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Ryan's Journey With SMARD1 | Just another WordPress.com weblog

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http://heartsforryan.wordpress.com/

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Ryan's Journey With SMARD1 | Just another WordPress.com weblog | heartsforryan.wordpress.com Reviews
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Just another WordPress.com weblog
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1 about ryan
2 our girls
3 posted by camidges
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7 posted in uncategorized
8 1 comment
9 ryan before surgery
10 ryan after surgery
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Ryan's Journey With SMARD1 | Just another WordPress.com weblog | heartsforryan.wordpress.com Reviews

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1

Day 2 in the ICU… | Ryan's Journey With SMARD1

https://heartsforryan.wordpress.com/2010/03/25/day-2-in-the-icu

Ryan's Journey With SMARD1. Just another WordPress.com weblog. March 25, 2010. Day 2 in the ICU…. To give an update for today…. Ryan was initially dropped to lower settings on the ventilator, but he was boosted back up to his pre-surgery settings, because the pulmonary Dr was concerned about his CO2 levels. He has been doing fine with the changes. He will not be transferring to the floor until his chest tube is removed, so we will be here in the ICU for at least another day as well. He has been opening h...

2

Ryan's Journey With SMARD1 | Just another WordPress.com weblog | Page 2

https://heartsforryan.wordpress.com/page/2

Ryan's Journey With SMARD1. Just another WordPress.com weblog. March 16, 2010. We are nearly packed and just need one more night of sleep before we hit the road… It is so hard to believe that Ryan will be in surgery in only a few more days! We’ll be going to 2 last appointments – 1 on Tuesday and 1 on Wednesday, and then we will be up bright and early for the big day on Thursday morning. March 11, 2010. The Clematis that grows in our back-yard. We are hoping that Auntie will be able to travel to Seattle ...

3

March | 2010 | Ryan's Journey With SMARD1

https://heartsforryan.wordpress.com/2010/03

Ryan's Journey With SMARD1. Just another WordPress.com weblog. Archive for March, 2010. A Roller Coaster Ride! On March 29, 2010. Before and After pics. On March 26, 2010. One step at a time…. On March 26, 2010. Day 2 in the ICU…. On March 25, 2010. On March 24, 2010. On the road again…. On March 22, 2010. On March 20, 2010. And like a rubber ball, we keep bouncing back to…. On March 18, 2010. Twas the night before surgery. On March 18, 2010. On March 16, 2010. Laquo; Previous Entries. Next Page ».

4

A quick recap/update.. | Ryan's Journey With SMARD1

https://heartsforryan.wordpress.com/2010/03/24/a-quick-recapupdate

Ryan's Journey With SMARD1. Just another WordPress.com weblog. March 24, 2010. I know this is too long in coming…. Ryan pulled through the surgery with flying colors! His spine is now corrected from over 115 degrees down to only 40 degrees – that was about as good as they could have hoped for. He was really stable the whole time, and they were very happy overall with how things went. Thank you all for your prayers thus far – they mean a lot to us. Laquo; On the road again…. Day 2 in the ICU…. Notify me o...

5

A Roller Coaster Ride! | Ryan's Journey With SMARD1

https://heartsforryan.wordpress.com/2010/03/29/a-roller-coaster-ride

Ryan's Journey With SMARD1. Just another WordPress.com weblog. March 29, 2010. A Roller Coaster Ride! The past couple of days have been filled with many, many ups and downs…. On the one hand, we got our first post-op smile from him tonight, and that was the best! Back on to the positive – he has had his remaining drain and IVs removed – he is now tube-free (except his trach, of course! Here is a picture of him in his brace:. Ryan is sporting the latest fashion in body jackets. Laquo; Before and After pics.

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Ryan's Journey With SMARD1 | Just another WordPress.com weblog

Ryan's Journey With SMARD1. Just another WordPress.com weblog. April 1, 2010. We are home now, very exhausted and wondering when and if we will ever get back to “normal”. When we feel more up to it, we will post a little more on how he is doing. For now, we thought we’d finally share the xrays that we got copies of:. The before xray - lying down. After xray - lying down. March 29, 2010. A Roller Coaster Ride! The past couple of days have been filled with many, many ups and downs…. Overall, we think he is...

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