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Help Fragile X, Help Cole

Help Fragile X, Help Cole. Saturday, August 11, 2012. Time Flies, My Fraggles are growing up. It has been a few month since Cole had his first seizure and was hospitalized. I think the seizure had a greater effect on the rest of us more than Cole. For me it was a reminder of just how fragile life is. A lesson I thought I knew well. We all become comfortable in our circumstances. Forgetting that life does and can happen to us or to the ones we love. Cale started to school and went for two weeks before the...

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Help Fragile X, Help Cole | helpfragilexhelpcole.blogspot.com Reviews
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Help Fragile X, Help Cole. Saturday, August 11, 2012. Time Flies, My Fraggles are growing up. It has been a few month since Cole had his first seizure and was hospitalized. I think the seizure had a greater effect on the rest of us more than Cole. For me it was a reminder of just how fragile life is. A lesson I thought I knew well. We all become comfortable in our circumstances. Forgetting that life does and can happen to us or to the ones we love. Cale started to school and went for two weeks before the...
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Help Fragile X, Help Cole | helpfragilexhelpcole.blogspot.com Reviews

https://helpfragilexhelpcole.blogspot.com

Help Fragile X, Help Cole. Saturday, August 11, 2012. Time Flies, My Fraggles are growing up. It has been a few month since Cole had his first seizure and was hospitalized. I think the seizure had a greater effect on the rest of us more than Cole. For me it was a reminder of just how fragile life is. A lesson I thought I knew well. We all become comfortable in our circumstances. Forgetting that life does and can happen to us or to the ones we love. Cale started to school and went for two weeks before the...

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1

Help Fragile X, Help Cole: April 2011

http://helpfragilexhelpcole.blogspot.com/2011_04_01_archive.html

Help Fragile X, Help Cole. Thursday, April 7, 2011. Cole and Cale were our guests Friday night, giving us need for some of those energy boosting drinks. They are so energetic, but I guess all 3 and 5 year olds are. From the moment Brandi opens the van doors it is a chorus of "Granny, Pappy, Granny, Pappy and then directly to the swings. Last week I wrote of the increase in Cole's vocabulary and how it continues to grow. Although it has only been a week since he was last here his use of words in phras...

2

Help Fragile X, Help Cole: Blessings

http://helpfragilexhelpcole.blogspot.com/2012/03/blessings.html

Help Fragile X, Help Cole. Saturday, March 24, 2012. A good friend ask me how Chris, Brandi and the Kids were doing this week. He expressed how blessed he was that his family was healthy and doing well. Their developmental disorder, Fragile X, is a condition not a a disease. I hope that I never look at them as not being healthy again. I hope that the world will one day not look at them as if they are unhealthy. My friend is truly blessed with a great family, but so are we. He finally ask for some "coke"&...

3

Help Fragile X, Help Cole: October 2010

http://helpfragilexhelpcole.blogspot.com/2010_10_01_archive.html

Help Fragile X, Help Cole. Friday, October 22, 2010. As you can see by the photos, Cole-man may well find the cure himself. The little fellow has been to the doctor's office so much he knows the routines. Funniest thing is to see him blow on that stethoscope before he puts it on your chest. Just like a good doctor does. He is spending the week with his Nana and Papaw this week. So we want get to see him. Check it out if you get a chance. Posted by Jim Baker. Sunday, October 17, 2010. His newest word is "...

4

Help Fragile X, Help Cole: September 2011

http://helpfragilexhelpcole.blogspot.com/2011_09_01_archive.html

Help Fragile X, Help Cole. Sunday, September 18, 2011. I want to go home in Daddy's truck. Sometimes the smallest of moments give the greatest amount of hope. Friday night produced one of those moments. Cole, Cale and Erin came to the house while their Mommy and Daddy went out to celebrate Brandi's Mima's birthday. Cole showed Marcia how he exercised at school. He got on the floor and said "exercise" then laid no his back and made like he was pedaling a bike. When someone said, "lets go", Cole spoke up c...

5

Help Fragile X, Help Cole

http://helpfragilexhelpcole.blogspot.com/2012/03/i-walked-up-stairs-last-night-to-peak.html

Help Fragile X, Help Cole. Friday, March 2, 2012. I walked up the stairs last night to peak into Marcia's upstairs lair before going to bed. When I open the door the first thing I saw was the light switch. The light switch was not so special just a white plastic plate. But it was surrounded by hundreds of dirty little smudges. Finger prints from the little hands of Cale and Cole. Seems life is continually re-arranging your dreams, opportunities and possibilities. Enough Grandpa philosophy . Cale's vocabu...

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My Child has Fragile X, Now What?: July 2011

http://mychildhasfragilexnowwhat.blogspot.com/2011_07_01_archive.html

My Child has Fragile X, Now What? Fragile X Syndrome is the leading cause of inherited developmental and mental impairment. Saturday, July 30, 2011. Links to this post. Tuesday, July 26, 2011. When Cody's dad moved out, he skipped town. He said he had to get away to recover from our breakup. Like it was so tragic. Well it was tragic for me and Cody. Not because Phil moved out, that was refreshing. I was freaking on what to do with Cody when I worked? Links to this post. Thursday, July 21, 2011. Oh yeah, ...

