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Sarcoma Alliance: December 2013
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Monday, December 30, 2013. FAMILY STORY: Donnie Sills. Cindy and Donnie Sills. Another installment in our ongoing series of interviews with those affected by sarcoma. You can see all articles in the series right here. Survivor as someone who carries on and we often think of those with the illness as the survivor. Many times, it is also true that the family and friends of those afflicted are survivors. That is how I would describe Donnie Sills: a survivor. What was Cindy’s sarcoma diagnosis? They had hors...
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Sarcoma Alliance: October 2013
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Monday, October 28, 2013. ANNOUNCEMENT: Sarcoma Alliance Store - Now Open. Great big happy shopping news from us today: Our Zazzle Store. What the heck is Zazzle? Basically, Zazzle allows us to easily offer a huge variety of Sarcoma Alliance gear to our wonderful supporters. Like the t-shirt. And the snazzy luggage tag. Sarcoma awareness luggage tag from Sarcoma Alliance. Andoh my goodness.adorable clothing for your best friend. How Cute is This? Doggy Shirt from Sarcoma Alliance. Go buy that keychain.
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Sarcoma Alliance: August 2013
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Monday, August 19, 2013. Join the Ocean of Hope Aug. 25 at the Classic. In 2011, when Robert Phelps. Was 20, his father was diagnosed with terminal brain cancer. I started paddling during this tough time to help myself." His father passed away this April. "Now I am paddling to help other people.". I'm going to tell you a little about Robert Phelps (above) and John Kucera, two new members of our Ocean of Hope. If you can't make it, but would still like to support O2H, click on paddleboarders. At the Catal...
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Sarcoma Alliance: June 2014
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Monday, June 16, 2014. Chondrosarcoma trial opens nationwide. An exciting trial for patients with chondrosarcoma is opening at hospitals across the country. This trial is very important to me as a sarcoma medical oncologist because I see patients with chondrosarcoma for which there are no treatment options," said Jon Trent, MD, PhD, director of the Sarcoma Medical Oncology Research Program at the University of Miami's Sylvester. At the annual meeting. Miriam Zimms in therapy. Our bone sarcoma pathologist...
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Sarcoma Alliance: October 2014
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Monday, October 27, 2014. How the LA support group began. The late Suzanne Leider, co-founder of the Sarcoma Alliance, holds a poster at the first meeting. Dave Murphy is on the left. In back, from left, are board member Marita Tullius and Brian and Kendra Krause. Can you help us identify the man and woman on the right? After my wife was diagnosed with leiomyosarcoma in 1998, I joined the Association of Cancer Online Resource. Also in 1999, Suzanne Leider founded. The Orthopaedic Institute for Children.
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Sarcoma Alliance: July 2015
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Tuesday, July 28, 2015. NCCN revises guidelines on uterine sarcoma. Guidelines on the treatment of uterine sarcoma have been “extensively revised” this year, according to the National Comprehensive Cancer Network ( NCCN. In 2005, I urged sarcoma specialists to address this discrepancy. The next year, I wrote about the problem here. I stopped checking the NCCN Clinical Practice Guidelines in Oncology (NCCN Guidelines) until recently when I saw that Dr. Suzanne George. 8220;The NCCN Guidelines Panels for S...
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Sarcoma Alliance: November 2013
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Monday, November 25, 2013. NEWS: Michigan plans Adult Sarcoma Survivorship Program. The University of Michigan Comprehensive Cancer Center in Ann Arbor is fine-tuning an Adult Sarcoma Survivorship Program to deal with severe and life-threatening illnesses that arise at least two years after surgery, radiation and chemotherapy have been completed. 8220;Survivorship care is an emerging priority in cancer care,” says Professor Laurence Baker. The program also will contribute to research into survivorship is...
sarcomaalliance.blogspot.com
Sarcoma Alliance: How the LA support group began
http://sarcomaalliance.blogspot.com/2014/10/how-la-support-group-began.html
Monday, October 27, 2014. How the LA support group began. The late Suzanne Leider, co-founder of the Sarcoma Alliance, holds a poster at the first meeting. Dave Murphy is on the left. In back, from left, are board member Marita Tullius and Brian and Kendra Krause. Can you help us identify the man and woman on the right? After my wife was diagnosed with leiomyosarcoma in 1998, I joined the Association of Cancer Online Resource. Also in 1999, Suzanne Leider founded. The Orthopaedic Institute for Children.
sarcomaalliance.blogspot.com
Sarcoma Alliance: SURVIVOR INTERVIEW: Rob Ambrose
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Monday, September 15, 2014. SURVIVOR INTERVIEW: Rob Ambrose. Rob Ambrose is a 36 year old middle school science teacher. He lives in Somerville, New Jersey with his beautiful wife Kate and their two cats. In May of this year, Rob was diagnosed with myxoid liposarcoma. This is Rob’s story . . . How were you diagnosed? I remember immediately thinking I didn't want to die and I realized that any hardships or complaints I had about my life up to that point didn't matter any more. Tell us about your treatment?
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Sarcoma Alliance: June 2013
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Sunday, June 23, 2013. The Affordable Care Act and sarcoma survivors. Obamacare" will help many sarcoma survivors, but doesn't fix all the problems faced by people with rare cancers. Under the Patient Protection and Affordable Care Act. Called ACA or Obamacare, each state will set up a Health Insurance Marketplace to make affordable policies available from private companies. The federal government can create one if a state doesn't act. The process is expected to start Oct. 1. That's why we have a page.
