hannahmcbride.blogspot.com

Hannah's Hope

Hannah was born with a rare liver disease called biliary atresia. At six weeks old, she underwent a corrective surgery called a Kasai operation, which has been a very successful therapy for her. She is our 'sunshine girl', always full of smiles and enthusiasm for life. The Kasai operation is not a cure, and Hannah still faces complications of liver disease and possibly a transplant in the future. This is a place to chronicle Hannah's journey with her liver disease.

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Hannah's Hope | hannahmcbride.blogspot.com Reviews

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Hannah was born with a rare liver disease called biliary atresia. At six weeks old, she underwent a corrective surgery called a Kasai operation, which has been a very successful therapy for her. She is our 'sunshine girl', always full of smiles and enthusiasm for life. The Kasai operation is not a cure, and Hannah still faces complications of liver disease and possibly a transplant in the future. This is a place to chronicle Hannah's journey with her liver disease.

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8 hannah is 3

9 happy birthday hannah

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Hannah's Hope | hannahmcbride.blogspot.com Reviews

https://hannahmcbride.blogspot.com

Hannah was born with a rare liver disease called biliary atresia. At six weeks old, she underwent a corrective surgery called a Kasai operation, which has been a very successful therapy for her. She is our 'sunshine girl', always full of smiles and enthusiasm for life. The Kasai operation is not a cure, and Hannah still faces complications of liver disease and possibly a transplant in the future. This is a place to chronicle Hannah's journey with her liver disease.

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hannahmcbride.blogspot.com

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Hannah's Hope: August 2007

http://hannahmcbride.blogspot.com/2007_08_01_archive.html

Sunday, August 26, 2007. When you have a child with a chronic illness, birthdays are a strange entity. A reminder of the miracle that is in front of you, a lesson that nothing in life is to be taken for granted. A time for great joy, but also a time when the fragility of life is markedly obvious. Links to this post. Saturday, August 25, 2007. Blood results from Tuesday. I phoned up for them so didn't get the full panel, they should come with the letter. Here are the ones I have, with commentary. AST 67 (...

2

Hannah's Hope: December 2007

http://hannahmcbride.blogspot.com/2007_12_01_archive.html

Tuesday, December 04, 2007. Reminder - every day is a gift. It's a while since I updated, but there hasn't really been anything new to report. That's good, I've had a few weeks where it's been easy to pretend that liver disease isn't part of our family life :) Hannah has continued to thrive at nursery - she seems to be friends with everyone and at the parents' meeting her teachers said she listens really well! Why doesn't she listen to me? Links to this post. Subscribe to: Posts (Atom). You can read more...

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Hannah's Hope: Hannah is 3!!!!!

http://hannahmcbride.blogspot.com/2007/08/hannah-is-3.html

Sunday, August 26, 2007. When you have a child with a chronic illness, birthdays are a strange entity. A reminder of the miracle that is in front of you, a lesson that nothing in life is to be taken for granted. A time for great joy, but also a time when the fragility of life is markedly obvious. Sharon (Liam's Mummy-LF) said. Hope you had a fantastic day. Lots of love and kisses your NZ friends from Liver Families Sharon and Liam. xx. Thu Aug 30, 04:40:00 am 2007. Love to you, Andy and the girls. Babywo...

4

Hannah's Hope: March 2007

http://hannahmcbride.blogspot.com/2007_03_01_archive.html

Thursday, March 29, 2007. Nursery Place and the scar. We had the letter in the post this morning telling us that Hannah has been accepted for a morning place at nursery for next September - hurrah! Even better, so have her friends Caitlin (why does she have a friend with the same name as her sister? Hannah has been enjoying pre-school. Every time she goes she tells me she has "made lots of new friends" so she is obviously a social butterfly! She asked. "Is it a band? Because it didn't work properly".

5

Hannah's Hope: October 2007

http://hannahmcbride.blogspot.com/2007_10_01_archive.html

Friday, October 12, 2007. Three years today since Kasai. And there is so much to celebrate and be thankful for. Three years of answered prayers. A day to appreciate being at home just getting on with life, to enjoy the fact that the children have no idea of the significance of the day. A day to look at Hannah, to hold her close, and give thanks for my miracle. Links to this post. Subscribe to: Posts (Atom). Note: still in progress). Children's Liver Disease Foundation. Paediatric Liver Disease UK.

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Drexler Den: First Day of School

http://emma-grey.blogspot.com/2009/09/first-day-of-school.html

First Day of School. The first day of school - I think I was more excited than Emma! The kids had a great summer together - but staying home with each other was starting to wear a bit thin and Frank and I both agreed it was definitely "time' to go back! Emma wasn't that excited - until we went to the open house and she found out she was getting a locker! Wow, that made all the difference (its the small things, I guess! We met her teacher - Mrs Fritz - at the open house and she is wonderful! I have a mark...

emma-grey.blogspot.com

Drexler Den: December 2008

http://emma-grey.blogspot.com/2008_12_01_archive.html

I had my ultrasound appointment on Friday - so Frank and I took the kids and headed out in the blizzard conditions (there was NO way I was rescheduling this appt! Emma was very excited to get her first glimpse of the new baby.and we were all dying to find out what we were having! I didn't really have a preference (just healthy! Finally she asked us if we wanted to know what we were having and we all said YES! And she told us it was a girl! Little monkey fell off the bed! Frank went in to the spare bedroo...

