My name is Logan Vachon. I am a one year old and I have been diagnosed with a very rare genetic disorder called Nephropathic Cystinosis.Cystinosis is a rare, genetic metabolic disease that causes the amino acid cystine to accumulate in various organs of the body. Without specific treatment, children with Cystinosis develop end stage kidney failure…
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HelpLogan.org | Supporting Logan's fight against Cystinosis | helplogan.org Reviews
https://helplogan.org
My name is Logan Vachon. I am a one year old and I have been diagnosed with a very rare genetic disorder called Nephropathic Cystinosis.Cystinosis is a rare, genetic metabolic disease that causes the amino acid cystine to accumulate in various organs of the body. Without specific treatment, children with Cystinosis develop end stage kidney failure…
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Blog Posts | HelpLogan.org | Supporting Logan's fight against Cystinosis
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Supporting Logan's fight against Cystinosis. Meet Logan’s Parents. Meet Melanie, Logan’s Mom. Continue reading →. Meet Nathan, Logan’s father. Dad's Blog Posts. Mom's Blog Posts. Follow Blog via Email. Enter your email address to follow this blog and receive notifications of new posts by email. Join 3 other followers. Blog at WordPress.com. Create a free website or blog at WordPress.com. Follow “HelpLogan.org”. Get every new post delivered to your Inbox. Build a website with WordPress.com.
HelpLogan.org | Supporting Logan's fight against Cystinosis
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Supporting Logan's fight against Cystinosis. Meet Logan’s Parents. My name is Logan Vachon. I am a one year old and I have been diagnosed with a very rare genetic disorder called Nephropathic Cystinosis. One thought on “ Logan’s Story. September 18, 2013 at 1:15 pm. We will help you in every way we can. May you be blessed by giving to little Logan’s road to health. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public).
Donate Via PayPal | HelpLogan.org
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Supporting Logan's fight against Cystinosis. Meet Logan’s Parents. Anything you can do to help us give Logan the care that he needs would be greatly appreciated! Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. You are commenting using your Facebook account. ( Log Out. Dad's Blog Posts.
Meet Mom | HelpLogan.org
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Supporting Logan's fight against Cystinosis. Meet Logan’s Parents. September 17, 2013. Meet Melanie, Logan’s Mom. September 17, 2013. In Mom's Blog Posts. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. You are commenting using your Facebook account. ( Log Out. Notify me of new comments via email.
About Cystinosis | HelpLogan.org
http://helplogan.org/about-cystinosis
Supporting Logan's fight against Cystinosis. Meet Logan’s Parents. Cystinosis is a rare, genetic metabolic disease that causes the amino acid cystine to accumulate in various organs of the body. Without specific treatment, children with Cystinosis develop end stage kidney failure at approximately age nine. The availability of cysteamine medical therapy has dramatically improved the natural history of cystinosis, so that well-treated cystinosis patients can live into adulthood. Leave a Reply Cancel reply.
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HelpLogan.org | Supporting Logan's fight against Cystinosis
Supporting Logan's fight against Cystinosis. Meet Logan’s Parents. My name is Logan Vachon. I am a one year old and I have been diagnosed with a very rare genetic disorder called Nephropathic Cystinosis. One thought on “ Logan’s Story. September 18, 2013 at 1:15 pm. We will help you in every way we can. May you be blessed by giving to little Logan’s road to health. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public).
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