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Life after HLHSLiving life after losing our first child to Hypoplastic Left Heart Syndrome.
http://hopeforhailey.blogspot.com/
Living life after losing our first child to Hypoplastic Left Heart Syndrome.
http://hopeforhailey.blogspot.com/
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Life after HLHS | hopeforhailey.blogspot.com Reviews
https://hopeforhailey.blogspot.com
Living life after losing our first child to Hypoplastic Left Heart Syndrome.
hopeforhailey.blogspot.com
Life after HLHS: 7 Months
http://hopeforhailey.blogspot.com/2011/09/7-months.html
Living life after losing our first child to Hypoplastic Left Heart Syndrome. Saturday, September 17, 2011. I know, I know. Leyna will be 8 months old tomorrow (45 min from now) and I am just now doing this 7 month post. But the flight home was another story. She screamed the whole first flight! 1 hour). But the second flight she was better, I just had to walk her up and down the isles and introducer her to new people! Again, she just soaked up all that attention! As for Leyna, she is doing great! We will...
Life after HLHS: Standing!
http://hopeforhailey.blogspot.com/2011/08/standing.html
Living life after losing our first child to Hypoplastic Left Heart Syndrome. Saturday, August 6, 2011. I also forgot to post this picture of Leyna standing! She stood yesterday for over 2 minutes without any help from us! She's going to be walking soon, oh no! Such a big girl! Subscribe to: Post Comments (Atom). This is our second rainbow baby, Annabelle. She's our 3rd and final baby. We welcomed her into this world on the day after Hailey's 5th birthday. July 19 2014. Our second rainbow baby. Leyna Faye...
Life after HLHS: Tattoos and Pictures
http://hopeforhailey.blogspot.com/2012/04/tattoos-and-pictures.html
Living life after losing our first child to Hypoplastic Left Heart Syndrome. Wednesday, April 25, 2012. I just wanted to do a quick post about our tattoos that we got recently. I got Hailey's actual footprints made into a butterfly and my husband got a replica of an HLHS heart. Here is the one I got. And here is the one Josh got. We sure miss our little girl! But it feels great to have a part of her with us with our tattoos. By the way, she started walking on new years and has been on the go ever since!
Life after HLHS: Hailey's Story
http://hopeforhailey.blogspot.com/2009/12/haileys-story.html
Living life after losing our first child to Hypoplastic Left Heart Syndrome. Sunday, December 20, 2009. It was just after Thanksgiving when I told my husband that I was feeling a little sick. I thought there is no way I'm pregnant, I've been on birth control. But a few days later, the pregnancy test told us something different! We were both surprised, but also VERY excited. We both wanted children but we didn't think we were ready. I guess Hailey told us that it was time, and we were ready. After that da...
Life after HLHS: Been a while.
http://hopeforhailey.blogspot.com/2013/11/been-while_26.html
Living life after losing our first child to Hypoplastic Left Heart Syndrome. Tuesday, November 26, 2013. It's been over a year since I have posted here. But there hasn't been a whole lot to write about since I have taken a huge step back from the CHD world. I still post a few things about here and there on Facebook. But I just needed to take a step back. It's so incredibly hard to see all of the CHD stuff when all I want is my little girl back. Baby #3 will be arriving around July 24 2014! We met at the ...
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out of a new habit: The Weeping
http://outofanewhabit.blogspot.com/2012/04/weeping.html
One moment changes your life forever, and thus is born your new habit. Sunday, April 29, 2012. Available now at my etsy site. Available now at my etsy site. Blog comments powered by Disqus. Join me on Facebook and view all of my art. View my complete profile. Etsy preview - Click to purchase one of my designs here! Apple pancakes - vegan and gluten free! Random Explosion of Thoughts. Valley girl has baby, goes crunchy. Two Girls Go Green. CHD speaks . org /. A blog about (wo)man's best friends.
out of a new habit: August 2011
http://outofanewhabit.blogspot.com/2011_08_01_archive.html
One moment changes your life forever, and thus is born your new habit. Thursday, August 25, 2011. Finn is now 1! I can hardly believe it. Seems like yesterday he was this little teensy peanut. I can hardly believe how much he knows already. I think he's smarter than me. He picks up things that I never would have realized that he was picking up. I caught him brushing his own hair the other day. When I saw it, I said, "are you brushing your own hair? Can you brush mommy's hair? Check out his fish face!
