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Harmonee Lynn

My fight against Biliary Atresia

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Harmonee Lynn | harmoneesliver.blogspot.com Reviews
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My fight against Biliary Atresia
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1 harmonee lynn
2 almost there
3 harmonee and layla
4 posted by
5 harmonee
6 4 comments
7 rollarcoasters of rejection
8 happy birthday harm
9 3 comments
10 oh harmonee
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harmonee lynn,almost there,harmonee and layla,posted by,harmonee,4 comments,rollarcoasters of rejection,happy birthday harm,3 comments,oh harmonee,6 comments,belated updates,lub you,2 comments,1 comment,lots to tell,liver,blood sugar,physical,5 comments
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Harmonee Lynn | harmoneesliver.blogspot.com Reviews

https://harmoneesliver.blogspot.com

My fight against Biliary Atresia

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1

Harmonee Lynn: March 2011

http://harmoneesliver.blogspot.com/2011_03_01_archive.html

My fight against Biliary Atresia. Each day a lucky 55 people receive an organ transplant, but another 55,000 are on the waiting list. 10 people on the waiting list die each day, because not enough organs are available. Four thousand of them die each year while waiting. Every 16 minutes a new name is added to the National Organ Transplant waiting list. Wednesday, March 09, 2011. Everything with blood sugar and liver are mostly just theory for now. She goes into surgery March 24 to unclott her portal v...

2

Harmonee Lynn: Next up... Kidney Failure?

http://harmoneesliver.blogspot.com/2010/11/next-up-kidney-failure.html

My fight against Biliary Atresia. Each day a lucky 55 people receive an organ transplant, but another 55,000 are on the waiting list. 10 people on the waiting list die each day, because not enough organs are available. Four thousand of them die each year while waiting. Every 16 minutes a new name is added to the National Organ Transplant waiting list. Wednesday, November 24, 2010. Next up. Kidney Failure? Believe me, I am still trying to figure that one out myself. What are the side affects? The ecoli is...

3

Harmonee Lynn: Rollarcoasters of rejection....

http://harmoneesliver.blogspot.com/2011/11/rollarcoasters-of-rejection.html

My fight against Biliary Atresia. Each day a lucky 55 people receive an organ transplant, but another 55,000 are on the waiting list. 10 people on the waiting list die each day, because not enough organs are available. Four thousand of them die each year while waiting. Every 16 minutes a new name is added to the National Organ Transplant waiting list. Tuesday, November 15, 2011. Harmonee's new morning and night routine. On a brighter note, Harmonee turned 2! This is her at her birthday party! Hope she is...

4

Harmonee Lynn: February 2012

http://harmoneesliver.blogspot.com/2012_02_01_archive.html

My fight against Biliary Atresia. Each day a lucky 55 people receive an organ transplant, but another 55,000 are on the waiting list. 10 people on the waiting list die each day, because not enough organs are available. Four thousand of them die each year while waiting. Every 16 minutes a new name is added to the National Organ Transplant waiting list. Wednesday, February 29, 2012. Subscribe to: Posts (Atom). What is Biliary Atresia {BA}. Biliary Atresia is a rare liver disease that only affects infants&#...

5

Harmonee Lynn: Almost there....

http://harmoneesliver.blogspot.com/2012/02/almost-there.html

My fight against Biliary Atresia. Each day a lucky 55 people receive an organ transplant, but another 55,000 are on the waiting list. 10 people on the waiting list die each day, because not enough organs are available. Four thousand of them die each year while waiting. Every 16 minutes a new name is added to the National Organ Transplant waiting list. Wednesday, February 29, 2012. February 29, 2012 at 4:00 PM. Wow I cannot believe the pharmacy made such a horrible mistake. Poor Harmonee! Id be so furious.

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lydiasliverstory.blogspot.com lydiasliverstory.blogspot.com

Lydia's Liver Story: August 2011

http://lydiasliverstory.blogspot.com/2011_08_01_archive.html

Monday, August 15, 2011. Links to this post. Subscribe to: Posts (Atom). Spenc and Lydia enjoying some brocolli (at least the taste of it for Lydia since she just sucks out the flavor and spits it out). Lydia's liver friends and other blogs we follow. I took Lyds to get her regularly scheduled labs tw.

lydiasliverstory.blogspot.com lydiasliverstory.blogspot.com

Lydia's Liver Story: February 2010

http://lydiasliverstory.blogspot.com/2010_02_01_archive.html

Saturday, February 27, 2010. Dallin is my sweet, sweet boy. Links to this post. Tuesday, February 23, 2010. Well if you can tell by the title we have had trouble. Janene went down for here MRI for being the doner. She took Lydia up to her moms and when Lydia woke up from her nap there was blood on the carpet. Long story short Janene stayed at PMCH and Maureen, my mother-in-law, took Lydia down to meet her. Links to this post. Wednesday, February 17, 2010. Links to this post. Friday, February 12, 2010.

