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Gastroparesis and Ehlers-Danlos SyndromeLiving with Gastroparesis and EDS
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Living with Gastroparesis and EDS
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Living with Gastroparesis and EDS
Gastroparesis and Ehlers-Danlos Syndrome: Photos
http://helpme-minx.blogspot.com/p/photos.html
Gastroparesis and Ehlers-Danlos Syndrome. My experiences of living with Gastroparesis and EDS. Written from the heart in the hope that one day things will change. What is a functional disorder? TPN (Total Parenteral Nutrition). Here is my gallery of photos from tests to surgery, I decided to post these to help other people like me to come to terms with what's happening to their bodies and what to expect if you are faced with the same decisions. Back when it was possible to eat a pork pie! More testing : (.
Gastroparesis and Ehlers-Danlos Syndrome: Diary: Part 3
http://helpme-minx.blogspot.com/p/diary-2011-septdec.html
Gastroparesis and Ehlers-Danlos Syndrome. My experiences of living with Gastroparesis and EDS. Written from the heart in the hope that one day things will change. What is a functional disorder? TPN (Total Parenteral Nutrition). Please scroll to the bottom of the page for the most recent diary entry x. Thursday 15th September 2011. Well, my body is officially confused.com! This may not be so bad if everything else was going well, but that would be too easy! Sunday 18 September 2011. I was just missing the...
Gastroparesis and Ehlers-Danlos Syndrome: Diary: Part 4
http://helpme-minx.blogspot.com/p/life-after-diagn.html
Gastroparesis and Ehlers-Danlos Syndrome. My experiences of living with Gastroparesis and EDS. Written from the heart in the hope that one day things will change. What is a functional disorder? TPN (Total Parenteral Nutrition). Please scroll to the bottom of the page for the most recent diary entry x. Tuesday 3rd January 2012. Happy New year to everyone! Christmas was tough again this year but I'm am so grateful I was able to get through it without spoiling it for everyone! But it may take a while before...
Gastroparesis and Ehlers-Danlos Syndrome: TPN (Total Parenteral Nutrition)
http://helpme-minx.blogspot.com/p/tpn-total-parenteral-nutrition.html
Gastroparesis and Ehlers-Danlos Syndrome. My experiences of living with Gastroparesis and EDS. Written from the heart in the hope that one day things will change. What is a functional disorder? TPN (Total Parenteral Nutrition). TPN (Total Parenteral Nutrition). Not every hospital has the facilities to train patients how to administer HPN, so a referral to one of the regional nutritional centres will be required. Your consultant will arrange this for you. The initial stage of commencing HPN is a lengthy p...
Gastroparesis and Ehlers-Danlos Syndrome: Tube Feeding Guide
http://helpme-minx.blogspot.com/p/how-to-set-up-feed-pump.html
Gastroparesis and Ehlers-Danlos Syndrome. My experiences of living with Gastroparesis and EDS. Written from the heart in the hope that one day things will change. What is a functional disorder? TPN (Total Parenteral Nutrition). That doesn't mean you will always feel like that, you are stronger than you know.really you are! Naso-Gastric feeding and Naso-Jejunal feeding tubes are usually used as a short term treatment option whereas the PEG and PEJ tubes are for long term use. Naso-Jejunal and PEJ tubes fe...
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The Myasthenia Kid .....: The dogs in my life part two
http://themyastheniakid.blogspot.com/2015/08/the-dogs-in-my-life-part-two.html
The Myasthenia Kid . Life with possibly undiagnosed Myasthenia Gravis, diagnosed severe autonomic dysfunction and Ehlers Danlos Syndrome hypermobility type. Thursday, 6 August 2015. The dogs in my life part two. See the first part of the post here : The dogs in my life part one. Last time I had introduced you to Mollie our oldest Weimaraner who will be 11 in November. She still behaves like a puppy and the vets can never get over how good she looks for a nearly 11 year old dog. Mollie asleep on my bed.
The Myasthenia Kid .....: 100th Post
http://themyastheniakid.blogspot.com/2011/06/100th-post.html
The Myasthenia Kid . Life with possibly undiagnosed Myasthenia Gravis, diagnosed severe autonomic dysfunction and Ehlers Danlos Syndrome hypermobility type. Thursday, 9 June 2011. Today is my 100th post and what a journey we have been on together. There have been highs and there have been lows! However I have finally reached a landmark in blog posts and I have had very nearly 2,000 views on my blog. Unfortunately recently the bad days have been increasing, I want to throw pity parties practically every o...
