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Hope for Ellis Rose

Monday, February 4, 2013. Hellloooooo Team Ellis Rose! It has been a year since I have blogged with Ellis updates, and I have decided to bring this bad boy back, since I am sure it will be a year of progress and great news in our fight against CF. I chaired the Breath of Life Gala, and we raised a record breaking $160,000 for the Foundation! Thank you all for your continued support! XOXO Kristina, Levi and Ellis Rose. Thursday, January 12, 2012. Sign up for a Team Ellis Rose shirt! Join Team Ellis Rose.

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Hope for Ellis Rose | hopeforellisrose.blogspot.com Reviews
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Monday, February 4, 2013. Hellloooooo Team Ellis Rose! It has been a year since I have blogged with Ellis updates, and I have decided to bring this bad boy back, since I am sure it will be a year of progress and great news in our fight against CF. I chaired the Breath of Life Gala, and we raised a record breaking $160,000 for the Foundation! Thank you all for your continued support! XOXO Kristina, Levi and Ellis Rose. Thursday, January 12, 2012. Sign up for a Team Ellis Rose shirt! Join Team Ellis Rose.
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Hope for Ellis Rose | hopeforellisrose.blogspot.com Reviews

https://hopeforellisrose.blogspot.com

Monday, February 4, 2013. Hellloooooo Team Ellis Rose! It has been a year since I have blogged with Ellis updates, and I have decided to bring this bad boy back, since I am sure it will be a year of progress and great news in our fight against CF. I chaired the Breath of Life Gala, and we raised a record breaking $160,000 for the Foundation! Thank you all for your continued support! XOXO Kristina, Levi and Ellis Rose. Thursday, January 12, 2012. Sign up for a Team Ellis Rose shirt! Join Team Ellis Rose.

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1

Hope for Ellis Rose: October 2011

http://www.hopeforellisrose.blogspot.com/2011_10_01_archive.html

Tuesday, October 25, 2011. Hello Team Ellis Rose! It has been way to long since I have updated Ellis' blog, and today could not be a better day to share with you how our Ellis is doing. Today, Ellis is one year old! A year ago today, Ellis entered this world at 2:46PM at 6lbs 7ounces and 19 inches. She was perfect (and still is! Now, a year later, Ellis received a great birthday gift from Vertex. This past week, they submitted a New Drug Application for VX-770, now named Kalydeco, to the FDA with hop...

2

Hope for Ellis Rose: January 2012

http://www.hopeforellisrose.blogspot.com/2012_01_01_archive.html

Thursday, January 12, 2012. Sign up for a Team Ellis Rose shirt! Go to http:/ www.customink.com/signup/j86lj37 and add your sizes by March 5th. Also, be sure to register for our team! Tuesday, January 10, 2012. Join Team Ellis Rose. This year we will be walking for a cure at Great Strides on March 24th at the U of A Mall. Please join our team in helping raise funds to support research for cystic fibrosis! Visit my home page and click "Join My Team":. Also, we will have team shirts again! My name is Ellis.

3

Hope for Ellis Rose: Ellis and Her Pounds

http://www.hopeforellisrose.blogspot.com/2011/06/ellis-and-her-pounds.html

Monday, June 27, 2011. Ellis and Her Pounds. Before I started Ellis' pounds the other day, she got a hold of them and had some fun. Gotta love her! Subscribe to: Post Comments (Atom). My name is Ellis. Register for Team Ellis Rose. Thank You for Visiting! Ellis and Her Pounds. Baby Gender Reveal Cake.1 Year Ago. View my complete profile. Awesome Inc. template. Powered by Blogger.

4

Hope for Ellis Rose: May 2011

http://www.hopeforellisrose.blogspot.com/2011_05_01_archive.html

Tuesday, May 24, 2011. A Day at the CF Clinic. This Monday, we took Ellis to the CF Clinic to check up on her health. We go to clinic once a month. The visit lasts for about two hours, and we meet with a physical therapist, social worker, pharmacist, nutritionist, nurse, and pulmonologist (lung doctor). With the physical therapist, we talk about how Ellis is doing with her daily "pounds" and will sometimes get replacement parts, as they can sometime deflate. Monday, May 16, 2011. Tuesday, May 10, 2011.

5

Hope for Ellis Rose: Hello 2013!

http://www.hopeforellisrose.blogspot.com/2013/02/hello-2013.html

Monday, February 4, 2013. Hellloooooo Team Ellis Rose! It has been a year since I have blogged with Ellis updates, and I have decided to bring this bad boy back, since I am sure it will be a year of progress and great news in our fight against CF. I chaired the Breath of Life Gala, and we raised a record breaking $160,000 for the Foundation! Thank you all for your continued support! XOXO Kristina, Levi and Ellis Rose. Subscribe to: Post Comments (Atom). My name is Ellis. Register for Team Ellis Rose.

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Hope for Ellis Rose

Monday, February 4, 2013. Hellloooooo Team Ellis Rose! It has been a year since I have blogged with Ellis updates, and I have decided to bring this bad boy back, since I am sure it will be a year of progress and great news in our fight against CF. I chaired the Breath of Life Gala, and we raised a record breaking $160,000 for the Foundation! Thank you all for your continued support! XOXO Kristina, Levi and Ellis Rose. Thursday, January 12, 2012. Sign up for a Team Ellis Rose shirt! Join Team Ellis Rose.

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Hope for Emma Jewel - God's Gift is a song available now by Hannah Jane Snoots about her daughther Emma.

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