lydiasliverstory.blogspot.com lydiasliverstory.blogspot.com

Lydia's Liver Story: Make-A-Wish

http://lydiasliverstory.blogspot.com/2012/01/make-wish.html

Saturday, January 14, 2012. To learn more about this amazing place and see pictures of the fun places there.). We finished out the day with riding lots of fun rides and seeing the sights at Universal Studios. January 29, 2012 at 9:57 PM. Great job of recapping the trip- so glad the whole family got to enjoy the adventure! February 1, 2012 at 9:15 PM. What an exciting vacation that was for your family! I am amazed at all the Make a Wish Foundation can do! What a sweetheart she is! June 20, 2012 at 10:46 PM.

lydiasliverstory.blogspot.com lydiasliverstory.blogspot.com

Lydia's Liver Story: April 2010

http://lydiasliverstory.blogspot.com/2010_04_01_archive.html

Friday, April 30, 2010. I posted some new pictures and vidoes of Lydia smiling, laughing, and wiggling on the transplant link on the right side of the blog. Or, you can just click here on Transplant. Links to this post. Wednesday, April 28, 2010. New PIC Line and Drain Tube. They have sucked out about a pop can of fluid. Hopefully that will help her lung have room to breath. She has had major withdrawals. A lot today to make up for that. I hope she sleeps. Through the night with how much sleep. Her centr...

lydiasliverstory.blogspot.com lydiasliverstory.blogspot.com

Lydia's Liver Story: March 2011

http://lydiasliverstory.blogspot.com/2011_03_01_archive.html

Wednesday, March 30, 2011. Picc gone and Chemo done! Lydia had a ct scan on Thurs. and a full blood lab work up to determine if her PTLD was gone. She showed no traces of it so she is officially done with Chemo. Yeah! Links to this post. Thursday, March 10, 2011. Lydia had her last chemo treatment on Thursday, Feb. 24th. Yipee! Links to this post. Subscribe to: Posts (Atom). Spenc and Lydia enjoying some brocolli (at least the taste of it for Lydia since she just sucks out the flavor and spits it out).

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Brooke Marie Wallace: September 2010

http://brookiemariewallace.blogspot.com/2010_09_01_archive.html

As many of you know Brooke was born with biliary atresia and is in the process of an evaluation for a liver transplant. This site is created to keep family, friends and those touched by little Brooke's condition up to date. I will post pre-transplant, post transplant and her life after her new liver as often as I have information! Thank you for your love, prayers and support. Wednesday, September 29, 2010. September 29, 2010. Well now they are back at 400! Yes, I know she looks like a little boy! For eve...

james-or-angela.blogspot.com james-or-angela.blogspot.com

Graves Family: Sunburn

http://james-or-angela.blogspot.com/2009/06/sunburn.html

James * Angela * Karen. Wednesday, June 24, 2009. Getting a sunburn is always an inevitable part of summer for me because of my white complexion. Karen is pretty good at tanning, but we still always put sun screen on her as a precaution. James let her jump on the trampoline while he was mowing the lawn and forgot to put sun screen on her. This is what happened. Ouch! At least she was still happy. Tuesday, August 25, 2009 at 4:57:00 PM MDT. Ouch, ouch, ouch! Thursday, August 27, 2009 at 7:05:00 PM MDT.

james-or-angela.blogspot.com james-or-angela.blogspot.com

Graves Family: Big Sister SOMEDAY

http://james-or-angela.blogspot.com/2009/07/big-sister-someday.html

James * Angela * Karen. Sunday, July 5, 2009. Tonight she was playing with the wetwipes and James told her not to. She pointed at her dolly's bare bum and said, "Stinky! Karen is going to be such a good big sister someday. (Hopefully it is sooner than later! She is such a sweet little girl. Whenever we are crying or she sees someone else who is crying she always asks in a gentle voice, "You crying? If she hears a baby crying she will say, "Baby crying? Subscribe to: Post Comments (Atom). 4th of July 2009.

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Graves Family: Happy Tears

http://james-or-angela.blogspot.com/2009/08/happy-tears.html

James * Angela * Karen. Saturday, August 8, 2009. Most of the time when I cry they are happy tears. Karen is such a sweet, sensitive little girl that she usually asks if I am okay. Most of the time I tell her that I am crying because I am happy. Tonight we went to the fair to walk around. When we were opening the door, we could hear Pepper in the house crying. Karen said, "Pepper happy? I don't think Pepper was crying happy tears at that moment, but I thought it was cute of her. Sisters in North Logan.

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Harmonee Lynn

My fight against Biliary Atresia. Each day a lucky 55 people receive an organ transplant, but another 55,000 are on the waiting list. 10 people on the waiting list die each day, because not enough organs are available. Four thousand of them die each year while waiting. Every 16 minutes a new name is added to the National Organ Transplant waiting list. Wednesday, February 29, 2012. Tuesday, November 15, 2011. Harmonee's new morning and night routine. Her new condition is controllerable, it could eventuall...

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