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Brendan Warren Hi'ileiali'i

Journey to seizure freedom

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Brendan Warren Hi'ileiali'i | franknkellie4brendan.blogspot.com Reviews
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Journey to seizure freedom
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7 cheers
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Brendan Warren Hi'ileiali'i | franknkellie4brendan.blogspot.com Reviews

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Journey to seizure freedom

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1

Brendan Warren Hi'ileiali'i: Thursday, April 30, 2009

http://franknkellie4brendan.blogspot.com/2009_04_30_archive.html

Journey to seizure freedom. Santa Clarita Valley, California, United States. View my complete profile. Thursday, April 30, 2009. Growing fast and strong! It has been 14 months since the hemispherectomy surgery and still NO seizures:). Ali'i is 14 years old and getting BIG, he grew a few inches in the last six months and it's a matter of time before he is as tall as me:(. Ali'i is meeting more milestones ahead of schedule and making a successful recovery. God is amazing! Subscribe to: Posts (Atom).

2

Brendan Warren Hi'ileiali'i: Tuesday, April 20, 2010

http://franknkellie4brendan.blogspot.com/2010_04_20_archive.html

Journey to seizure freedom. Santa Clarita Valley, California, United States. View my complete profile. Tuesday, April 20, 2010. It's been four months since Wesley's birth! Life is good, Ali'i has grown to love and accept his little brother not to mention he refuses to leave the house without him! On March 12, 2010 Ali'i celebrated TWO years of SEIZURE FREEDOM and he is maintained on three medications for seizure control. We will start a full weening process this June. Subscribe to: Posts (Atom).

3

Brendan Warren Hi'ileiali'i: Saturday, March 14, 2009

http://franknkellie4brendan.blogspot.com/2009_03_14_archive.html

Journey to seizure freedom. Santa Clarita Valley, California, United States. View my complete profile. Saturday, March 14, 2009. June 2008 - Ali'i sixth grade graduation. In June 2008, Ali'i graduates from Highlands Elementary School in Saugus. He sat through the graduation with no problem.this is the same kid who wouldn't sit for more than 10 seconds in a room or anywhere else for that matter. As you can see from the looks on his face he is one happy little boy (four months post-hemi surgery).

4

Brendan Warren Hi'ileiali'i: Wednesday, March 3, 2010

http://franknkellie4brendan.blogspot.com/2010_03_03_archive.html

Journey to seizure freedom. Santa Clarita Valley, California, United States. View my complete profile. Wednesday, March 3, 2010. Life has been very good to us! Alii already mastered his skills at being a BIG brother, he plays musical toys for Wesley and gives him kisses. Ali'i turned 15 yrs old on February 20 and Wesley is 10 weeks old. Praise God for the wonderful family he has given us. Subscribe to: Posts (Atom).

5

Brendan Warren Hi'ileiali'i: Saturday, March 27, 2010

http://franknkellie4brendan.blogspot.com/2010_03_27_archive.html

Journey to seizure freedom. Santa Clarita Valley, California, United States. View my complete profile. Saturday, March 27, 2010. Our life with a thriving three month old! Wesley is meeting his milestones ahead of schedule. Thank you God for our precious gift. Subscribe to: Posts (Atom).

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Jessie's Blog: February 2011

http://jessiekelley.blogspot.com/2011_02_01_archive.html

Friday, February 18, 2011. A Chance to Tell Your Story and Make a Difference. Below is a letter from Dr. Gary Mathern, Pediatrice Neurosurgeon at UCLA . If you or someone you know has epilepsy, please read and participate. Thanks, Cris. I am writing to inform you of an opportunity that as a family with someone with epilepsy you might want to take advantage of. Please, also send this note to any other families in Southern California you think might be interested. Saturday, February 5, 2011. Family, watch ...

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Jessie's Blog: November 2010

http://jessiekelley.blogspot.com/2010_11_01_archive.html

Tuesday, November 30, 2010. Unfortunately, it looks like Jessie is having seizures again. She is currently in the EMU at Cook Children's in Fort Worth, and the epileptologists believe that she has some seizure activity coming from her hemispherectomy side, from a missed connection and brain tissue left behind in the first surgery. It is deep tissue, and hard to pick up on the scalp EEG. In addition, they will do a T3 detailed MRI tomorrow. At that point, they will make the decision on what to do. Christm...

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Jessie's Blog: December 2013

http://jessiekelley.blogspot.com/2013_12_01_archive.html

Friday, December 6, 2013. I guess it is time to retire Jessie's Blog. I haven't written in years, and she remains seizure free. Jessie is in 5th grade now, and enjoys Choir and Student Council. She makes As and Bs, and still has a wonderful outlook on life, and a fun personality to be around. I guess we are used to the "New" normal in our lives. If you are new to the world of Rasmussen's Encephalitis and/or Hemispherectomy, I encourage you to visit http:/ www.HemiFoundation.org. Subscribe to: Posts (Atom).

aidengregory.blogspot.com aidengregory.blogspot.com

Aiden Gregory Waters: St. Patty's and MRI Results

http://aidengregory.blogspot.com/2009/03/st-pattys-and-mri-results.html

Tuesday, March 17, 2009. St Patty's and MRI Results. March 17, 2009. Happy St. Patty's Day! So, we took Aiden. In for his 6 month post-op MRI on March 5 th. This was for Dr. Mathern. To make his first assessment of the healing process and to check for any surgery related complications. I was very anxious to hear the results when we met with Dr. Mathern. On the 9 th. Because I was worried that Aiden. Explained that the procedure he performed is a hybrid he designed. It's something between a hemispher.

