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Fra-gee-lay X

About our life journey with Fragile X, PDD-NOS, Epilepsy, family and friends, love and laughter, and all that in-between stuff...

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Fra-gee-lay X | frageelayx.blogspot.com Reviews
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About our life journey with Fragile X, PDD-NOS, Epilepsy, family and friends, love and laughter, and all that in-between stuff...
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Fra-gee-lay X | frageelayx.blogspot.com Reviews

https://frageelayx.blogspot.com

About our life journey with Fragile X, PDD-NOS, Epilepsy, family and friends, love and laughter, and all that in-between stuff...

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1

Fra-gee-lay X: Sad face... ; - (

http://frageelayx.blogspot.com/2015/08/sad-face.html

What is Fragile X? Tuesday, August 4, 2015. Sad face. ; - (. You know. the one that pops up when you are looking for a video on YouTube and it doesn’t play on the device you’re watching from, or the video has been removed. We call that sad face in our house, Jackson understands that phrase. Sad face. ; - (. Sara and so many of our Fragile X families shared facts each day during the month of July on FaceBook, Twitter, Instagram.but I missed the mark this year. Sad face. ; - (. Now camp is over? 8221; Then...

2

Fra-gee-lay X: Resources

http://frageelayx.blogspot.com/p/resources.html

What is Fragile X? Your Genes Your Health:. Http:/ www.ygyh.org/. Http:/ www.fraxa.org/. The National Fragile X Foundation:. Http:/ www.fragilex.org/. Http:/ www.genetests.org/. A publicly funded medical genetics information resource developed for physicians, other healthcare providers, and researchers, available at no cost to all interested persons. Select “GeneReviews” do a search on FMR1 or FRAGILE X to pull up information on Fragile X. Http:/ www.fxtas.org/. Dr Marcia Braden (behavioral expert):.

3

Fra-gee-lay X: May 2013

http://frageelayx.blogspot.com/2013_05_01_archive.html

What is Fragile X? Tuesday, May 21, 2013. Where have I been …. My little carver helper. The month of Thanks! I traveled back to back weekends for work so Sara had to take care of all our family stuff solo. We still have our other house on market and there was a lot Sara had to do with that house. She also organized a panting parting at our new house and half our basement is finished. Yay! Knows a couple letters by sight. I am so proud of him. Maple glazed smoked Turkey. To be continued…. It's who I am.

4

Fra-gee-lay X: May 2014

http://frageelayx.blogspot.com/2014_05_01_archive.html

What is Fragile X? Monday, May 5, 2014. Disclaimer: This post has been sitting on the editors table awaiting some pictures. I am not sure if I will ever have time to sort through the pictures before the year goes by and this post is lost. I want to get everyone caught up on the Hamilton household so I can get back to post more regularly. So here is December.without pictures.* *. I had physical therapy for the month of November and it was wrapping up in the beginning of December. Not to mention Jackson&#8...

5

Fra-gee-lay X: February 2014

http://frageelayx.blogspot.com/2014_02_01_archive.html

What is Fragile X? Wednesday, February 5, 2014. Light at the end of the tunnel part 2. Of July at my parents’ house, it is a tradition to watch Poppy blow up stuff. Sara worked a BBQ cook-off fundraiser at the beginning of the day, while Jackson and I spent the day in my parents’ pool. Usually the head index in the STL is 115 this time of year, but this summer has been so mild with temps dropping down to the upper 60’s overnight. I however stayed and watched the big display. It has been a few years since...

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Resources — Fragile X Association of Utah

http://fragilexutah.com/resources

What is Fragile X Syndrome? Fragile X Syndrome (FXS), the most common cause of inherited mental impairment. This impairment can range from learning disabilities to more severe cognitive or intellectual disabilities. FXS is the most common known cause of autism or "autistic-like" behaviors. Symptoms also can include characteristic physical and behavioral features and delays in speech and language development. National Fragile X Foundation. Centers for Disease Control and Prevention. UC Davis MIND Institute.

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The Fragile X Files: Why The Wiggles Suck Now

http://www.fragilexfiles.com/2013/05/why-wiggles-suck-now.html

LetsTalk About It: Special Needs. About The Fragile X Files. What is Fragile X, you ask? Fragile X Writers Series. Saturday, May 11, 2013. Why The Wiggles Suck Now. Twice I haven't read Anthony's book yet, but it's on my list. (What? You didn't know Anthony had written a book? Then you aren't as into the Wiggles as we are.). 65279;At the end of last year, Greg, Murray and Jeff retired, which was probably a good thing because two summers ago when we saw them in concert. But not these guys. 65279;&#6527...