The Myasthenia Kid .....: August 2015
http://themyastheniakid.blogspot.com/2015_08_01_archive.html
The Myasthenia Kid . Life with possibly undiagnosed Myasthenia Gravis, diagnosed severe autonomic dysfunction and Ehlers Danlos Syndrome hypermobility type. Thursday, 27 August 2015. Just another quick update. Blog post by Donna. The slides that accompanied the talk can be found here. The first part of the talk appears to have been about collecting labels.obviously at some point the words collecting labels has been switched for syndromes. I need to end this blog post on a high so I am happy to announce t...
Living with Gastroparesis » Doctors
http://livingwithgp.com/doctors
People don't cry because they are weak, but because they have been strong for too long. Setting up a Tube Feed. Total Parenteral Nutrition (TPN). Who I know are fighting for my health and are well educated in the disease of gastroparesis. For those who are looking for specialists in this field, consider contacting them. Dr Patterson is my gastroenterologist. Dr Aurora is my migraine specialist. Dr Thirlby was the surgeon. Dr Siegal is my interventional radiologist. Dr Chang was the surgeon. From an endos...
Living with Gastroparesis » GES Experience
http://livingwithgp.com/experiences/ges-experience
People don't cry because they are weak, but because they have been strong for too long. Setting up a Tube Feed. Total Parenteral Nutrition (TPN). I arrived for my second GES. The test does not hurt, you feel nothing. It is like an x-ray. After the picture is taken. You leave for an hour, until you are needed for your next picture. My Results from 2009:. Results from July 2011:. Posted by Kirby in on August 21, 2011. Mail (will not be published) (required). Shop through Amazon here to help support my site!
Living with Gastroparesis » Infections
http://livingwithgp.com/experiences/complications/infections
People don't cry because they are weak, but because they have been strong for too long. Setting up a Tube Feed. Total Parenteral Nutrition (TPN). May 21, 2010. July 7, 2010. My tube has recently gotten infected and I am back on antibiotics. Hopefully it clears up before my second attempt for a button, surgery. August 1, 2010. Posted by Kirby in on August 19, 2010. Mail (will not be published) (required). Shop through Amazon here to help support my site! For those who left comments. Kirby's GP Shop.
Living with Gastroparesis » Setting up TPN
http://livingwithgp.com/experiences/tpn/setting-up-tpn
People don't cry because they are weak, but because they have been strong for too long. Setting up a Tube Feed. Total Parenteral Nutrition (TPN). This is how I setup my TPN session. Supplies needed for a night of TPN: Tubing, Alcohol wipes, 2 new syringes, Vitamin vials, TPN bag, Blue mat. Time to clean the vials and ports that will come in contact with my line. You MUST scrub for 15-30 seconds for every new connection*. Quite exciting, I know. For the most part it will fill itself up to the 5mL line but...
Living with Gastroparesis » Medications
http://livingwithgp.com/experiences/medications
People don't cry because they are weak, but because they have been strong for too long. Setting up a Tube Feed. Total Parenteral Nutrition (TPN). When it was first suspected that I might have a gastrointestinal disorder, they first did an EGD (upper endoscopy). It came back normal, besides a positive test for Barrett’s Esophagus. First round of motility drugs started, in hopes it would stimulate my stomach to empty. I was started on Reglan. After I got off Reglan, I was tried on Erythromycin. Erythromyci...
Living with Gastroparesis » Button
http://livingwithgp.com/experiences/tubes/button
People don't cry because they are weak, but because they have been strong for too long. Setting up a Tube Feed. Total Parenteral Nutrition (TPN). After many months of waiting and some surgical complications, I was fitted with my Mic-key balloon button on the 27th of July. I could not be happier with it. Since my surgical tube was placed so far down my intestine, it was no longer accessible via endoscopy, and had to be changed, placed and measured through Interventional Radiology. After I was measured for...
Living with Gastroparesis » Patient Stories
http://livingwithgp.com/patient-stories
People don't cry because they are weak, but because they have been strong for too long. Setting up a Tube Feed. Total Parenteral Nutrition (TPN). If you would like to share your personal story with GP/CIP or any other gastrointestinal disease, please E-mail me and I will post it for you here. Also check out the VIDEOS. That were made to promote DTP awareness by sharing experiences! Posted by Kirby in on September 24, 2011. You did a really great job with this post. November 4th, 2011 at 6:24 AM. My husba...
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Gastroparesis and Ehlers-Danlos Syndrome
Gastroparesis and Ehlers-Danlos Syndrome. My experiences of living with Gastroparesis and EDS. Written from the heart in the hope that one day things will change. What is a functional disorder? TPN (Total Parenteral Nutrition). Thursday, 14 December 2017. Cranio-Cervical Instability Part #3. To sum up the last post in a few words, the diagnostic term for my neck issues is, Cranio-Cervical Instability. Naturally our next question was, "What can we do about it and what does it mean for the future? He welco...
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