out of a new habit: January 2012
http://outofanewhabit.blogspot.com/2012_01_01_archive.html
One moment changes your life forever, and thus is born your new habit. Saturday, January 28, 2012. 1 3/4 cup almond, hemp or coconut milk. 3/4 cup egg substitute or 3 eggs. Kale leaves (I use about half a bunch but can be adjusted per your likeness). 1/4 cup coconut oil (or olive oil). 1 teaspoon vanilla extract. 2 cups whole wheat flour (I use buckwheat to be gluten free. I also blend flours too. Try quinoa flour or amaranth flour with buckwheat.). 2 teaspoons baking powder. Links to this post.
jaydenssmallheart.blogspot.com
Jayden Chase Taylor: May 2010
http://jaydenssmallheart.blogspot.com/2010_05_01_archive.html
A Special Baby Boy journey with HLHS. Wednesday, May 26, 2010. Getting ready to go home Tuesday. Links to this post. Monday, May 17, 2010. Links to this post. Thursday, May 13, 2010. Links to this post. Sunday, May 9, 2010. Links to this post. Tuesday, May 4, 2010. Thanks for all of the prayers. Links to this post. Subscribe to: Posts (Atom). Mia Grace Marrones Heart Journey. Life as a Heart Momma. Hope for Baby Bennett. HLHS from diagnosis and beyond. Haileys Journey with HLHS. Aly Jean's Special Heart.
Owen's Cloud: 3 years
http://owenscloud.blogspot.com/2015/02/3-years.html
Welcome to the Heartland. Saturday, February 7, 2015. Today is the first day of CHD awareness week. Coarch of the Aortic Arch means his aortic arch is too narrow for blood to pass through. They placed a patch in his aortic arch during his first open heart surgeries to widen it enough for blood to pass through. In order to create blood flow through the body, they do a series of surgeries called The Norwood, The Glenn, and The Fontan. These are temporary fixes and usually the Fontan needs to be revised...
Owen's Cloud: April 2015
http://owenscloud.blogspot.com/2015_04_01_archive.html
Welcome to the Heartland. Thursday, April 30, 2015. This is going to be a longgg post, so bare with me. I was too exhausted to update the blog last night, so this morning I will include all of yesterday and this morning. Once Owen was brought back to his room, we met with Dr. A and his nurse Kate and they said he did amazingly well! This morning the doctors rounded and decided on doing the following today:. Start Owen on Lasix. Remove his Catheter and his ART line. Get up and moving a little bit. The Cat...
Owen's Cloud: Fontan Pre-Op Day
http://owenscloud.blogspot.com/2015/04/fontan-pre-op-day.html
Welcome to the Heartland. Monday, April 27, 2015. Well, I suppose, it's time to get back into the blogging game to keep all of you wonderful prayer/good vibe warriors informed! I'm doing something a little different this time. I've decided to do a "Day in the life of a heart warrior" post. We spent the day at American Family Children's hospital for Owen's pre-op appointments and let me tell you, we didn't have a dull moment! Playing with the model heart while getting his. This is a diagram of Owen's heart.
jaydenssmallheart.blogspot.com
Jayden Chase Taylor: April 2011
http://jaydenssmallheart.blogspot.com/2011_04_01_archive.html
A Special Baby Boy journey with HLHS. Tuesday, April 19, 2011. This little girl her mom has been by my side ever since I find out about Jayden and She has been there with us through his surgery and is still here with us. I cant thank her either for all she has done for us. Barb done the heart walk with us last year and is going to do it this year to. Please help us meet are goal or join Team Jayden Chase. Http:/ heartwalk.kintera.org/charlestonwv/teamjaydenchase. Links to this post. Friday, April 8, 2011.
