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Grey's Gift: January 2010
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Help me celebrate Grey's Gifts. Life is short, but sweet for certain. Saturday, January 30, 2010. The Week In Review. This week has been a pretty busy, emotional week. Not a day, not an hour, has gone by without my mind constantly wondering back to my little man. How can we not feel honored to be able to use Grey's loss to save others? The answer came easily. We put it on our calendar. Hunter's Hope also mentioned the possibility of us having an Every Step Walk. As many of you know, Bill and ...Tuesday a...
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Grey's Gift: Convinced
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Help me celebrate Grey's Gifts. Life is short, but sweet for certain. Saturday, January 1, 2011. Don't talk to me about statistics. It seems as though, as a family, we have always defied the odds. Once Bill and I found out that we were not only carriers of Krabbe Disease, but that we possessed the same exact mutation, we knew that our next step was to find out the boys' carrier status. We started the process over Christmas Break. Are you kidding me? Life is all about perspective, right?
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Grey's Gift: June 2010
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Help me celebrate Grey's Gifts. Life is short, but sweet for certain. Wednesday, June 30, 2010. Grey's Quilt - By Dea Heller. Dea - a thousand thank-yous. How you captured Grey's spirit and pieced it together, I'll never know. I'm just glad he led me to you. Tuesday, June 29, 2010. Please click on the link below. This is what untreated PKU looks like. We had NO idea! Because, thankfully for us, this is what healthy PKU looks like. Friday, June 18, 2010. To take "Every Step" with us. Tuesday, June 15, 2010.
greysgift.blogspot.com
Grey's Gift: Please Take Every Step With Me
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Help me celebrate Grey's Gifts. Life is short, but sweet for certain. Tuesday, May 31, 2011. Please Take Every Step With Me. Every child, in every state, needs to be tested for every disease possible. It is estimated that thousands of children die or become permanently disabled every year because they are born in the wrong state. Please join me as I continue to educate and advocate for the importance of Universal Newborn Screening. Take every step with me, in memory of Grey. Click here to sponsor me.
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Grey's Gift: October 2010
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Help me celebrate Grey's Gifts. Life is short, but sweet for certain. Sunday, October 10, 2010. What Are The Odds? Many of you know that when we tried to get a confirmation of Krabbe through Grey's blood, the blood was destroyed by the lab on accident and that Grey died before they were able to let us know. And many of you know that our confirmation of Krabbe came weeks after Grey's death through an autospy revealing globoid cells in the white matter of his brain. What if he didn't have Krabbe? But, ther...
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Grey's Gift: August 2011
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Help me celebrate Grey's Gifts. Life is short, but sweet for certain. Thursday, August 4, 2011. Have you ever had a movie change your life? Obviously, nothing can change you if you're not ready for it. But in my mind, every action has a reason. It's almost as if the last two years led me to a scene in A Single Man. The scene is below. I'd ask you to watch it before you continue reading. I cried because I felt connected to him. I cried because he was me. A mother fighting for her son's life.
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Grey's Gift: Reflections
http://greysgift.blogspot.com/2011/08/reflections.html
Help me celebrate Grey's Gifts. Life is short, but sweet for certain. Thursday, August 4, 2011. Have you ever had a movie change your life? Obviously, nothing can change you if you're not ready for it. But in my mind, every action has a reason. It's almost as if the last two years led me to a scene in A Single Man. The scene is below. I'd ask you to watch it before you continue reading. I cried because I felt connected to him. I cried because he was me. A mother fighting for her son's life.
greysgift.blogspot.com
Grey's Gift: Hello Again
http://greysgift.blogspot.com/2012/08/hello-again.html
Help me celebrate Grey's Gifts. Life is short, but sweet for certain. Friday, August 24, 2012. It has been over a year since I have blogged. That's a long time. A lot can happen in a year. First off, I am proud to say that by my 40th birthday I managed to lose 40 pounds! I also have become an avid runner (I know, I can't believe it either)! I still have a few more pounds to go and a few more areas to tone, but all in all I feel that I'm in the best shape that I've been in since high school.
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Grey's Gift: February 2010
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Help me celebrate Grey's Gifts. Life is short, but sweet for certain. Thursday, February 25, 2010. One year, two months, one week, and six days. I have to realize that it is not reasonable for me to believe that I can save the world from this horrible disease. I gave it a good run, accomplished things that many have not. But, for now, I have to walk away. I have to be still. One year, two months, one week, and six days. It's time to be still, to listen, to live. Monday, February 22, 2010. Some people los...
