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National Research Roster for Huntington Disease Patients and Families

The National Research Roster for Huntington Disease Patients and Families was established in 1979 at Indiana University. The goal of the Roster is to help researchers learn more about Huntington disease. To accomplish this goal, the Roster has involved nearly 3,000 families in Huntington disease research. 8226; about the roster. 8226; family participation. 8226; for researchers. If you would like further information on the HD Roster, contact the study coordinator by email at hdroster@iu.edu.

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National Research Roster for Huntington Disease Patients and Families | hdroster.iu.edu Reviews

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The National Research Roster for Huntington Disease Patients and Families was established in 1979 at Indiana University. The goal of the Roster is to help researchers learn more about Huntington disease. To accomplish this goal, the Roster has involved nearly 3,000 families in Huntington disease research. 8226; about the roster. 8226; family participation. 8226; for researchers. If you would like further information on the HD Roster, contact the study coordinator by email at hdroster@iu.edu.

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National Research Roster for Huntington Disease Patients and Families | hdroster.iu.edu Reviews

https://hdroster.iu.edu

The National Research Roster for Huntington Disease Patients and Families was established in 1979 at Indiana University. The goal of the Roster is to help researchers learn more about Huntington disease. To accomplish this goal, the Roster has involved nearly 3,000 families in Huntington disease research. 8226; about the roster. 8226; family participation. 8226; for researchers. If you would like further information on the HD Roster, contact the study coordinator by email at hdroster@iu.edu.

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hdroster.iu.edu

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hdroster - About HD

http://hdroster.iu.edu/AboutHD

What is Huntington Disease? What are the symptoms of Huntington disease? How do the symptoms of Huntington disease progress? As the disease progresses, the person typically begins to have trouble accomplishing daily tasks, especially employment. They can perform most of their usual roles, just not in the way they used to. They may be depressed, somewhat easy to anger, and resentful of suggestions that they are not performing well, but they continue to be independent and active. There are no treatments wh...

2

hdroster - About the Roster

http://hdroster.iu.edu/aboutTheRoster

For more information, download a Roster brochure. 8226; about the roster. 8226; family participation. 8226; for researchers. What is the Roster? What does the Roster do? Researchers working with the Roster. It is totally VOLUNTARY. You can withdraw at any time. No information about you will be given to anyone without your WRITTEN permission. No one, including your own family members can find out if you are participating in the Roster without your WRITTEN permission.

3

hdroster - Newsletters, Links, & Resources

http://hdroster.iu.edu/Resources

Members or researchers looking for information, newsletters, and links to other HD-related sites can use the links on the right. The resources available in this section include:. The official newsletter of the HD Roster. External websites with more information on Huntington Diesease and other HD research projects. 8226; about the roster. 8226; family participation. 8226; for researchers.

4

hdroster - Family Participation

http://hdroster.iu.edu/familyParticipation

Participation in the Roster involves providing information about your family's history of Huntington disease (HD). This information is collected through two different questionnaires:. Questionnaire for Affected Individuals. The Roster staff will contact each participating family periodically to obtain updated information. This typically includes any new births, deaths or marriages in the family, or any individuals who were recently diagnosed with HD. 8226; about the roster. 8226; family participation.

5

hdroster - Newsletters, Links, & Resources

http://hdroster.iu.edu/Resources/index.asp

Members or researchers looking for information, newsletters, and links to other HD-related sites can use the links on the right. The resources available in this section include:. The official newsletter of the HD Roster. External websites with more information on Huntington Diesease and other HD research projects. 8226; about the roster. 8226; family participation. 8226; for researchers.

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Huntington Society - Two Wheels and a Heartbeat

http://www.twowheelsandaheartbeat.com/huntington-society.html

Two Wheels and a Heartbeat. Where am I now? Huntington Disease Medical Clinic at UBC Hospital. Huntington Clinic multi-disciplinary team. From left to right: Dr. Andrew Howard, Kevin Glenney, Dr. Lynn Raymond, Belinda Walle, Joji Decolongon, Susan Creighton, Rachelle Dar Santos, Susan Tolle, Dr. Aaron Sturrock, Lana Sullivan. To donate to the Huntington Society. What is Huntington Disease (HD)? HD is an inherited brain disorder that causes cells in specific parts of the brain to die. In North America, Eu...

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National Research Roster for Huntington Disease Patients and Families

The National Research Roster for Huntington Disease Patients and Families was established in 1979 at Indiana University. The goal of the Roster is to help researchers learn more about Huntington disease. To accomplish this goal, the Roster has involved nearly 3,000 families in Huntington disease research. 8226; about the roster. 8226; family participation. 8226; for researchers. If you would like further information on the HD Roster, contact the study coordinator by email at hdroster@iu.edu.

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