Our journey through pregnancy and beyond discovering at our 20 week scan that our baby had a lethal skeletal dysplasia called thanatophoric dysplasia.
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goldengiftblog – Our journey with Aurelia through Thanatophoric Dysplasia | goldengiftblog.wordpress.com Reviews
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Our journey through pregnancy and beyond discovering at our 20 week scan that our baby had a lethal skeletal dysplasia called thanatophoric dysplasia.
goldengiftblog.wordpress.com
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Our journey with Aurelia through Thanatophoric Dysplasia. 1) The beginning of the end. 4) Beginning to plan. 6) Transfer of care. 8) She’s arrived. 9) Labour and birth. New Year, new things to celebrate. January 8, 2017. January 8, 2017. I feel we’ve shared so much sad news through our journey through the last nine months. Many of you have shared that journey with us and cried alongside us, hence you deserve some good news! The consultant said to me this week ‘can you relax a bit now? 8217;- my answer wa...
Update: Diagnosis – goldengiftblog
https://goldengiftblog.wordpress.com/2016/04/12/update-diagnosis
Our journey with Aurelia through Thanatophoric Dysplasia. 1) The beginning of the end. 4) Beginning to plan. 6) Transfer of care. 8) She’s arrived. 9) Labour and birth. April 12, 2016. April 25, 2016. Having just left the hospital we are sat feeling a strange mix of relief and sadness. Both the scan and the blood tests have confirmed a diagnosis of Thanatraphophic Dysplasia. This confirms:. The pregnancy itself is likely to be very normal and we just need to carry on as we would of she was healthy. One t...
Update: Transfer of care – goldengiftblog
https://goldengiftblog.wordpress.com/2016/06/26/update-transfer-of-care
Our journey with Aurelia through Thanatophoric Dysplasia. 1) The beginning of the end. 4) Beginning to plan. 6) Transfer of care. 8) She’s arrived. 9) Labour and birth. Update: Transfer of care. June 26, 2016. June 23, 2016. Last week we had our first appointment at Frimley Park with our new consultant. Whilst much of my time with the consultant was simply filling her in on our situation, there were a couple of things she had a slightly different opinion on from our previous consultant. Her new position ...
Update: Decisions – goldengiftblog
https://goldengiftblog.wordpress.com/2016/06/10/update-decisions
Our journey with Aurelia through Thanatophoric Dysplasia. 1) The beginning of the end. 4) Beginning to plan. 6) Transfer of care. 8) She’s arrived. 9) Labour and birth. June 10, 2016. Earlier this week was our final appointment at the Whittington before being handed over to Frimley Park where Aurelia will be born. Are being pulled in to advise on the best lines of treatment for her depending on how long her little body wants to live for. The key point is she will not suffer. June 13, 2016 at 4:25 am.
Update: she’s arrived – goldengiftblog
https://goldengiftblog.wordpress.com/2016/07/22/update-shes-arrived
Our journey with Aurelia through Thanatophoric Dysplasia. 1) The beginning of the end. 4) Beginning to plan. 6) Transfer of care. 8) She’s arrived. 9) Labour and birth. Update: she’s arrived. July 22, 2016. July 28, 2016. Aurelia Bernadette Miles arrived at 1.23 pm today and very peacefully fell asleep within a minute or so. Whilst we didn’t get the time we wanted with her, we couldn’t have asked for a calmer end to her life. More later when we’ve gathered ourselves together but thank you everyone ...
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anniemaeblog – anniemaeblog
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On Faith, Love, Travel, and Really Good Cookies. Today for Yesterday… Never. July 25, 2016. July 25, 2016. We all wish we could go back… Take back… Change a response… Take the right instead of the left… Speak up… Stand up… Shut up… Wait… Listen…. But what’s done is DONE! Gone Finished. Behind us. Just like the morning mist on the valley creeping through to wake up the flowers for the day – each morning brings NEW opportunity to start fresh. I wouldn’t trade today for 100 yesterday’s. June 20, 2016. Golde...
Emma Watson, Feminism, and Faith – anniemaeblog
https://anniemaeblog.wordpress.com/2014/09/22/emma-watson-feminism-and-faith
On Faith, Love, Travel, and Really Good Cookies. Emma Watson, Feminism, and Faith. September 22, 2014. Emma Watson, the brilliant, young British actress who we fondly know as Hermione from Harry Potter has won the hearts of people around the globe once more. With her opening Speech. To the UN, she took the United Nations and the rest of us by the hand and lead us to a better understanding of a the cultural misconception of feminism. Just recently I was told at work by an off-handed conversation, “T...
The Job Hunter’s Diaries IV – I got HIRED!!! – anniemaeblog
https://anniemaeblog.wordpress.com/2012/08/22/the-job-hunters-diaries-iv-i-got-hired
On Faith, Love, Travel, and Really Good Cookies. The Job Hunter’s Diaries IV – I got HIRED! August 22, 2012. August 22, 2012. Almost 1 month to the day of when I started my Job Hunter’s Diaries – I have received an offer of employment with… AMAZON! TIP: Always give yourself time to think and pray. Just because everyone wants everything right NOW, doesn’t mean we need it. The offer went through giving me an entire day to pray and seek the wisdom in the counsel of many. I will now be an Amazon Woman! WordP...