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My Child has Fragile X, Now What?: 13th International Fragile X Conference in Miami

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My Child has Fragile X, Now What? Fragile X Syndrome is the leading cause of inherited developmental and mental impairment. Monday, November 28, 2011. 13th International Fragile X Conference in Miami. International Fragile X Conference in Miami, Florida July 25– 29, 2012. For Information and Updates click here! Subscribe to: Post Comments (Atom). Fishers, Indiana, United States. View my complete profile. 13th International Fragile X Conference in Miami. The Fragile X Files. Help Fragile X, Help Cole.

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My Child has Fragile X, Now What?: October 2011

http://mychildhasfragilexnowwhat.blogspot.com/2011_10_01_archive.html

My Child has Fragile X, Now What? Fragile X Syndrome is the leading cause of inherited developmental and mental impairment. Sunday, October 16, 2011. Cody at 10 Months. Around the time my child Cody was 10 months old, the times that he behaved like all the other babies his age became few and far between. Now what? Central. He would start biting the side of his index finger (Jupiter), and then begin crying and swinging his arms, knocking the spoon out of my hand, grabbing my hair, spitting whatever go...

mychildhasfragilexnowwhat.blogspot.com mychildhasfragilexnowwhat.blogspot.com

My Child has Fragile X, Now What?: March 2012

http://mychildhasfragilexnowwhat.blogspot.com/2012_03_01_archive.html

My Child has Fragile X, Now What? Fragile X Syndrome is the leading cause of inherited developmental and mental impairment. Saturday, March 3, 2012. Fragile X: Diagnosis and Treatment. Fragile X: Diagnosis and Treatment. Links to this post. Subscribe to: Posts (Atom). Fishers, Indiana, United States. View my complete profile. Fragile X: Diagnosis and Treatment. The Fragile X Files. Help Fragile X, Help Cole. National Fragile X Foundation News. Links to Fragile X Sites. National Fragile X Foundation.

mychildhasfragilexnowwhat.blogspot.com mychildhasfragilexnowwhat.blogspot.com

My Child has Fragile X, Now What?: Lets get this story started....................

http://mychildhasfragilexnowwhat.blogspot.com/2011/07/lets-get-this-story-started.html

My Child has Fragile X, Now What? Fragile X Syndrome is the leading cause of inherited developmental and mental impairment. Tuesday, July 12, 2011. Lets get this story started. First of all, I'd like to introduce myself. My name's Gidget and I'm a single Mom living in Fishers, Indiana with my three kids, Cody, Emilie, and JB. August 4, 2011 at 11:55 AM. Wow is this a ramble or what? What measures are in place for when something happens to you? How have you helped him to understand those steps? This would...

mychildhasfragilexnowwhat.blogspot.com mychildhasfragilexnowwhat.blogspot.com

My Child has Fragile X, Now What?: Cody at 10 Months

http://mychildhasfragilexnowwhat.blogspot.com/2011/10/around-time-cody-was-10-months-old.html

My Child has Fragile X, Now What? Fragile X Syndrome is the leading cause of inherited developmental and mental impairment. Sunday, October 16, 2011. Cody at 10 Months. Around the time my child Cody was 10 months old, the times that he behaved like all the other babies his age became few and far between. Now what? Central. He would start biting the side of his index finger (Jupiter), and then begin crying and swinging his arms, knocking the spoon out of my hand, grabbing my hair, spitting whatever go...

mychildhasfragilexnowwhat.blogspot.com mychildhasfragilexnowwhat.blogspot.com

My Child has Fragile X, Now What?: December 2011

http://mychildhasfragilexnowwhat.blogspot.com/2011_12_01_archive.html

My Child has Fragile X, Now What? Fragile X Syndrome is the leading cause of inherited developmental and mental impairment. Thursday, December 22, 2011. I decided to start with Cody's eyes. His eyes were crossed mostly or just a blank stare. What was he thinking, why wouldn't he look directly at me? Shit there are a list of things, but these are the first of many others. (to be continued). Links to this post. Subscribe to: Posts (Atom). Fishers, Indiana, United States. View my complete profile. Around th...

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My Child has Fragile X, Now What?: September 2011

http://mychildhasfragilexnowwhat.blogspot.com/2011_09_01_archive.html

My Child has Fragile X, Now What? Fragile X Syndrome is the leading cause of inherited developmental and mental impairment. Tuesday, September 6, 2011. Which leads me to my next post about Cody.Guilt? I haven’t really written much for a while, and I’m sorry! For starters, I’m shitty with my generation, "the baby boomers." Although we have the best excuse for being assholes, (our parents), why do we have to repeat? What are they going to do about Peace on earth damn it! Read it from the beginning. First o...

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My Child has Fragile X, Now What?

http://mychildhasfragilexnowwhat.blogspot.com/2011/08/blog-post.html

My Child has Fragile X, Now What? Fragile X Syndrome is the leading cause of inherited developmental and mental impairment. Thursday, August 4, 2011. Subscribe to: Post Comments (Atom). Fishers, Indiana, United States. View my complete profile. An Important message for the parents of FX kids. Denial, Depression, and Dilemmas. The Fragile X Files. Help Fragile X, Help Cole. National Fragile X Foundation News. Links to Fragile X Sites. National Fragile X Foundation. International Fragile X Support Groups.

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Help Fragile X, Help Cole

Help Fragile X, Help Cole. Saturday, August 11, 2012. Time Flies, My Fraggles are growing up. It has been a few month since Cole had his first seizure and was hospitalized. I think the seizure had a greater effect on the rest of us more than Cole. For me it was a reminder of just how fragile life is. A lesson I thought I knew well. We all become comfortable in our circumstances. Forgetting that life does and can happen to us or to the ones we love. Cale started to school and went for two weeks before the...

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