jenwithonenblog.wordpress.com
Five Things Friday 4/17 – jen with one n
https://jenwithonenblog.wordpress.com/2015/04/17/five-things-friday-417
5 Seconds of Fame. Running Records and Goals. Jen with one n. Five Things Friday 4/17. April 17, 2015. April 17, 2015. On Sunday, I got to volunteer at the Red Coyote Running and Fitness. Water stop for the Redbud Classic. The Redbud is one of OKC’s biggest races with a great after party, but when you volunteer with Red Coyote, the party starts at the water stop! Volunteering at the Redbud Classic with Red Coyote! Post race selfie with some of my buds! 2 “Speed” run. And we had great, cool weather! Stay ...
spiritdances.wordpress.com
My Music | Inspired By Love
https://spiritdances.wordpress.com/my-music
This is my piano music. It is played by my friend and music therapist Karen Bohnert. My hands won’t allow me to play my songs, but the notes are all mine. It takes me about a year to complete each song. I have completed eight songs since I began composing in 2000. I will add a new song when I am able. My Dad helps me put my songs here. To hear some of my songs Click Here to Listen. Karen wrote this information so you would know how I compose my songs with her. Karly’s Composing Process. January 28, 2010.
spiritdances.wordpress.com
Remembering Karly’s Life | Inspired By Love
https://spiritdances.wordpress.com/2012/10/05/1746
Remembering Karly’s Life. October 5, 2012 · Filed under Uncategorized. October 4th, in “Karly’s Spiritdances Garden”. This is the view from the chair Karly sat on in her garden the last few months of her life. October is Rett Syndrome Awarenss month. As Karly’s mom, I know how much she struggled throughout her life and ultimately died as a result of the many complications that Rett Syndrome created in her body. These are her some of her last written words:. I miss hearing her typing. With much gratitude,.
spiritdances.wordpress.com
The Invitation | Inspired By Love
https://spiritdances.wordpress.com/2012/08/20/the-invitation
August 20, 2012 · Filed under Companion Horse. Karly’s precious little hands. She was so determined to share her thoughts with us, then eventually the world after we found a way for her to communicate at age 10. As Karly’s health declined, she asked me to post this poem she wrote, after she passed. Her beautiful heart and spirit continued to guide us right to the end of her days. She leaves behind an enormous hole in our hearts and lives. Lois Swope-Karly’s Mom. Becomes a distant memory. February 17, 2012.
spiritdances.wordpress.com
Karly’s Memorial Service | Inspired By Love
https://spiritdances.wordpress.com/2012/09/17/karlys-memorial-service
Karly’s Memorial Service. September 17, 2012 · Filed under Uncategorized. Thank you to the hundreds who came from all over the country to join us in loving and remembering Karly. She brought so much light into the world and we feel her loss so deeply. She often told us over the past 12 years to remember, “the day I die will be the best day! I n a 2010 chapel talk Karly prepared for other adults living with physical disabilities, she said:. With great love, Lois (Karly’s Mom). 9 Responses so far ». Concer...
jacksonsmith.blogspot.com
Jackson August Smith: Pool Party at the Trine's
http://jacksonsmith.blogspot.com/2010/03/pool-party-at-trines.html
I am Jackson, I am six years old! I love kindergarten at Carlin Park where my mom teaches! It has been awhile since my mom has posted :( I hope you like keeping up with me and my mommy on this blog! Tuesday, March 30, 2010. Pool Party at the Trine's. Jordan, Ethan and Jackson hanging out poolside! That is a jellybean in Jackson's hand. Yep, that is Jordan on Josh's back and Jackson upside down in the air. Can you tell Jackson is having a good time today? Thank you Mr. and Mrs. Trine! My new cousin Boston.
penniesforerett.blogspot.com
Pennies for Rett: April 2011
http://penniesforerett.blogspot.com/2011_04_01_archive.html
Pennies for Rett January 2011. Look at all of the pennies I have collected so far! Wednesday, April 6, 2011. My Pennies for Rett Video. Monday, April 4, 2011. I got lots of coins this week at school doing Pennies for Rett! Subscribe to: Posts (Atom). Rett Syndrome on The View 1/28/11. Girl Power 2 Cure. Girl Power 2 Cure. Runner Spotlight: Molly Barker. Quest for a Cure 2013! My Pennies for Rett Video. There was an error in this gadget. Simple theme. Powered by Blogger.
penniesforerett.blogspot.com
Pennies for Rett: March 2011
http://penniesforerett.blogspot.com/2011_03_01_archive.html
Pennies for Rett January 2011. Look at all of the pennies I have collected so far! Monday, March 7, 2011. Rockin for Rett 2011. I know this is early but I cannot wait for rockin for Rett. My cousin Rachel and I are having a cupcake stand. We are going to even make cupcakes for dogs. pupcakes ha ha. mom is going to e mail Gorge Town cupcakes the DC cupcakes show to see if they will donate something for the auction. I am going to burst. We will definitely get close to curing Rett. Subscribe to: Posts (Atom).
rettgirl.blogspot.com
Rett Girl Blog: Being Avery's Dad
http://rettgirl.blogspot.com/2014/06/being-averys-dad.html
Friday, June 13, 2014. Welcome to our 3rd Annual Salute to Rett Dads! Each day this week leading up to Father's Day, we will share a blog written by a father of a girl suffering from Rett Syndrome. Later in the week we will share a video slideshow of over 100 dads with their beautiful girls. Just because these girls have Rett Syndrome does not mean they are not still "Daddy's Little Girl" . times one million! To all the Rett Dads - thank you for your special role in raising these very special girls.
brooklynbutler.blogspot.com
Brooklyn Ashleigh Butler: Professor Adrian Bird
http://brooklynbutler.blogspot.com/2012/02/professor-adrian-bird.html
My name is Brooklyn. I am six years old and I have Rett Syndrome. My mommy works with a wonderful Rett Syndrome organization called Girl Power 2 Cure. Be sure to check it out www.girlpower2cure.org I hope you enjoy this blog.it is filled with stories and pictures of our family's life with Rett Syndrome. Friday, February 17, 2012. Prof Adrian Bird's Speech at Reverse Rett London event. Subscribe to: Post Comments (Atom). Click the picture to visit my brother's blog! Southeastern Rett Syndrome Alliance.
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