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The Fragile X Files: In the News...

http://www.fragilexfiles.com/2015/07/in-news.html

LetsTalk About It: Special Needs. About The Fragile X Files. What is Fragile X, you ask? Fragile X Writers Series. Wednesday, July 29, 2015. As a student of human behavior, I find myself curious about the top news story today, the dentist in Bloomington who hunted and killed a lion in Zimbabwe for sport. This very similar story, about an eight year old girl lured up to an apartment by a young boy she knew, killed, and thrown into a dumpster. Don't even suggest I am unfeeling toward animals. I think i...

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The Fragile X Files: The ABCs of Fragile X

http://www.fragilexfiles.com/2013/07/the-abcs-of-fragile-x.html

LetsTalk About It: Special Needs. About The Fragile X Files. What is Fragile X, you ask? Fragile X Writers Series. Monday, July 22, 2013. The ABCs of Fragile X. Happy Fragile X Awareness Day! Learning about Fragile X Syndrome is as easy as ABC! Is a hallmark symptom of Fragile X Syndrome, whether you have the full mutation or the premutation. Anxiety, unfortunately, often commands and controls FXers lives. Is a calming method many FXers respond to positively. An occupational therapist can show you th...

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The Fragile X Files: Let'sTalk About It: Special Needs

http://www.fragilexfiles.com/p/special-needs.html

LetsTalk About It: Special Needs. About The Fragile X Files. What is Fragile X, you ask? Fragile X Writers Series. Let'sTalk About It: Special Needs. If you have arrived here because you have a child or family member or good friend with special needs, welcome! I created The Fragile X Files for a couple of reasons:. I came across your blog as I was researching Fragile X as a family member may have it. He is an adult but has never been tested (we live in India, where the awareness is rather delayed! Textbo...

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The Fragile X Files: About The Fragile X Files

http://www.fragilexfiles.com/p/about-us.html

LetsTalk About It: Special Needs. About The Fragile X Files. What is Fragile X, you ask? Fragile X Writers Series. About The Fragile X Files. The Fragile X Files is a blog, webpage, and someday-soon-to-be book about Fragile X Syndrome, autism, the mysterious, confusing, and inspiring special needs world, and how it all ties together in our identical twin boys, Zack and AJ. On their first birthday. It's written by their mom and biggest fan, Bonnie (well alright, I share biggest fan status with their dad).

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The Fragile X Files: Fragile X Writers Series: "When all 3 of my children have Fragile X Syndrome..."

http://www.fragilexfiles.com/2013/01/fragile-x-writers-series-when-all-3-of.html

LetsTalk About It: Special Needs. About The Fragile X Files. What is Fragile X, you ask? Fragile X Writers Series. Friday, January 04, 2013. Fragile X Writers Series: "When all 3 of my children have Fragile X Syndrome.". I'm a little behind today - trying to get back into the swing of all our routines has been tough! I know it has been challenging for today's Fragile X guest writer, too - Rachael Gibson, of the darling blog. By the way, visit her blog, and if you read no other posts,. Brother fighting EV...

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The Fragile X Files: Same Pose - Three Years Later

http://www.fragilexfiles.com/2015/06/same-pose-three-years-later.html

LetsTalk About It: Special Needs. About The Fragile X Files. What is Fragile X, you ask? Fragile X Writers Series. Thursday, June 25, 2015. Same Pose - Three Years Later. Subscribe to: Post Comments (Atom). All I really need to know. Anxiety in parents of children with special needs. Autism portrayed in TV shows. Cabin Fever in Minnesota. Childcare for special needs children. CNN Hero of 2011. Cost of special education. Everything I need to know. Falling asleep at school. First day of school. Metadoxine ...

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The Fragile X Files: Quotes

http://www.fragilexfiles.com/p/my-quote-collection.html

LetsTalk About It: Special Needs. About The Fragile X Files. What is Fragile X, you ask? Fragile X Writers Series. There's no particular rhyme or reason here, these are just quotes that I have liked and collected through the past few years. Every time I see a new one I like, I add it at the bottom. Every few days I'll pull out a random one and add it to the sidebar as the "Quote of the Day.". The desire to take medicine is perhaps the greatest feature which distinguishes man from animals. Evan Esar, Esar...

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Fra-gee-lay X

What is Fragile X? Monday, July 25, 2016. An open letter to my Mocha “Mookie” Latte (March 15, 1999 – July 24, 2016). You made me laugh a lot over the years. I loved how you would have whisper conversations with me. Funny moments that still make me laugh like the time you caught a squirrel through the fence and his tail popped off, or that the time you brought mamma a squirrel when I wasn’t home. She didn’t laugh like I did, but it was funny. Tuesday, August 4, 2015. Sad face. ; - (. Sad face. ; - (.

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