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Hope for Gus | Searching for a Cure for Duchenne Muscular Dystrophy
Searching for a Cure for Duchenne Muscular Dystrophy. Gus Turned 6 – The Balancing Act (plus a new song! May 12, 2011. It was a mere 5 months ago that I promised to write again soon – seems like only yesterday. But, Duchenne Muscular Dystrophy is a balancing act, and we ended up on one side of the see-saw. We spent the last few months taking care of Gus – we bought a new house – one that’s better for him (not. It was a great birthday! Gus turned 6 yesterday and his disease reminded me that each of those ...
Hope For Gus -
Hope For Gus Ball - Valentine’s in Vegas - 2/15/14 - 7:30 PM - Manchester. Gus is the 8 yr old son of Steve and Tonya Dreher of Peterborough NH. They founded Hope for Gus when he was diagnosed with this progressive, muscle-wasting disorder at age 4. DMD is currently 100% fatal, but the Drehers hope to change that diagnosis. On February 15, 2014 the Hope for Gus Foundation. Will hold its 3rd Annual Hope for Gus Ball, Valentine’s in Vegas. 7:30pm, at the Radisson Hotel Downtown in Manchester NH. Hope for G...
Hope For Gus -
Hope For Gus Ball - Valentine’s in Vegas - 2/15/14 - 7:30 PM - Manchester. Gus is the 8 yr old son of Steve and Tonya Dreher of Peterborough NH. They founded Hope for Gus when he was diagnosed with this progressive, muscle-wasting disorder at age 4. DMD is currently 100% fatal, but the Drehers hope to change that diagnosis. On February 15, 2014 the Hope for Gus Foundation. Will hold its 3rd Annual Hope for Gus Ball, Valentine’s in Vegas. 7:30pm, at the Radisson Hotel Downtown in Manchester NH. Hope for G...
Hope For HAAS
What is the ASC? What is the ASC? HAAS NEEDS YOUR HELP. How your donation will help. What is the ASC? Hawaii Academy of Arts and Science, PO Box 1494, Pahoa HI 96778, Pahoa, Hawaii 96778.
Convoy of Hope - Hagerstown
How You Can Help. Welcome to Convoy of Hope - Hagerstown. About Convoy of Hope:. Hagerstown Convoy of Hope is a huge “carnival-like” event featuring:. 30,000 lbs of groceries. Job and health fair. With prizes and give-aways. Access to dozens of community resources. With inflatable games, entertainment, food and prizes, and lots of other games. And best of all, everything is FREE. To read more about Convoy of Hope International. Will be held on October 3rd, 2014.
Life after HLHS
Living life after losing our first child to Hypoplastic Left Heart Syndrome. Sunday, September 27, 2015. Soalmost 2 years have passed since my last update! We named our precious little girl, Annabelle Faye. She has been the happiest baby we have ever met! It's very rare to hear her cry and she's a great sleeper! She's been absolutely amazing. And Leyna has been the best big sister anyone could ever ask for. She absolutely loves her little sister. Links to this post. Tuesday, November 26, 2013. On the oth...
HopeForHailey.com
HOPE FOR HAILEY
Extreme Make Over Project. Hailey Kent Benefit Fund. This page is set up in honor of a very inspirational girl, Hailey Kent, and her family. Since being diagnosed Hailey has undergone very aggressive chemotherapy and has had several blood transfusions to fight the cancer and help save her life. To learn more about MLL please click the link below. Please View This Special Music Video Tribute for Hailey. Please contact GHKidsEvent@yahoo.com. With any questions, comments or suggestions.
hopeforhaileydunn.blogspot.com
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Tuesday, August 28, 2012. My To Do List. Events to raise reward. Get PI on board. Posted by .ladeebluz@aol.com. Subscribe to: Posts (Atom). My To Do List. Ethereal theme. Powered by Blogger.
hopeforhaileykent.blogspot.com
Hope for Hailey!
Our surrogacy journey to help Hailey! Tuesday, October 19, 2010. Before I get into the update I wanted to post a quick update on donations. Since our last blog update with donations the total was $856.49. Donation from KW $40 (1.46). Total Current donation total is $895.03. I am so very sad for the Kent family. I really hoped after all this heartache that this was going to be a break for them finally! Why do good people have to go through such heartache. Sunday, October 10, 2010. Friday, October 8, 2010.
hopeforhaiti.christembassy.org
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