveXis Treatment for SMA Receives FDA Designation. SMA: One Family's Story [VIDEO]. Video: Top SMA Researchers Discuss Clinical Trials. Click here to watch. Register for our e-newsletter. Spinal Muscular Atrophy News.
Resources | FightSMA
http://fightsma.org/resources
FightSMA equips and empowers families to fight back and find answers. Below are just a few essential tools explaining Spinal Muscular Atrophy, its causes, effects, and our hopes for treatments and a cure just as quickly as our scientists can discover them. Get the basic facts of SMA in an understandable way. A great tool for media, presentations, or fundraisers. Register for our e-newsletter. Spinal Muscular Atrophy News.
Donate | FightSMA
http://fightsma.org/join-fight/donate
Thank you for your donation to FightSMA. Register for our e-newsletter. Spinal Muscular Atrophy News.
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Avery's Bucket List: Dr. Kaspar's Clinical Trial is Now Open for Enrollment!
http://averycan.blogspot.com/2014/04/dr-kaspars-clinical-trial-is-now-open.html
Imagine youve been diagnosed with an incurable genetic disease and you are told you will not only lose your ability to walk and move your arms, but you will die between now and the next 18 months. What would you do? My name is Avery Lynn Canahuati, Im almost 5 months old, and this has become my reality. But before I die, theres a few things Id like to accomplish.this is my bucket list and my story. SHARE IT and HELP ME TELL THE WORLD ABOUT SMA! Friday, April 25, 2014. To learn more about SMA or to make a...
Ella's Corner: Ella's Hip Surgery Update (7-10-15)
http://ellas-corner.blogspot.com/2015/07/ellas-hip-surgery-update-7-10-15.html
Friday, July 10, 2015. Ella's Hip Surgery Update (7-10-15). She was wheeled away to surgery in silence. She didn't bat an eyelash as they took her away. Mom and Dad, on the other hand, fought back the tears and tried to quell the butterflies in their stomachs. How did her respiratory system hold up? Was extubation successful or was she still intubated? How was our Squishy? We found a stuffed giraffe that we knew Ella would love and headed back up to the OR floor. Shortly after, Ella's surgeon brought...
Avery's Bucket List: September 2012
http://averycan.blogspot.com/2012_09_01_archive.html
Imagine youve been diagnosed with an incurable genetic disease and you are told you will not only lose your ability to walk and move your arms, but you will die between now and the next 18 months. What would you do? My name is Avery Lynn Canahuati, Im almost 5 months old, and this has become my reality. But before I die, theres a few things Id like to accomplish.this is my bucket list and my story. SHARE IT and HELP ME TELL THE WORLD ABOUT SMA! Friday, September 21, 2012. INPUT YOUR STATE HERE). This bil...
Two birdies and a B.: December 2014
http://twobirdiesandab.blogspot.com/2014_12_01_archive.html
Available for Product and Book Reviews. Sunday, December 21, 2014. I really enjoy a good tea. Teaberry's Tea Room in Flemington, New Jersey takes tea to a whole 'nother level. This lovely Victoria home is decorated beautifully for all the seasons. Christmas is especially beautiful. The sandwiches are divine. The desserts had to be packed up and brought home to be enjoyed another day! Wonderful assortment of teas. I love the chocolate chai. My view as I was sipping my tea and gazing out the window. For me...
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http://autumnlady.blogspot.com/2007_08_01_archive.html
Year Of The Dragon. Layout by up in lights. Take a look at this and other blog designs @ Blogskins.com. Tuesday, August 21, 2007. MeatBall penned this at 10:19 PM. Year 3 Term April 2007 Week 18 (Study Week). Monday 13.08.07. Had Muscle Ache since Saturday (11/8) Due to the Napfa. Tuesday 14.08.07. Received a Shocking Msg from Kim. Samad got admitted to hospital for Pneumothorax. Who went with me: MeL, Mei Mei, Yali, Yuwen, Wendy, Kim, Karyin and Xiuyi. Wednesday and Thursday 15-16.08.07. MeatBall penned...
Two birdies and a B.: Awards
http://twobirdiesandab.blogspot.com/p/awards.html
Available for Product and Book Reviews. September 5, 2013 at 12:54 PM. I stumbled upon your blog because I searched for a photo of struffoli that I could share with my co-worker. I wanted you to know that I stayed for a while. I am not a blogger but after experiencing all of your interesting stories and photos I may need to try it out. You are so cute! Thank you for sharing with us Barbara! 3 Smooches from Sheryl in N.Ca. Subscribe to: Posts (Atom). For this is God’s will for you. Fave Pin on Pinterest.
The Hobbs Family News: January 2010
http://hobbsfamilynews.blogspot.com/2010_01_01_archive.html
The Hobbs Family News. Sunday, January 31, 2010. My heart is very heavy and I am thinking of them continually. Anyone who would like to read more and check in on them can go to Ashley's blog. Prayers would be much appreciated. Please pray for God to bring all of them direction, strength, comfort, and peace, to protect their faith, and also protect and guide Hodges' sweet sister Kensington, who is 3. Is available, as well as additional info (including help contacting representatives) for fighting SMA.
JJ's Journey - Living with Spinal Muscular Atrophy: Jenna dancing with Daddy (Living with Spinal Muscular Atrophy)
http://www.jjsjourney.com/2011/12/jenna-dancing-with-daddy-living-with.html
JJ's Journey - Living with Spinal Muscular Atrophy. Welcome to JJ's Journey! A day in the life of Jenna! Jenna has Spinal Muscular Atrophy (SMA) Type 1. SMA is severe neuromuscluar disorder that effects the muscles that help her move, eat, and breathe. Currently there is no treatment or cure. For more information on SMA,. Friday, December 16, 2011. Jenna dancing with Daddy (Living with Spinal Muscular Atrophy). Jenna dancing with her Daddy to Beauty and The Beast. Subscribe to: Post Comments (Atom).
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FightSMA Canada - Spinal Muscular Atrophy
Diagnosis & Tests. Treatment & Symptoms. Fight Night Against SMA. Photo Gallery – The Honda Toronto Indy. Latest Canadian Update from Biogen. The following release was provided by Biogen. Join us in the fight for a cure! Sponsor FightSMA Canada or make a contribution. Spinal Muscular Atrophy (SMA) refers to a group of diseases which affect the motor neurons of the spinal cord and brain stem. SMA kills more babies than any other genetic disease. Make a Contribution to SMA Research.
FightSMA
Race with Rahal and Raise Money to Fight SMA. FightSMA Announces $66K Grant to University of Missouri Lab. Video: Researchers Talk About FightSMA. Register for our e-newsletter. Spinal Muscular Atrophy News.
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