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Aiden Gregory Waters: Self-Injurious Behavior, Post-Hemi

http://aidengregory.blogspot.com/2009/02/self-injurious-behavior-post-hemi.html

Saturday, February 21, 2009. Self-Injurious Behavior, Post-Hemi. Please pray for my little boy; that this is just a phase and that there isn't a serious underlying issue. I am fairly confident after speaking with Dr. Sankar that it is an issue of behavior brought on by his inability to communicate his wants, needs and frustrations with words. I got your website from Jessie's site. Please know that there is someone out here Praying for Aiden! God Bless you both! February 26, 2009 at 5:55 AM.

aidengregory.blogspot.com aidengregory.blogspot.com

Aiden Gregory Waters: Fantastic Opportunity

http://aidengregory.blogspot.com/2009/04/fantastic-opportunity.html

Wednesday, April 22, 2009. I have just been given a fantastic opportunity. Every two years, UCLA Neurosurgery hosts a Visionary Ball to raise money to benefit research and education at UCLA. At the Ball, they feature three live patient testimonials. I have been asked to share Aiden's story in front of 600 plus guests. My first committee planning meeting is tomorrow. I am excited and honored to be a part of this great event. To check out the "Past Balls". April 23, 2009 at 6:30 PM. View my complete profile.

aidengregory.blogspot.com aidengregory.blogspot.com

Aiden Gregory Waters: School Pictures

http://aidengregory.blogspot.com/2008/11/school-pictures.html

Friday, November 21, 2008. I know it's been a while since I posted an update, but rest assured, Aiden is doing GREAT! I've just been very busy working on redesigning the website for the Hemispherectomy Foundation. Here's the link in case you are interested: http:/ www.hemifoundation.org/. I am so proud to be a part of this Foundation and I'm enjoying working with them to support and inform those who face this life-changing surgery. Wishing you all a very Happy Thanksgiving! November 24, 2008 at 7:36 PM.

aidengregory.blogspot.com aidengregory.blogspot.com

Aiden Gregory Waters: Halloween Treats

http://aidengregory.blogspot.com/2008/10/halloween-treats.html

Thursday, October 23, 2008. Yesterday, we received a goodie bag from the Hemispherectomy Foundation. It had cool Halloween stickers and candy. Most of the candy melted because it was 103 degrees here yesterday. There was also a pair of Oogly-googly glasses and here Aiden is wearing them. Thank you Hemispherectomy Foundation! Subscribe to: Post Comments (Atom). View my complete profile. Big boys carry their own backpacks. Travis and Mary Ehrhart Family. Loving my God, Husband, and Eaglet.

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Aiden Gregory Waters: Drinking from a straw

http://aidengregory.blogspot.com/2009/03/5-years-old.html

Wednesday, March 4, 2009. Drinking from a straw. March 3, 2009. We've been trying to get Aiden to drink from a straw for 4 years. A few weeks ago, he did it for the first time. Now he's a pro! Hi Rachel, That is so cool! March 7, 2009 at 6:05 PM. Aiden is such a cutie! I can't wait to meet you guys this summer! March 10, 2009 at 7:31 PM. It is so good to see him sucking on that straw, that's progress! And sings we're gonna wake, wake, wake the muscles up, wake,wake wake the muscles up! The child loves it!

aidengregory.blogspot.com aidengregory.blogspot.com

Aiden Gregory Waters: A December Day at Disneyland

http://aidengregory.blogspot.com/2008/12/december-day-at-disneyland.html

Monday, December 15, 2008. A December Day at Disneyland. December 14, 2008. We took Aiden to Disneyland again! Since Dumbo was his favorite ride last time, that's the first ride we took him on. He also enjoyed the Merry-Go-Round, Nemo's Submarine Adventure and walking around Mickey's Toontown. We had a blast! Subscribe to: Post Comments (Atom). View my complete profile. A December Day at Disneyland. Travis and Mary Ehrhart Family. Loving my God, Husband, and Eaglet. Anes' Journey for HOPE.

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Journey to seizure freedom. Santa Clarita Valley, California, United States. View my complete profile. Tuesday, April 20, 2010. It's been four months since Wesley's birth! Life is good, Ali'i has grown to love and accept his little brother not to mention he refuses to leave the house without him! On March 12, 2010 Ali'i celebrated TWO years of SEIZURE FREEDOM and he is maintained on three medications for seizure control. We will start a full weening process this June. Saturday, March 27, 2010. Ali'i welc...

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