Eme has been robbed of her sight by LCA-CRB1, a very rare genetic disease. By age 3, she was already blind. LCA-CRB1 has no treatment. A gene therapy clinical trial is being conducted for LCA-RPE65 right now that is working and is giving blind kids like Eme their sight back! By replacing the mutated/broken gene…
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Growing Up Blind | in a rare LCA world | growingupblindwitheme.wordpress.com Reviews
https://growingupblindwitheme.wordpress.com
Eme has been robbed of her sight by LCA-CRB1, a very rare genetic disease. By age 3, she was already blind. LCA-CRB1 has no treatment. A gene therapy clinical trial is being conducted for LCA-RPE65 right now that is working and is giving blind kids like Eme their sight back! By replacing the mutated/broken gene…
growingupblindwitheme.wordpress.com
Blog | Growing Up Blind | in a rare LCA world
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In a rare LCA world. May 22, 2016. It’s a rainy Sunday and Eme has been cleaning her room. Yes, blind kids can clean. Yes, you should be teaching your blind kids to clean their room and do chores around the house just like everyone else. We’ll come back to that another day…. Today, I wanted to show you this. Pretty isn’t it? Not much better, huh? This folder screams inclusion! But today, we are sharing this folder. This act of inclusion. To a third grader that is blind and clearly very different from mos...
March | 2014 | Growing Up Blind
https://growingupblindwitheme.wordpress.com/2014/03
In a rare LCA world. Monthly Archives: March 2014. March 21, 2014. Eme’s Rainbow Jars. Eme’s Rainbow Jars are now available for shipment! Shipping is $10 sent USPS Priority Mail anywhere in US! Pls add it into your donation.). Order multiple jars for shipment to one address and pay actual shipping only! Contact us directly to arrange shipment of BIG orders! Here’s the backstory🙂 to Eme’s Rainbow Jars…. Eme can’t see a rainbow. She’s never seen one. We’ve tried over and over. Her family organized EmesArm...
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NEW Blog! | EmesArmy | fighting childhood blindness | kids fighting blindness from RARE disease LCA
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EmesArmy fighting childhood blindness. Kids fighting blindness from RARE disease LCA. Valentines for Veterans 2016. June 11, 2016. I 💛 LOVE the Timehop app. I 💙 LOVE faceBook. Mom and 3 yr old newly diagnosed Eme in Colorado. Together, they remind me just how far we have come through the darkness that comes with LCA, Lebers Congenital Amaurosis. Mom and Eme on Mt. Evans in Colorado. She couldn’t see the mountains. The retinal cells, which consist of way more than just rods and cones, use light to captu...
Valentines for Veterans 2016 | EmesArmy | fighting childhood blindness
https://emesarmy.wordpress.com/valentines-for-veterans
EmesArmy fighting childhood blindness. Kids fighting blindness from RARE disease LCA. Valentines for Veterans 2016. Valentines for Veterans 2016. Valentines for Veterans 2016. Just $10 sponsors 1 dozen COOKIE VALENTINES decorated and delivered to our wounded. Warriors spending Valentine’s Day at Walter Reed National Military Medical Center by the kids of EmesArmy! Any remaining funds will be donated to fighting childhood blindness through the EmesArmy LCA Research Fund. AND in 2012, 2013 AND 2014. Create...
Rainbow Jars 2016 | EmesArmy | fighting childhood blindness
https://emesarmy.wordpress.com/rainbow-jars
EmesArmy fighting childhood blindness. Kids fighting blindness from RARE disease LCA. Valentines for Veterans 2016. Eme’s Rainbow Jars are now available for shipment! Order now for Easter Baskets! Email any Questions EmesArmy@gmail.com. They make fantastic teacher and co-worker gifts! Here’s the backstory. Eme can’t see a rainbow. She’s never seen one. We’ve tried over and over. Last year, mom found this craft on Pinterest (of all places, right? 13 comments on “ Rainbow Jars 2016. April 9, 2014 at 2:23 pm.
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Growing Up Brooklyn
Growing Up Brooklyn is a lifestyle blog that explores parenting with Hygge. In the city. Hygge. Is the Danish obsession with getting cozy, and we're raising our two boys to create this environment for themselves anywhere and everywhere they go. We blog on interior design, food, crafts, fashion, travel, and all things parenting. It is finally beginning to feel like spring around here! The trees are beginning to bud, the weather is warming up slightly, we've been getting . Chantilly Lace (Bedroom Makeover).
