onefpiesday.blogspot.com
One FPIES Day: New allergist
http://onefpiesday.blogspot.com/2013/09/new-allergist.html
Monday, September 9, 2013. Today, we will be checking out a new, LOCAL allergist. I have heard that others have had positive experiences with him and we are in need of an allergist.or any doctor at all to help guide us in the right direction. So, cross your fingers (and toes)! All 3 of the diagnoses are so rare.".and then a few minutes later, basically said "well, good luck! And it was a pass! Does it mean she has a sore throat? Subscribe to: Post Comments (Atom). FPIES United Family Fund. FPIES is a sev...
onefpiesday.blogspot.com
One FPIES Day: My life as a mother of a child with FPIES and EGID
http://onefpiesday.blogspot.com/2012/02/what-does-it-take-to-be-parent-of-child.html
Tuesday, February 21, 2012. My life as a mother of a child with FPIES and EGID. Written by a mom of an FPIES child:. My son has a. Severe protein allergy to milk and soy. This is not the same as being lactose intolerant. This is not the same as colic. This is a severe allergy that has almost taken the life of my child twice. This allergy is time consuming, life consuming, overwhelming and frustrating. People seem to think it is as easy as just not giving him milk or soy, but it is not. It is constant rec...
onefpiesday.blogspot.com
One FPIES Day: BIRTHDAY CAKE!!!
http://onefpiesday.blogspot.com/2012/04/birthday-cake.html
Sunday, April 1, 2012. Brynn had some issues the last couple months. We weren't sure what was causing the issues, so we went back down to 4-5 foods to get her back to 100% baseline. Once we established that, we slowly added her other foods back in, making sure they were still safe. Once THAT was taken care of, it was time for her 2nd birthday party! I was able to find a recipe that *sort of* worked. It took a few tries, but I successfully made her a birthday cake! She LOVED it.and it was good! FPIES is a...
onefpiesday.blogspot.com
One FPIES Day: December 2011
http://onefpiesday.blogspot.com/2011_12_01_archive.html
Tuesday, December 20, 2011. So much to process. Http:/ www.apfed.org/drupal/drupal/what are egids. Http:/ apfed.org/video1/video1.htm. Video of kids with eosinophilic disease. The scope also showed signs of celiac disease, however, our GI doctor is stumped, considering she has never really had gluten before. She also has low lactase (lactose intolerant). Ugh. Today, we spent 3 hours (? Despite all of that, we now have a PLAN in place. We are holding off on all food trials for at least a month or so t...
onefpiesday.blogspot.com
One FPIES Day: August 2012
http://onefpiesday.blogspot.com/2012_08_01_archive.html
Tuesday, August 21, 2012. WOW, I can't believe it has been so long since I've updated! Summer has been crazy busy I guess! B has been doing pretty well. We've had a couple more fails, but we have been able to add grapes and wheat to her diet! She has a few different crackers she can have now and even some store-bought cookies! On a positive note, she is growing like a weed! Quite frequently. Haha! Subscribe to: Posts (Atom). Raise Awareness and Raise Funds for FPIES Research! FPIES United Family Fund.
onefpiesday.blogspot.com
One FPIES Day: Mast Cell Activation
http://onefpiesday.blogspot.com/2014/04/mast-cell-activation.html
Friday, April 4, 2014. Well, I am long overdue on this AGAIN. Life just always gets in the way. I will bring you up to speed though. It's kind of like the chicken and the egg, what came first? We are doing a daily dose of Zyrtec, and Benedryl as needed. Brynn had her 4th birthday in March. I can't believe my BABY is FOUR. I have no idea where all the time has gone! She enjoyed her Sophia party and her purple princess cake and, of course, all the gifts! Subscribe to: Post Comments (Atom). Berta's journey ...
onefpiesday.blogspot.com
One FPIES Day: July 2011
http://onefpiesday.blogspot.com/2011_07_01_archive.html
Saturday, July 30, 2011. Ugh Started calling the doctors again and FINALLY got one of them to help me do SOMETHING. They ordered some stool samples, so we got those taken care of Friday. They are first testing it for bacteria and infection.not want I wanted tested, but I guess you have to start somewhere, right? I'm really hoping that once those tests come back negative (I'm pretty darn sure this is FPIES related and not a bug), they will order a new set of tests to figure out what is going on. That nigh...
onefpiesday.blogspot.com
One FPIES Day: February 2012
http://onefpiesday.blogspot.com/2012_02_01_archive.html
Tuesday, February 21, 2012. My life as a mother of a child with FPIES and EGID. Written by a mom of an FPIES child:. My son has a. Severe protein allergy to milk and soy. This is not the same as being lactose intolerant. This is not the same as colic. This is a severe allergy that has almost taken the life of my child twice. This allergy is time consuming, life consuming, overwhelming and frustrating. People seem to think it is as easy as just not giving him milk or soy, but it is not. It is constant rec...
onefpiesday.blogspot.com
One FPIES Day: May 2013
http://onefpiesday.blogspot.com/2013_05_01_archive.html
Thursday, May 23, 2013. Life has been so busy; it is hard to keep up with this thing! Brynn is doing fabulous right now. She is up to 16 foods now, plus some baking ingredients as well! She had her 3 year well-check about a month ago and she is growing like a weed- 70th percentile for height and 35th percentile for weight. =) We are currently working on just expanding on her already safe foods. For example: she can have corn and oats, so we found Marshmallow Matey's! We did get her to try kale after awhi...
onefpiesday.blogspot.com
One FPIES Day: September 2011
http://onefpiesday.blogspot.com/2011_09_01_archive.html
Thursday, September 22, 2011. It's a big, big (coconutty) world! I think I can officially say that Brynn has passed the coconut trial! I am beyond excited, this opens up quite a few more doors for her. I think we now have a great list of ingredients to do some baking.now to find the time to do it. =) Coconut flour, coconut vineagar, coconut manna, coconut aminos, coconut oil, coconut sugar, coconut nectar.AHHH so many choices! We already have the coconut ice cream (Brynn LOVES it! Check out these products.