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Gary's Mission

Welcome to Gary's Mission to Remission! Juvenile Dermatomyositis, a rare autoimmune disease.

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Gary's Mission | garyvsjdm.blogspot.com Reviews

https://garyvsjdm.blogspot.com

Welcome to Gary&#39;s Mission to Remission! Juvenile Dermatomyositis, a rare autoimmune disease.

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1

Gary's Mission: April 2015

http://garyvsjdm.blogspot.com/2015_04_01_archive.html

Welcome to Gary's Mission to Remission! Juvenile Dermatomyositis, a rare autoimmune disease. Saturday, April 25, 2015. This is This, and That is That. Before it all started he was doing good enough to come down off his intravenous steroid dose. I was stoked because I was feeling good about it. Any symptom or change I could explain. I want to explain. Sometimes I think I make myself explain just to avoid these symptoms that are so minimal. Best part is Gary came back the other day. And by that I mean ...

2

Gary's Mission: June 2013

http://garyvsjdm.blogspot.com/2013_06_01_archive.html

Welcome to Gary's Mission to Remission! Juvenile Dermatomyositis, a rare autoimmune disease. Monday, June 24, 2013. Steroid Taper: Ready or Not. The doctor shrugged and said, "oh yeah, why? And "ok/". We are all really at this lets cross that bridge when we get to it in his treatment. I think we all know that we need to make a move. We need to see what his body does. It is like playing Texas Hold Em. What starts to stop me in this is his calcium deposits. Some have gone way. Some have shed out&#4...That ...

3

Gary's Mission: May 2014

http://garyvsjdm.blogspot.com/2014_05_01_archive.html

Welcome to Gary's Mission to Remission! Juvenile Dermatomyositis, a rare autoimmune disease. Monday, May 5, 2014. We are healing. Thank goodness. Gary returned to school last week on Monday. He made it all the way to Wednesday. Wednesday he barely made it in the door. Things I Don't Like. Sometimes I wish God would leave a note on the counter so I could read it in the morning. Keep Him Home Today". His surgery site from April 1 is looking very good! I am happy about that. Subscribe to: Posts (Atom).

4

Gary's Mission: October 2014

http://garyvsjdm.blogspot.com/2014_10_01_archive.html

Welcome to Gary's Mission to Remission! Juvenile Dermatomyositis, a rare autoimmune disease. Saturday, October 25, 2014. We Gave It A Try. Sodium Thiosulfate we started on July, second week? It does appear to be a reaction to the sodium thiosulfate. :(. Subscribe to: Posts (Atom). Gary, Age 7. Welcome to our blog. Click here to go to the beginning. Thank you to Becky for adding us to her inspiration to run section of her blog. Click Here. To Bounce to my other blog. AUSTIN MARATHON FEB. 14th, 2010. Najwa...

5

Gary's Mission: Disease Giver

http://garyvsjdm.blogspot.com/2014/07/disease-giver.html

Welcome to Gary's Mission to Remission! Juvenile Dermatomyositis, a rare autoimmune disease. Sunday, July 20, 2014. I am the great disease giver. I give you dermatomyositis. You are suddenly having trouble getting up the stairs. A strange red hot rash is on your face. You have an unexplained sore under your arm. You don't recall hurting yourself. You feel overall tired. You thought it was hard eating a sandwich the other day. You had to work to swallow it? Subscribe to: Post Comments (Atom). Gary, Age 7.

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Stirring the Pot: Discharged!

http://stirringourpot.blogspot.com/2015/06/discharged.html

And we know that all things work together for good to those who love God, to those who are the called according to His purpose. Romans 8:28. Monday, June 29, 2015. Rachel had her last pediatric rheumatology appointment this afternoon. She has done so well with her JDM that Dr. R discharged her from her service! While we really enjoyed having Dr. R as Rachel's physician and we will miss her, we are glad that we (hopefully! Will never see her again. What does this mean for Rachel now? Nov 1st, 2016.

stirringourpot.blogspot.com stirringourpot.blogspot.com

Stirring the Pot: What Would You Tell Her?

http://stirringourpot.blogspot.com/2012/10/what-would-you-tell-her.html

And we know that all things work together for good to those who love God, to those who are the called according to His purpose. Romans 8:28. Wednesday, October 31, 2012. What Would You Tell Her? Matching skirts that my mother made for the girls. Aren't they cute? I wish I had one! I had to take Rachel today to get blood drawn for her appointment next week. She's doing so well that I can't imagine her labs won't be good, but I know that we still need to draw them. After they pulled the needle out, Rachel ...

