jo-liveyourlife.blogspot.com
Live Your Life: March 2015
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Living my life with Cystic Fibrosis. Me and My CF. Donor Cards- Have You Got Yours Yet? Monday, 9 March 2015. So, the problem is is that whenever I know my Brompton appointment is in a few days I get stressed out. Usually the day before the appointment is when Alex, my family and even the dog notice it. This stressed out state will continue throughout the whole day of the appointment and calm down a day or 2 after it. So that's about 3 days of stress for just one appointment. Crazy! There's something I n...
jo-liveyourlife.blogspot.com
Live Your Life: Changes
http://jo-liveyourlife.blogspot.com/2015/03/changes.html
Living my life with Cystic Fibrosis. Me and My CF. Donor Cards- Have You Got Yours Yet? Monday, 9 March 2015. So, the problem is is that whenever I know my Brompton appointment is in a few days I get stressed out. Usually the day before the appointment is when Alex, my family and even the dog notice it. This stressed out state will continue throughout the whole day of the appointment and calm down a day or 2 after it. So that's about 3 days of stress for just one appointment. Crazy! There's something I n...
jo-liveyourlife.blogspot.com
Live Your Life: April 2015
http://jo-liveyourlife.blogspot.com/2015_04_01_archive.html
Living my life with Cystic Fibrosis. Me and My CF. Donor Cards- Have You Got Yours Yet? Monday, 27 April 2015. First official Frimley appointment. Friday I had my first official appointment under Frimley Park hospital's care. I know it's not fair to compare the two hospitals because Frimley has such a small unit compared to the Brompton, but it was hard not to! Great parking, no queue times, people who had time for me, it was a welcome change :). I'm sure most people with CF would say the same thing.
jo-liveyourlife.blogspot.com
Live Your Life: Donor Cards- Have You Got Yours Yet?
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Living my life with Cystic Fibrosis. Me and My CF. Donor Cards- Have You Got Yours Yet? Donor Cards- Have You Got Yours Yet? Having a donor card means that you are on the donor register and when you die, you give permission for up to 7 people in need to use part of your body. For example your heart, lungs, kidneys or body tissue. This 30 second application could save a life when you pass on. Http:/ www.uktransplant.org.uk/ukt/how to become a donor/how to become a donor.jsp. My sister's boyfriend Matt.
jo-liveyourlife.blogspot.com
Live Your Life: Baby's arrived!
http://jo-liveyourlife.blogspot.com/2015/02/babys-arrived.html
Living my life with Cystic Fibrosis. Me and My CF. Donor Cards- Have You Got Yours Yet? Sunday, 1 February 2015. Finished my IVs on Friday after a 3 week course. So glad to have some energy back. Not sure what my lung function is as had a nightmare hospital trip on Friday, so never saw the doctor (CBA to get into that palaver, maybe next post lol). My mum's going to my lung function test for me next week though. The most exciting news this week was the arrival of my new baby cousin, Lucy! This is going t...
jo-liveyourlife.blogspot.com
Live Your Life: "Bucket List"
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Living my life with Cystic Fibrosis. Me and My CF. Donor Cards- Have You Got Yours Yet? See whales in the wild. Hold a live lobster. Learn to play an instrument. Catch a fish (then put it back! Be in the newspaper. Be on the radio. Actually stand up on a surfboard in the sea. Volunteer at a soup kitchen/homeless shelter. Learn how to whistle with my fingers. Get over fear of needles. Watch "The Bucket List" film. See the Northern Lights. Go on a cruise. 7 March 2012 at 08:20. 8 April 2013 at 10:21. 9 Sep...
jo-liveyourlife.blogspot.com
Live Your Life: Weight gain :)
http://jo-liveyourlife.blogspot.com/2015/07/weight-gain.html
Living my life with Cystic Fibrosis. Me and My CF. Donor Cards- Have You Got Yours Yet? Sunday, 26 July 2015. I've managed to avoid IVs for a bit longer! For me, this is great news as I was becoming pretty dependent on them whilst at Brompton because they wouldn't offer anything else. However, at Frimley they are giving me oral meds when I feel I need a little boost, instead of bringing out the big guns (IVs), which I could become resistant to if I have them too often. Barney at the beach. On the groomin...
jo-liveyourlife.blogspot.com
Live Your Life: May 2015
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Living my life with Cystic Fibrosis. Me and My CF. Donor Cards- Have You Got Yours Yet? Tuesday, 19 May 2015. Therefore had my appointment at Frimley. I needed to be there for 9.30 so it was an early start. Usually mornings are better for me, but of course on this one particular morning I would feel like crap- sod's law! I managed to get there though (first time driving myself) and the appointment was going swimmingly. Lung function had surprisingly gone up- might have only been by 1%, but up is UP!
jo-liveyourlife.blogspot.com
Live Your Life: January 2015
http://jo-liveyourlife.blogspot.com/2015_01_01_archive.html
Living my life with Cystic Fibrosis. Me and My CF. Donor Cards- Have You Got Yours Yet? Thursday, 15 January 2015. I seem to need IVs around the same sort of time each year: January, July, September- possibly with a few more in there too. So, as expected, I'm on IVs now. Nearly half way through and starting to feel much better. It was a rocky start this time. I also have enrolled for belly dancing classes lol! Thought it would be a good idea for some gentle exercise, and sounds fun! This is going to be t...