emma-grey.blogspot.com

Drexler Den: Hadley

http://emma-grey.blogspot.com/2010/01/hadley.html

No matter how bad my day is - it can only get better when I see that smile (and those cheeks! Ooohhh hadley is so so so cute and that smile of hers makes me smile i need to see hadley soon! February 8, 2010 at 6:43 PM. Subscribe to: Post Comments (Atom). Life isn't about waiting for the storm to pass.its about learning to dance in the rain! My two beautiful kids! I share three beautiful children with my hubby, Frank. We have been married for 8 years (wow - time flies! Have a dog, Maxwell (aka Meathead!

emma-grey.blogspot.com

Drexler Den: September 2009

http://emma-grey.blogspot.com/2009_09_01_archive.html

First Day of School. The first day of school - I think I was more excited than Emma! The kids had a great summer together - but staying home with each other was starting to wear a bit thin and Frank and I both agreed it was definitely "time' to go back! Emma wasn't that excited - until we went to the open house and she found out she was getting a locker! Wow, that made all the difference (its the small things, I guess! We met her teacher - Mrs Fritz - at the open house and she is wonderful! And spent the...

emma-grey.blogspot.com

Drexler Den: June 2008

http://emma-grey.blogspot.com/2008_06_01_archive.html

We had a bit of a scare a few weeks ago - Greyson was not himself for a week or so and we thought it was another cold - but it kept getting worse and worse. Then his temp shot up and his poop (sorry about this but when you have a kid with BA - poop is your life! End of the year picnic! Wow - I can't believe its the end of another school year.time is just flying! St Matthews put on another great end of the year picnic and the kids had a blast! Thanks for another great year (and Emma's last! He is the one ...

emma-grey.blogspot.com

Drexler Den: May 2009

http://emma-grey.blogspot.com/2009_05_01_archive.html

Where has the time gone? Wow - I can't believe its been so long since I last blogged - where has the time gone? Things have been so busy at work and at home, that I just haven't found the time to blog. I guess I have been really taking the time to enjoy things as they are right now.just the four of us. I am trying to take extra time to spend with the kids before the sleep deprivation sets in! We had a great time together - here are some shots from afterwards. Mothers Day is a great day to remind us how w...

emma-grey.blogspot.com

Drexler Den: January 2010

http://emma-grey.blogspot.com/2010_01_01_archive.html

No matter how bad my day is - it can only get better when I see that smile (and those cheeks! Subscribe to: Posts (Atom). Life isn't about waiting for the storm to pass.its about learning to dance in the rain! My two beautiful kids! I share three beautiful children with my hubby, Frank. We have been married for 8 years (wow - time flies! We live in Norton Shores (a stone throw from Lake Michigan! Have a dog, Maxwell (aka Meathead! View my complete profile. Liver sites / blogs.

emma-grey.blogspot.com

Drexler Den: November 2009

http://emma-grey.blogspot.com/2009_11_01_archive.html

There is nothing like getting a new set of jammies.the kids were modeling their new jammies the other day - so they wanted me to take some pictures of them playing around.even Hadley got a new pair! Pics of the kids around the house from a few weekends ago. They all seem to love Emma's cat ears and take turn wearing them! Even Hadley got into the fun! Hopefully it will be over sooner rather than later - but for now, I am soaking in all the memories (good and teething! Plus, Hadley grew a bit more than I ...

emma-grey.blogspot.com

Drexler Den: Halloween cuties

http://emma-grey.blogspot.com/2009/11/halloween-cuties.html

Here are some shots of the kids at Halloween.I finally talked Emma into dressing up as something other than a dog! Plus, Hadley grew a bit more than I planned on and she was busting out of her costume. We took a few pics and took it off her. We ended the evening with our traditional Papa Murphys pumpkin pizza.what a great nite! Subscribe to: Post Comments (Atom). Life isn't about waiting for the storm to pass.its about learning to dance in the rain! My two beautiful kids! View my complete profile.

emma-grey.blogspot.com

Drexler Den: September 2008

http://emma-grey.blogspot.com/2008_09_01_archive.html

Labor Day in Pentwater. Every Labor Day (for awhile now) we have been heading to Pentwater to spend the day on the boat with Dave, Kathy and the kids and of course, Grandma and Grandpa! It is a highly anticipated event - the kids can't wait to get on that boat! This year we were lucky enough to have fabulous weather and we were able to take a boat ride down to Silver Lake! The water was a bit cold for swimming (although most of us did get in at one time or another - the beer helped keep me warm! I so enj...

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Hannah's Hope

Sunday, March 23, 2008. There has been nothing notable to report since my last update, but I thought it was time to stop in and say that no news from me is invariably good news. Hannah is her usual sassy self and there have been no appointments or tests to comment on. So all is good. I can use my favourite words 'normal' and 'stable'. Ooh, how could I forget? Hannah is now officially a cover girl! She appears on the front cover of the Winter 07/08 issue of the CLDF's Delivery Magazine. Links to this post.

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