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HELIANTHUSMEDIA.ORG

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Program in Bioethics & Film Stanford Center for  Biomedical Ethics

http://www.helianthusmedia.org/

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PAGE TITLE
RARE - Home | helianthusmedia.org Reviews
<META>
DESCRIPTION
Program in Bioethics &amp; Film Stanford Center for  Biomedical Ethics
<META>
KEYWORDS
1 filmmakers
2 news
3 screenings and broadcast
4 learn more
5 buy now
6 stanford center for
7 biomedical ethics
8 support the
9 hps community
10 hermansky pudlak syndrome
CONTENT
Page content here
KEYWORDS ON
PAGE
filmmakers,news,screenings and broadcast,learn more,buy now,stanford center for,biomedical ethics,support the,hps community,hermansky pudlak syndrome,2012 helianthus media
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RARE - Home | helianthusmedia.org Reviews

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Program in Bioethics &amp; Film Stanford Center for  Biomedical Ethics

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1

Buy Now! - RARE

http://www.helianthusmedia.org/buy-now.html

Educational Use ►. Bull;UNIVERSITIES, MEDICAL SCHOOLS, AND MEDIA CENTERS. DVD with public and classroom viewing rights. University libraries or university classroom use, private colleges,. Government entities or for-profit enterprise. Click here to purchase via check or purchase order. SCHOOLS K-12, COMMUNITY GROUPS, PUBLIC LIBRARIES. DVD with public and classroom viewing rights. K-12 schools, registered non-profit community groups using the film. Click here to purchase via check or purchase order.

2

Filmmakers - RARE

http://www.helianthusmedia.org/filmmakers.html

Produced and Directed by. Maren Grainger-Monsen and Nicole Newnham. Associate Producer for Helianthus Media. Mildred Cho, PhD. Alan Leshner, PhD. David Magnus, PhD. Tom Raffin, MD. Hilda Cardona, RN. Christie and Jackie Falco. William A. Gahl, MD, PhD. Gretchen Golas, MSN, CRNP. HPS Network Puerto Rico. Kevin O’Brien, CNP. Sharon Terry, MA. The entire HPS community. The Arthur Vining Davis Foundations. Stanford Center for Integration of. Research on Genetics and Ethics. National Institutes of Health.

3

Learn More - RARE

http://www.helianthusmedia.org/learn-more.html

Learn more about Hermansky-Pudlak Syndrome. Hermansky-Pudlak Syndrome (HPS) is a genetic metabolic disorder which causes albinism, visual impairment, and a platelet dysfunction with prolonged bleeding. Learn about HPS and join the network at www.hpsnetwork.org. Support the HPS community by purchasing your “Dare to be RARE” t-shirt.

4

News - RARE

http://www.helianthusmedia.org/news.html

RARE MAKES FOX NEWS. April 12, 2012. After an incredible screening at the Brooklyn Girl Film Festival. Woman educates others about being "Rare.". Watch the video here. DR WILLIAM GAHL ON 60 MINUTES. May 21, 2012. Dr William Gahl, one of the main subjects of our film RARE, was profiled on 60 minutes. He is described as "one of the last, best hopes for people suffering from rare, debilitating, and undiagnosed medical conditions.". Watch the video clip.

5

Screenings & Broadcast - RARE

http://www.helianthusmedia.org/screenings--broadcast.html

June 4, 2012 - 7:00pm. Find out more here! Winner "Best Feature Film". Brooklyn Girl Film Festival. March 31, 2012 - 2:00pm. Find out more here! Cannes 2012 Market Screening. May 23, 2012 - 10:00am. Screening Location: Palais D. NIH Science Education Annual Conference. March 14, 2012. RARE will be broadcast on National Public Television stations through NETA starting August 2012. Check back frequently for updated broadcast times and events. August 12, 2012 (Sun) at 3:00pm. August 15, 2012 (Wed) at 8:00pm.

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