Wutz 4 Dinna ? -An Innovative New Restaurant and Recipe Directory
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GUBlife - Growing Up Blackxican™ is a Mixed Heritage family blog.
Growing Up Blackxican is a Mixed Heritage family blog. GUBBABY’S FAVORITE 4 to 6 MONTHS BABY PRODUCTS. Catch up with What’s new on GUB. Discovering Ancestry with a Family Tree. DIY Alebrije Inspired by Disney/Pixar’s Coco. Representation Matters for our Family. We’re celebrating Mixed Heritage Week. Family Moments Made Easy with a routine for a simpler life. 5 Ways to Celebrate Black History Month with your family. What Makes A Happy Baby in the Morning time. Minivan Cruising for GUBholiday. We are a par...
growingupblessings.blogspot.com
Growing Up Blessings
Tuesday, December 30, 2014. I cannot believe this boy is 8 years old! We celebrated his birthday (which was the 29th) with lots of laughter, food, family, and of course, creme brulee. My big 8 year old - showing off his newest gap. Here is Eli with the AT AT he built. This was by far the most complicated LEGO set he's ever done. He did a fantastic job on it, and was very proud. Thursday, December 25, 2014. Wednesday, December 17, 2014. Monday, December 15, 2014. Friday, December 12, 2014. He has always b...
growingupblindwitheme.wordpress.com
Growing Up Blind | in a rare LCA world
In a rare LCA world. Eme has been robbed of her sight by LCA-CRB1, a very rare genetic disease. By age 3, she was already blind. LCA-CRB1 has no treatment. A gene therapy clinical trial is being conducted for LCA-RPE65 right now that is working and is giving blind kids like Eme their sight back! By replacing the mutated/broken gene with a good copy of the gene, blind kids can see again! Join us and help raise awareness of childhood blindness from LCA (Lebers Congenital Amaurosis). Join in the conversation.
Growing Up Blog
August 20, 2014. I don’t know about you, but I’m a half-done kind of girl. It’s not something I’m proud of; I just feel like I never quite accomplish anything. I start, I get distracted, (mostly by kids or other household duties) and some how, what I started doesn’t get completed. It’s fun, I guess. Usually she exclaims with squeals “It’s snowing, mama! 8221; I hope I can admit, without judgement, that some of my formerly clean clothes get washed again without ever being worn? Paper plates seem to help, ...
growingupbloomsbury.blogspot.com
Growing up Bloomsbury
People of all ages who remember great times in Growing Up Bloomsbury. Let's reminisce. Saturday, July 5, 2014. Obituary for Linda Huff Muessig. Http:/ www.devlinfh.com/fh/obituaries/obituary.cfm? Links to this post. Tuesday, September 11, 2012. Once again this same nonsense, more money and studies. Money again to be spent on studies and not one dime to the kids education! Http:/ www.lehighvalleylive.com/hunterdon-county/express-times/index.ssf/2012/09/bloomsbury school board to vot.html. Born May 2, 1920...
Home – Growing Up Blue
Have A Question Or Comment? Where is America Headed? July 2, 2015. Craig Cobb is Out of Jail and in Antler. Recently I read a post in the Grand Forks Herald about […]. Continue reading ». A Symbol of Oppression: Removing The Confederate Flag. July 2, 2015. I Want Green Grass: Waste Away, America. June 10, 2015. We Need a Police Force, Not a Military. June 9, 2015. Like Us on Facebook. Like Us on Facebook. Growing Up Blue is your daily dose of practical political insight! Where is America Headed?
Growing up. | learning as we go.
Learning as we go. April 28, 2008. At 3:07 pm by Karen. I can’t upload pictures right now. Which is a bummer, because that seems to be all I do on this blog. I just wrote a big long post about what we’ve been up to, and lost it. April 10, 2008. Posted in renno land. At 9:55 am by Karen. May I present the ensuite. All done save for painting the ceiling (minor detail, right? And hanging the toilet paper holder and a couple of hooks. Oh yeah, and the door moulding. So…. not. 2 bathrooms down, one to go.
Baby Boomer Parties | The Villages | Fla and Capital Region | NY Growing Up Boomer
Baby Boomers still comprise a large segment of our population and most have fond memories of simpler days gone by. Let Ric Mitchell bring those memories to the forefront with a presentation filled with pathos, wistful dreams of days gone by and fun! This hour long visit to the 50s, 60s and 70s includes the toys Boomers grew up with, our television, our music and little trinkets of memories that most will remember with a smile, a sigh and a longing for what was a simpler time. In. Call me at (352) 874-7544.
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