Life Happens in the Details – anniemaeblog
https://anniemaeblog.wordpress.com/2014/12/27/life-happens-in-the-details
On Faith, Love, Travel, and Really Good Cookies. Life Happens in the Details. December 27, 2014. December 27, 2014. The moments with smiles and laughter. That one book that made you think. The movie that gave you new perspective. The visit with the grocery checker. The conversation with that difficult colleague. The Kitty’s antics. The “Can you believe this? 8221; and “Did you hear that? To know about them. Whose details do you actually want to know? Just remember… Life happens in the details. Travel Des...
Christmas Day ~ Celebration – anniemaeblog
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On Faith, Love, Travel, and Really Good Cookies. December 25, 2014. December 25, 2014. Each is thoroughly praised and enjoyed. Laughter flows like coffee. There is always room for one more at the table. The day begins and ends with remembering that the reason for the season really is Jesus. He came so that I may have Love, Joy, and Peace – and not just enjoy it on a random day in December, but rather that I would seek to understand and live it each and everyday. Partridge in a Pear Tree Emblem. Enter you...
Good Hair Day – anniemaeblog
https://anniemaeblog.wordpress.com/2012/04/19/good-hair-day
On Faith, Love, Travel, and Really Good Cookies. April 19, 2012. Good hair day comic. The Brilliance of Milne and Shepard – Part I. The Last people to see “The Hunger Games” Movie. One thought on “ Good Hair Day. December 5, 2014 / 6:26 pm. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. Join 1,56...
About – anniemaeblog
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On Faith, Love, Travel, and Really Good Cookies. Attempting to share the blonde, vivacious, color-filled, joyous life God has given me… in an easy to swallow, rhetorical, blog-format. 2 thoughts on “ About. October 17, 2011 / 10:39 pm. Annie, I love this blog! You are a marvel, and I definitely want to return and read more; as the British would say, “Lovely! September 15, 2012 / 2:32 pm. Annie, this blog of yours is a delightful read! Leave a Reply Cancel reply. Enter your comment here. Follow Me on Email.
4 Days Until Christmas… Anticipation – anniemaeblog
https://anniemaeblog.wordpress.com/2014/12/21/4-days-to-christmas-anticipation
On Faith, Love, Travel, and Really Good Cookies. 4 Days Until Christmas… Anticipation. December 21, 2014. December 22, 2014. What are you anticipating? We are anticipating the celebration of the coming of Jesus. We have all anticipated events that have resulted in disappointment and broken dreams. Christmas is the exception! It is the yearly reminder of God’s promises and restored glory to us. Anticipate with me this Advent season the coming of Hope Fulfilled. King County, WA, USA. 4 Days Until Christmas.
Portland “Vacation” = Mission Trip to the University – anniemaeblog
https://anniemaeblog.wordpress.com/2015/04/07/portland-vacation-mission-trip-to-the-university
On Faith, Love, Travel, and Really Good Cookies. Portland “Vacation” = Mission Trip to the University. April 7, 2015. WHERE = Portland State University. Trip’s Mission = to encourage students to ask the BIG questions and to dialogue with them about the Truth of Jesus. WHO = RZIM CRU Ratio Christi Intervarsity Christian Fellows. Here is the schedule for the week =. Please pray for our team: Health, Wisdom, Unity. Also, The Lord has surprised me yet again with His extravagant provision! Follow Me on Email.
The Passionate Pursuit of Contentment ~ New Year’s Day Reflection – anniemaeblog
https://anniemaeblog.wordpress.com/2015/01/01/the-passionate-pursuit-of-contentment-new-years-day-reflection
On Faith, Love, Travel, and Really Good Cookies. The Passionate Pursuit of Contentment New Year’s Day Reflection. January 1, 2015. Truth is arrived at by examining what. Rather than what is. Paraphrase; George MacDonald). January the first in the year of our Lord Two -Thousand and Fifteen. (Admittedly that was fun and pretentious to write out in in its entirety.). 2015 goal… The Passionate Pursuit of Daily C. New Year's Resolutions 2015. Life Happens in the Details. Leave a Reply Cancel reply. Follow Me ...
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Goldengift's Blog | Just another WordPress.com site
Just another WordPress.com site. Skip to primary content. Skip to secondary content. January 12, 2012. Greatness lies in doing little things. It is often a tiny key that opens the gate to the palace. It is little sticks that get the fire started. Every flame starts with a spark. Little books are read most. A smile is a little thing but very powerful. The world exists on little words. Finally, success in life hangs on two little words, “YES” and “NO”. The Essence of Love. January 5, 2012. November 23, 2011.
goldengiftblog – Our journey with Aurelia through Thanatophoric Dysplasia
Our journey with Aurelia through Thanatophoric Dysplasia. 1) The beginning of the end. 4) Beginning to plan. 6) Transfer of care. 8) She’s arrived. 9) Labour and birth. This is me. This is my husband Gerard. And this is our daughter, Aurelia. Aurelia is due to arrive on the 19th of August. She’s got a beautiful button nose, she likes to sleep with her hands by her face, is a real wriggler, and we love her … Continue reading About. Top Posts and Pages. Follow goldengiftblog on WordPress.com.
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