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Leven met een spierziekte. Onderzoek is de oplossing. Onderzoek is de oplossing. Leven met een spierziekte. Inloggen met social media account. Of inloggen met e-mailadres. Ik ben mijn wachtwoord vergeten. Bij FSHD verliezen spieren steeds meer hun kracht. De symptomen beginnen meestal in het gezicht waardoor lachen of fronsen voor patiënten bijna onmogelijk wordt. Er is nog geen behandeling voor FSHD. 17296 opgehaald / 6%. Ons Doel 250.000. Kom ook in actie. 5550 opgehaald / 111%. 4041 opgehaald / 80%.
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Move To A Cure. A Cure To Move. Receive regular updates on research and fundraising with the FSHD Canada Foundation. The singular goal of the FSHD Canada Foundation is to help find a cure — as soon as possible — for Canadians who suffer with FSHD. Latest News View All News. A Rare Person - A Documentary. A Rare Person is a series of short documentaries that aim to provide greater awareness as to how people cope with the impacts of a rare disease. Although these diseases are. We are excited to announce th...
FSHD Champions | An international alliance supporting Facioscapulohumeral Muscular Dystrophy research
An international alliance supporting Facioscapulohumeral Muscular Dystrophy research. Skip to primary content. Skip to secondary content. Friends of FSH Research. Muscular Dystrophy Association (MDA). Muscular Dystrophy Campaign UK. US National Institutes of Health (NIH). 2015 FSHD Champions annual meeting. August 20, 2015. The leadership of these organizations will meet to discuss global collaborative initiatives to accelerate FSHD research, awareness and funding. For more information, click here. Enter...
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