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Fighting to Grow: Time to March for Babies Again!! Get out your shoes and your wallets :)
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Thursday, February 3, 2011. Time to March for Babies Again! Get out your shoes and your wallets :). Click here to see our March for Babies site and to donate! We would love for anyone who would like to to join us in walking and are always looking for donations! Remember, even the small ones add up to make a big difference! Subscribe to: Post Comments (Atom). How our struggle began. Pregnancy through delivery. How our struggle began. Our time in the NICU. Support is an amazing thing. Get out your shoe.
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Fighting to Grow: Someday....
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Thursday, February 17, 2011. As I pack diaper bags and get things ready for Ava's growth and nutrition appointment tomorrow, I can't help but ponder the idea that someday perhaps Ava will be healthy enough where. I will no longer be a professional diaper bag packer for hospital trips because we will only have to go to a hospital for emergencies instead of every couple weeks. I will not be able to recite off the top of my head the phone numbers to three different hospitals, extentions to departments, page...
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Fighting to Grow: January 2011
http://fightingtogrow.blogspot.com/2011_01_01_archive.html
Tuesday, January 11, 2011. The charts don't lie. What will her siblings think? How will we get them all to be careful of her? Will I have to constantly be telling Ava that she has to be careful and can't play with the boys because she may get hurt? And what about the risk of infection? People keep bringing this up to me. Saturday, January 8, 2011. It is never "just a bug". Ava with the puke bucket. Our family has been through the ringer the last month with illnesses. First we all got a sinus thing co...
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Fighting to Grow: How our struggle began. August 2008-December 2010.
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How our struggle began. August 2008-December 2010. Having Ava at home with us was such an amazing feeling. It was such a relief to have all of my babies sleeping under the same roof. It was however, quite an adjustment. Ava continued to suffer from constipation, reflux, vomiting, slow motility of the gut, a nonexistent appetite, and because of all of these things, very slow growth. A feeding evaluation, xrays of her abdomen, and an assortment of bloodwork. She has been on Zantac. Ava began seeing a genet...
fightingtogrow.blogspot.com
Fighting to Grow: High Calorie Foods
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While I feel like most of the world looks at the nutritional facts of food trying to find low calorie foods, those of us with children who are FTT look for the foods with the highest calorie content. This can be a challenge when many of the food today is made to be low fat. Here are some tips that I have read/used/been told. Add butter and/or oil to anything and everything. Ava doesn’t really like oil added to things but she does like butter and lucky for her, she is definitely allowed! Cheese, cheese, a...
fightingtogrow.blogspot.com
Fighting to Grow: Support is an amazing thing.
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Support is an amazing thing. I have found that I deal with stress best in two ways…. 1 I talk. I like to talk about my concerns, worries, and problems until I have vented enough to put them aside or come up with some sort of resolution. Http:/ www.magicfoundation.org/www. The March of Dimes. Http:/ www.marchofdimes.com/default.html. Http:/ health.groups.yahoo.com/group/RSS-Support/. Yahoo Group SGA Chat. Http:/ health.groups.yahoo.com/group/SGAChat/. BabyCenter Community Failure to Thrive. This is run th...
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Fighting to Grow: Did I miss something?
http://fightingtogrow.blogspot.com/2011/01/did-i-miss-something.html
Saturday, January 8, 2011. Did I miss something? Ace snoozing in the hospital. This was around 2am.it was a long night. Subscribe to: Post Comments (Atom). How our struggle began. Pregnancy through delivery. How our struggle began. Our time in the NICU. How our struggle began. August 2008-December 2010. Support is an amazing thing. Poem for Special Needs Parent. The charts dont lie. It is never just a bug. Did I miss something? Blogs of others mother's who have children with growth disorders.
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Fighting to Grow: November 2010
http://fightingtogrow.blogspot.com/2010_11_01_archive.html
Friday, November 19, 2010. Every little bit counts. Ava on the way into the hospital. It was still very early-6am-so she was in her jammies, snuggling her blanky and pillow, and watching Dora. Notice the lovely bib I had on her in case she got sick in the car-which she did not! Overall, I would say that our trip and appointment went well. She gained some weight-woohoo! Ava on the way home. Sleepy but in good spirits. Information on Dr.Wolfsdorph. Wednesday, November 17, 2010. Finding the Right Fit. I dec...
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Fighting to Grow: It is never "just a bug"....
http://fightingtogrow.blogspot.com/2011/01/it-is-never-just-bug.html
Saturday, January 8, 2011. It is never "just a bug". Ava with the puke bucket. Our family has been through the ringer the last month with illnesses. First we all got a sinus thing complete with stuffy noses, coughs, fevers, etc. The next week it moved into every one's chest and poor Ace even had to have nebulizer treatments. Then the following week we each took our turn vomiting. Yuck! The week after that-Christmas Eve it started-we got sore throats and swollen sinuses. Goodness! The charts dont lie.