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hassel-family.blogspot.com

Tired legs

Our son Elliot has a rare disease called PAH and this blogg is about the disease and our hopes and fears.

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Tired legs | hassel-family.blogspot.com Reviews
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Our son Elliot has a rare disease called PAH and this blogg is about the disease and our hopes and fears.
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1 tired legs
2 elliot with physioterapeut
3 on february 29
4 0 comments
5 pha sweden
6 physioterapeut
7 rare disease day
8 a busy fall
9 ph white paper
10 pha europe
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tired legs,elliot with physioterapeut,on february 29,0 comments,pha sweden,physioterapeut,rare disease day,a busy fall,ph white paper,pha europe,revatio,facts,labels anger,children,elliot,hospital visit,imatinib,pulmonary hypertension,thank you,my big day
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Tired legs | hassel-family.blogspot.com Reviews

https://hassel-family.blogspot.com

Our son Elliot has a rare disease called PAH and this blogg is about the disease and our hopes and fears.

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hassel-family.blogspot.com hassel-family.blogspot.com
1

Tired legs: Past weeks have been terrible and we need to find a solution

http://hassel-family.blogspot.com/2011/10/past-weeks-have-been-terrible-and-we.html

Our son Elliot has a rare disease called PAH and this blogg is about the disease and our hopes and fears. Tuesday, October 25, 2011. Past weeks have been terrible and we need to find a solution. Elliot loses his temper far too many times a day. The most critical point is during the afternoon and almost every day he gets a big outburst when we get him from school. I don’t know how much of it that is connected to Elliot’s disease but I suppose the disease is a key factor. Posted by Patrik Hassel. This blog...

2

Tired legs: May 2011

http://hassel-family.blogspot.com/2011_05_01_archive.html

Our son Elliot has a rare disease called PAH and this blogg is about the disease and our hopes and fears. Friday, May 27, 2011. I'm with Elliot and two of his friends at an enormous indoor playground. The kids have a tempo and Elliot tries to keep up but it is difficult for him. Posted by Patrik Hassel. Links to this post. Subscribe to: Posts (Atom). Google Website Translator Gadget. Me (dad) and Elliot. Nätverket för PAH (in Swedish). Message board PH Association. Youtube channel for PHAssociation.

3

Tired legs: August 2010

http://hassel-family.blogspot.com/2010_08_01_archive.html

Our son Elliot has a rare disease called PAH and this blogg is about the disease and our hopes and fears. Thursday, August 26, 2010. Marie feels that Elliot have been more tired this summer, but I haven't noticed any differences. But I trust Marie's senses more than mine in this case. This week at the child care the staff have mentioned to us that Elliot has been more tired than usual. Next walking test will be in September. And now the group have 23 members. Posted by Patrik Hassel. Links to this post.

4

Tired legs: Rare Disease Day 2012

http://hassel-family.blogspot.com/2012/02/rare-disease-day-2012.html

Our son Elliot has a rare disease called PAH and this blogg is about the disease and our hopes and fears. Monday, February 27, 2012. Rare Disease Day 2012. Elliot on the top of a snow hill. After a long waiting the winter finally arrived to Stockholm for a couple of weeks, but now it seems like we're heading for springtime. From now on it is the pshysioterapeut that will handle the 6-minutes walking test and she pushed Elliot (in a positive sense) to preform really well and he walked 455 meters! This blo...

5

Tired legs: August 2011

http://hassel-family.blogspot.com/2011_08_01_archive.html

Our son Elliot has a rare disease called PAH and this blogg is about the disease and our hopes and fears. Sunday, August 21, 2011. The cars did race in pairs and in every racing car a child was in the passenger seat. Elliot tried Lambogini, Ferrari, Porsche, BMW, Mini and Morgan. There was also a racing show and different competitions. This is a day that Elliot will remember for the rest of his life. Posted by Patrik Hassel. Links to this post. Labels: My big day. Subscribe to: Posts (Atom). Pulmonary hy...

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Our son Elliot has a rare disease called PAH and this blogg is about the disease and our hopes and fears. Monday, February 27, 2012. Rare Disease Day 2012. Elliot on the top of a snow hill. After a long waiting the winter finally arrived to Stockholm for a couple of weeks, but now it seems like we're heading for springtime. From now on it is the pshysioterapeut that will handle the 6-minutes walking test and she pushed Elliot (in a positive sense) to preform really well and he walked 455 meters! The past...

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