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Rare Bleeding Disorders EHC - European Haemophilia Consortium
http://www.ehc.eu/bleeding-disorders/rare-bleeding-disorders
Women with Bleeding Disorders. Support and Empower National Member Organisations. Promote access to Treatment and Care. Policy-making, Advocacy and Awareness. Disorders that affect any of the coagulation factors besides FVIII, FIX and VWF are called rare bleeding disorders because they are less prevalent than haemophilia or VWD. Below you will find a table of information on rare bleeding disorders. Characteristics of Rare Bleeding Disorders. Also known as Rare Clotting Factor Deficiencies). 1 in 1 million.
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Round Tables Events Categories EHC - European Haemophilia Consortium
http://www.ehc.eu/events-category/round-tables
Women with Bleeding Disorders. Support and Empower National Member Organisations. Promote access to Treatment and Care. Policy-making, Advocacy and Awareness. EHC Round Table on Personalised Outcome Measures. The European Haemophilia Consortium (EHC) will hold its final Round Table of the year on Monday 28 November on ‘Personalised outcome measures.’ What: Round Table of Stakeholders on ‘Personalised Outcome Measures’ When: Monday 28 November Where: Brussels, Belgium For. November 28, 2016. June 14, 2016.
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EHC News EHC - European Haemophilia Consortium
http://www.ehc.eu/category/ehc-news
Women with Bleeding Disorders. Support and Empower National Member Organisations. Promote access to Treatment and Care. Policy-making, Advocacy and Awareness. Archive for EHC News. Letter from the Presidents: No Brexit for EAHAD and the EHC. Last Friday, 24 June, following the referendum and the decision of a majority of citizens from the United Kingdom (UK) to leave the European Union (EU), we woke up in a different Europe that. June 28, 2016 at 4:23 pm. EHC creates NMO activity grant. The results of th...
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World Haemophilia Day Events Categories EHC - European Haemophilia Consortium
http://www.ehc.eu/events-category/world-haemophilia-day
Women with Bleeding Disorders. Support and Empower National Member Organisations. Promote access to Treatment and Care. Policy-making, Advocacy and Awareness. EHC 2016 World Haemophilia Day Celebration. EHC World Haemophilia Day 2016 celebrations: Focus on access to hepatitis C treatment, treatment disparities in Europe and appropriate healthcare services for an ageing haemophilia population. On 20 April 2016, the European Haemophilia Consortium (EHC) held three events to. April 20, 2016. April 16, 2015.
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EHC Newsletter EHC - European Haemophilia Consortium
http://www.ehc.eu/category/ehc-newsletter
Women with Bleeding Disorders. Support and Empower National Member Organisations. Promote access to Treatment and Care. Policy-making, Advocacy and Awareness. Archive for EHC Newsletter. EHC publishes May 2016 Newsletter. The European Haemophilia Consortium (EHC) has released its May 2016 Newsletter. In this issue: Pg 03: President and CEO report EHC News Pg 06: Comprehensive care in haemophilia: Diagnostic and reference laboratory services Pg. May 27, 2016 at 10:19 am. EHC publishes December Newsletter.
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Support and Empower National Member Organisations EHC - European Haemophilia Consortium
http://www.ehc.eu/areasofwork/support-and-empowerment-nmos
Women with Bleeding Disorders. Support and Empower National Member Organisations. Promote access to Treatment and Care. Policy-making, Advocacy and Awareness. Support and Empower National Member Organisations. Support and Empower National Member Organisations. The EHC aims to ensure that its NMOs become and / or remain effective patients’ organisations at national and European levels, and provides them with:. Support at national level, as needed. The EHC has collected and published data on:. The EHC prov...
ehc.eu
Useful Information EHC - European Haemophilia Consortium
http://www.ehc.eu/bleeding-disorders/useful-information
Women with Bleeding Disorders. Support and Empower National Member Organisations. Promote access to Treatment and Care. Policy-making, Advocacy and Awareness. In this section we will give you a short overview of some things to consider when travelling with a bleeding disorder:. Always take your medical identification information with you, including your last haemostasis results in case of an emergency. When travelling by air, always carry your own treatment products, treatment equipment and pharmaceutica...
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Policy-Making, Advocacy, Awareness EHC - European Haemophilia Consortium
http://www.ehc.eu/areasofwork/policy-making-advocacy-awareness
Women with Bleeding Disorders. Support and Empower National Member Organisations. Promote access to Treatment and Care. Policy-making, Advocacy and Awareness. Policy-Making, Advocacy, Awareness. Policy-Making, Advocacy, Awareness. The EHC is formally engaged in European health policymaking and works closely with key partners and coalitions. Finally, the EHC maintains close ties with the European Directorate for the Quality of Medicines and Healthcare (EDQM), an organisation part of the Council of Europe.
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Conferences Events Categories EHC - European Haemophilia Consortium
http://www.ehc.eu/events-category/conferences
Women with Bleeding Disorders. Support and Empower National Member Organisations. Promote access to Treatment and Care. Policy-making, Advocacy and Awareness. EHC 2nd Leadership Conference. In June 2016, the European Haemophilia Consortium (EHC) will be holding its second Leadership Conference. What: EHC Leadership Conference Why: To bring together EHC members to build capacity, discuss common issues and strenghten the European bleeding disorder community. When:. June 10, 2016. EHC 2016 Annual Conference.
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Workshops Events Categories EHC - European Haemophilia Consortium
http://www.ehc.eu/events-category/workshops
Women with Bleeding Disorders. Support and Empower National Member Organisations. Promote access to Treatment and Care. Policy-making, Advocacy and Awareness. EHC 2016 Workshop on Tenders and Procurement. The European Haemophilia Consortium (EHC) will hold on 9-11 September its first Workshop on Tenders and Procurement in Baku, Azerbaijan. What: Workshop on Tenders and Procurement Why: To give EHC members training on how to be more engaged in. September 9, 2016. November 18, 2016. April 8, 2016. On 20-22...