stirringourpot.blogspot.com stirringourpot.blogspot.com

Stirring the Pot: May 2013

http://stirringourpot.blogspot.com/2013_05_01_archive.html

And we know that all things work together for good to those who love God, to those who are the called according to His purpose. Romans 8:28. Wednesday, May 29, 2013. Wonderful, Exciting News! Rachel's new bathing suit. We have already noticed that the swelling (from water retention) in her face and stomach has decreased. But, starting today, she doesn't have to take it anymore! But that's not all. No, it's not! And I'm so excited that I'm almost giddy! We almost can't stand it, it's such good news. Rache...

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Stirring the Pot: Better and Better!

http://stirringourpot.blogspot.com/2014/04/better-and-better.html

And we know that all things work together for good to those who love God, to those who are the called according to His purpose. Romans 8:28. Tuesday, April 15, 2014. Rachel had another encouraging appointment today. According to Dr. R, she looks great (we already knew that! And is doing great. Everything is just about as good as it can be. Basically, if you didn't already know that Rachel has JDM, there is no way to look at her and see it. Hooray! April 16, 2014 at 7:30 AM. While he has residual pain fro...

stirringourpot.blogspot.com stirringourpot.blogspot.com

Stirring the Pot: April 2014

http://stirringourpot.blogspot.com/2014_04_01_archive.html

And we know that all things work together for good to those who love God, to those who are the called according to His purpose. Romans 8:28. Tuesday, April 15, 2014. Rachel had another encouraging appointment today. According to Dr. R, she looks great (we already knew that! And is doing great. Everything is just about as good as it can be. Basically, if you didn't already know that Rachel has JDM, there is no way to look at her and see it. Hooray! Subscribe to: Posts (Atom). View my complete profile.

stirringourpot.blogspot.com stirringourpot.blogspot.com

Stirring the Pot: September 2014

http://stirringourpot.blogspot.com/2014_09_01_archive.html

And we know that all things work together for good to those who love God, to those who are the called according to His purpose. Romans 8:28. Wednesday, September 10, 2014. Rachel had a doctor's appointment up in Houston this afternoon. We thought she had weathered our beach vacation. Without any problems, but it was nice hearing that the doctor thought so, too. It's funny that we slathered Rachel with sunscreen, and she wore a hat and a rash guard, but she is still our darkest child! Rachel was diagnosed...

stirringourpot.blogspot.com stirringourpot.blogspot.com

Stirring the Pot: Good News and Bad News at the Ophthalmologist

http://stirringourpot.blogspot.com/2013/11/good-news-and-bad-news-at.html

And we know that all things work together for good to those who love God, to those who are the called according to His purpose. Romans 8:28. Wednesday, November 13, 2013. Good News and Bad News at the Ophthalmologist. Rachel had a busy morning today. First, John took her to get her blood drawn for her upcoming appointment to make sure that her JDM isn't rearing its ugly head. Then I took her to the ophthalmologist to make sure that the Plaquenil we started back in May isn't hurting her eyes. So, we had g...

stirringourpot.blogspot.com stirringourpot.blogspot.com

Stirring the Pot: August 2013

http://stirringourpot.blogspot.com/2013_08_01_archive.html

And we know that all things work together for good to those who love God, to those who are the called according to His purpose. Romans 8:28. Wednesday, August 21, 2013. Rachel had another doctor's appointment today after three months off. That break was soooo nice, and it was even better that we only had to get her blood drawn once during that time. It was wonderful! But after the wonderful, exciting news. From her last appointment, we weren't sure that things could get even better.but they did! We will ...

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Gary's Mission

Welcome to Gary's Mission to Remission! Juvenile Dermatomyositis, a rare autoimmune disease. Monday, January 1, 2018. Well here we are :)! Tuesday, November 1, 2016. Nov 1st, 2016. I can't believe it has been an entire year since I wrote on our blog! Life changes, and things shift. Finally. Lots of bumps to get here, but we are here. Bumps: Liver complications. Nodular Regenative Hyperplasia. We handled it. It will be the true test. Gary is attending school everyday and he really loves it. I at least wan...

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