HOPEFORSONA.ORG
HopeForSona - Cure FOP DiseaseSona is a sweet 7-year-old girl with the crippling genetic disease FOP. Please help us find a cure!
http://www.hopeforsona.org/
Sona is a sweet 7-year-old girl with the crippling genetic disease FOP. Please help us find a cure!
http://www.hopeforsona.org/
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https://hopeforsona.org
Sona is a sweet 7-year-old girl with the crippling genetic disease FOP. Please help us find a cure!
hopeforsona.org
Sona's Story - hopeforsona
http://www.hopeforsona.org/sona-story
Sona is a bright, funny, happy little girl who loves to read, draw and paint, and run quite messy experiments with anything gooey and colorful. Sona has copious, highly specific opinions on Pop Music. She really enjoys playdates with her friends, keeping her little brother Taj in line, and helping-out her guinea pig Pickles. Every day and every dollar counts. Please help us fund crucial research on FOP! Do you like this page?
About FOP - Hope For Sona
http://www.hopeforsona.org/about-fop
Fibrodysplasia Ossifcans Progressiva ( FOP. Is an extremely rare genetic disease in which muscle and connective tissues are replaced by bone. This new bone builds up over time, locking-up good bones and joints in a second skeleton , why FOP is sometimes called. Healthy minds trapped in a prison of bone. FOP is caused by a genetic point mutation: a single DNA letter is wrong on one chromosome. Occurs in 1 out of 2 million people, one of the rarest diseases known to medicine. Presents in childhood and typi...
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Hope for SMA
SMA is the #1 genetic killer of children under the age of two. 1 in every 40 people UNKNOWINGLY carry the gene responsible for SMA. SMA Type 1 babies are unable to hold their head, sit, swallow or breathe and require 24 hour care. The National Institute of Health (NIH) selected SMA as the disease closest to treatment or cure of 600 diseases. Researchers estimate that we are just a few years away from that treatment/cure. Learn More ». Browse our shop for more items. Proceeds benefit Hope for SMA.
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I have come more and more to realize that it is being unwanted that is the worst disease that any human being can ever experience.". Create a free website.
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Wednesday, January 27, 2010. It feels kind of nice. No little eyes peering over my shoulder to look at what I'm reading, no little voice in my head saying, 'you really should be doing something else! Of course, when I have to get up tomorrow, I'll be tired, hungry, and I'll ask myself 'why? Various other things - I've been playing squash - to my own rules, I've discovered! Am trying to learn the real ones, but when I play it my way I win! I've been reading, thinking, working, praying, hoping. The day did...
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HopeForSona - Cure FOP Disease
Help Me Find a Cure For FOP! I’m Sona. I’m seven years old and I have FOP. One of the rarest and most debilitating genetic diseases. FOP turns muscles and ligaments to bone, locking them in place. Eventually, I won’t be able to run or walk, move my arms or talk and eat normally. There is no cure for FOP. Yet there is hope for me and my friends! Exciting research is close to finding treatments for this terrible disease. Please help us fund this critical work! How You Can Help. Holy See (Vatican City State).
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Greetings in the name of Jesus Christ! It is with great joy that we share with you news of the South Sudan Lutheran Church Mission. This organization of Christians from across the U.S. is centered on four principles:. And the Good News of Jesus Christ both in the United States and South Sudan. By actively working to promote just and lasting peace in South Sudan. Including financial assistance for education and care. To the thousands of refugees, orphans, hospitalized and others that are in desperate need.
Welcome to HSDC :: Hope for Special Child
The aim of the Center is to provide. We strive to create a support. Comprehensive care through . To achieve our aim and . What do we do. The Center is a dedicated. Where can you find us:. Hope Special Developmental center HSDC aspires to better prepare its students for mainstream life via personal management, functional academics and society participation for leisure and vocational skill development .We also Provid Holiastic Homoeopathic Healing for there Better cure. 6 days a week. 08:00 am - 07 pm.
hopeforspecialmoms.blogspot.com
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Hope for the Spencer Boys. Brothers diagnosed with XLP2 needing bone marrow transplant. Spencer Boys Night with Bloomington Thunder. PLEASE GO TO WWW.COTAFORTEAMSPENCER.COM FOR ANY FUTURE POSTS AS OF 11/20/14. We will only be updating the COTA website from this date forward. Thank you for your continued support! Austin Day 309 (Wednesday 11/19/14). November 20, 2014. Mason out of the PICU. November 15, 2014. Mason in the PICU Monday 11/10/14. November 11, 2014. Mason Day 180 (Wednesday 10/29/14).
