HOMECARECEOBOOK.COM

madvocator.wordpress.com

Managing Change with Your Medically Fragile Child | madvocator.com

https://madvocator.wordpress.com/2015/06/25/managing-change-with-your-medically-fragile-child

Making a difference through advocacy. Publications, Presentations and Interviews. Home Care CEO book. Managing Change with Your Medically Fragile Child. June 25, 2015. The following was published as part of my Teachable Moments. Blog series for ProMedica HealthConnect. Read more at ProMedica HealthConnect’s website. Dear Tracheostomy: It’s Over. Killing the Unicorn: There Is No Perfection in Parenting →. Leave a Reply Cancel reply. Enter your comment here. Address never made public). Follow Blog via Email.

madvocator.wordpress.com

A Life with Few Answers | madvocator.com

https://madvocator.wordpress.com/2015/06/01/a-life-with-few-answers

Making a difference through advocacy. Publications, Presentations and Interviews. Home Care CEO book. A Life with Few Answers. June 1, 2015. Congenital fiber-type disproportion myopathy is rare. In fact, it is so rare that there are no estimates on just how rare it is. A neuromuscular condition, it affects the muscle fibers and causes weakness that can affect eating, breathing, mobility and posture. Besides my sister and my son, I have never met another person with this debilitating condition. I suspect ...

madvocator.wordpress.com

About Charisse N. Montgomery, M.A., M.Ed., GPAC | madvocator.com

https://madvocator.wordpress.com/about

Making a difference through advocacy. Publications, Presentations and Interviews. Home Care CEO book. About Charisse N. Montgomery, M.A., M.Ed., GPAC. My name is Charisse (Nikki) Montgomery. Like most people, I wear many hats: I am a mother, wife, author and mentor. I am an educator, patient advocate, special needs supermom, and resource gatherer. Raising a child with special needs and empowering other parents have become my mission. For my son, CFTD myopathy has meant:. Medicaid waiver and Medicaid; hom...

madvocator.wordpress.com

madvocator.com | Making a difference through advocacy | Page 2

https://madvocator.wordpress.com/page/2

Making a difference through advocacy. Publications, Presentations and Interviews. Home Care CEO book. Madvocator Advocacy Solutions offers seminars and training sessions on a variety of healthcare and educational advocacy topics for families and healthcare providers. Seminar topics include, but are not limited to, the following:. Becoming your child’s advocate. Preparing for the IEP meeting. Preparing for the waiver evaluation. Setting goals for children with special needs. Beginning a blenderized diet.

madvocator.wordpress.com

Finding my Superpower: On Becoming a Trach Mom | madvocator.com

https://madvocator.wordpress.com/2015/05/02/finding-my-superpower-on-becoming-a-trach-mom

Making a difference through advocacy. Publications, Presentations and Interviews. Home Care CEO book. Finding my Superpower: On Becoming a Trach Mom. May 2, 2015. This article was published in Complex Child e-magazine. 8216;s annual respiratory issue. As I cried about how awful it was that Richie needed a trach, my sister listened patiently. Then she said, You know a trach is not necessarily permanent, right? I didn’t. In the blur of emotions, I had not asked that question. I continued to tell he...Her r...

madvocator.wordpress.com

My Road to Madvocacy | madvocator.com

https://madvocator.wordpress.com/2014/09/04/my-road-to-madvocacy

Making a difference through advocacy. Publications, Presentations and Interviews. Home Care CEO book. My Road to Madvocacy. September 4, 2014. My first experience as an advocate was more than twenty years ago. I greeted my eight-year-old sister Chavon, who had fiber-type disproportion myopathy, as she descended the wheelchair lift on her school bus. It was Halloween, and she was in tears. Who has her candy? I demanded. Who took it? I waited for a few moments. Nine months before my sister passed away at t...

madvocator.wordpress.com

Defying Disability through Education | madvocator.com

https://madvocator.wordpress.com/2015/04/28/defying-disability-through-education

Making a difference through advocacy. Publications, Presentations and Interviews. Home Care CEO book. Defying Disability through Education. April 28, 2015. At three years old, our son reads at a first grade level, has a basic understanding of math concepts like addition and subtraction, and shows great interest in learning new concepts. We reinforce these skills daily by focusing on communication, academics and a love for learning. Creating a setting that makes learning natural and rewarding is the most ...

madvocator.wordpress.com

IMG_1016 | madvocator.com

https://madvocator.wordpress.com/2015/03/24/itestify-my-testimony-for-the-ohio-house-of-reps-finance-commitee/img_1016

Making a difference through advocacy. Publications, Presentations and Interviews. Home Care CEO book. March 24, 2015. At 2592 × 1459. In i Testify: My testimony for the Ohio House of Reps’ Finance Commitee. Testifying before the Ohio House of Representatives Finance Committee about their proposal to end independent provider nursing, March 2015. Or leave a trackback: Trackback URL. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:.

madvocator.wordpress.com

Dear Tracheostomy: It’s Over. | madvocator.com

https://madvocator.wordpress.com/2015/06/25/dear-tracheostomy-its-over

Making a difference through advocacy. Publications, Presentations and Interviews. Home Care CEO book. Dear Tracheostomy: It’s Over. June 25, 2015. This is a goodbye letter I wrote to my son’s trach on the day he was decannulated. His future without you is a little scary, but as always, we will do our best. Everything has its season, they say. Your season with him has ended. November 2, 2011 April 30, 2015. A Life with Few Answers. Managing Change with Your Medically Fragile Child →. Follow Blog via Email.