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Gm1 Gangliosidosis Type 2 - Our Experience

Gm1 Gangliosidosis Type 2 - Our Experience. GM1 Gangliosidosis is a fatal, degenerative disorder that attacks the brain and spinal chord in children. Our boys, Eli and Evan both have the disorder. We share how we learn, cope, live, and love throughout our journey. Wednesday, March 29, 2017. January through March update. I've been wanting to write another blog post for a while and finally got around to it! Brad's parents came to visit us last month and we had a great time! Fun at OLD TUCSON STUDIOS. Laya ...

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Gm1 Gangliosidosis Type 2 - Our Experience. GM1 Gangliosidosis is a fatal, degenerative disorder that attacks the brain and spinal chord in children. Our boys, Eli and Evan both have the disorder. We share how we learn, cope, live, and love throughout our journey. Wednesday, March 29, 2017. January through March update. I've been wanting to write another blog post for a while and finally got around to it! Brad's parents came to visit us last month and we had a great time! Fun at OLD TUCSON STUDIOS. Laya ...

<META> KEYWORDS

1 pinterest

2 ha ha

3 eli's new stander

4 marilee burdett leishman

5 sweet iris

6 marilee@curegm1 org

7 with the message

8 posted by

9 marilee leishman

10 email this

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Gm1 Gangliosidosis Type 2 - Our Experience | gm1gangliosidosis.blogspot.com Reviews

https://gm1gangliosidosis.blogspot.com

Gm1 Gangliosidosis Type 2 - Our Experience. GM1 Gangliosidosis is a fatal, degenerative disorder that attacks the brain and spinal chord in children. Our boys, Eli and Evan both have the disorder. We share how we learn, cope, live, and love throughout our journey. Wednesday, March 29, 2017. January through March update. I've been wanting to write another blog post for a while and finally got around to it! Brad's parents came to visit us last month and we had a great time! Fun at OLD TUCSON STUDIOS. Laya ...

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thecompletepianist.com

CenterStage Singers Tucson, AZ

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I started Centerstage back in 2009 and have enjoyed it so much. It grew and transformed as the years went by and my family and I gained a lot of satisfaction out of doing it. I've come to the difficult decision that I won't be running it anymore because of family demands and responsibilities. The children who I have worked with, I truly love. I have loved teaching and (hopefully) inspiring them. What fun we've had! And http:/ www.gm1gangliosidosis.blogspot.com. Sign Up ». Marilee will focus on teaching t...

gm-123.org

Read Stories, Tell Your Story

http://www.gm-123.org/stories

Since learning about the diagnosis of our boys we have gained much strength by reading stories and talking with people who have or are going through similar experiences. If you would like your story to appear on this page, email your story and any pictures you would like to include to GM123.org@gmail.com. Join Us on Facebook. If you or someone you know suffers from a gangliosidosis disorder please reach out to the private facebook group found here: The Facebook Gangliosidosis Group. A Future for Bo.

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Gm1 Gangliosidosis Type 2 - Our Experience

Gm1 Gangliosidosis Type 2 - Our Experience. GM1 Gangliosidosis is a fatal, degenerative disorder that attacks the brain and spinal chord in children. Our boys, Eli and Evan both have the disorder. We share how we learn, cope, live, and love throughout our journey. Wednesday, March 29, 2017. January through March update. I've been wanting to write another blog post for a while and finally got around to it! Brad's parents came to visit us last month and we had a great time! Fun at OLD TUCSON STUDIOS. Laya ...

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