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how big is yours? - Home | howbigbws.com Reviews

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Donate - how big is yours?

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How you can help. The Beckwith-Wiedemann Syndrome Fund at ALSF is committed to fund research into Beckwith-Wiedemann Syndrome (BWS) and related disorders. This research includes developing and studying a patient registry and repository, developing and studying human cell-based models of BWS, and understanding the genetic and epigenetic changes that lead to BWS and related disorders. Click here to donate now. Contact us at : howbigbws@outlook.com. Https:/ www.facebook.com/groups/78357624606/.

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How you can help - how big is yours?

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How you can help. How you can help? Here are a few questions for you:. Do you feel like helping children today? Do you feel like making a difference for families across the world? Do you feel like saving lives? People work best when we work together. This is not a new concept. This is a call to. Can help spread a message. Can be someone’s superhero today. Can help save a child’s life. HOW BIG IS YOURS? Contact us at : howbigbws@outlook.com. Https:/ www.facebook.com/groups/78357624606/.

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What is BWS? - how big is yours?

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How you can help. What is Beckwith- Wiedemann Syndrome? Beckwith Wiedemann Syndrome is a congenital overgrowth disorder usually present at birth. BWS is characterized by large body size, enlarged organs, macroglossia (enlarged tongue), midline abdominal wall defects (omphalocele/exomphalos, umblicial hernia, diastasis recti), neonatal hypoglycemia and greatly increased risk of childhood cancer, particularly liver and kidney tumors. What causes Beckwith-Wiedemann Syndrome and who is affected? Low blood su...

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April 2016 – BloodSugarEcmoMagik

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Did you have a C-section? Did you have a C-section? I’d love to hear about your experiences as Cesarean Awareness month draws to a close. Please feel free to share in the comments and help other women who may be facing a future section! I had an emergency section and an elective section. My first was very traumatic but it was ultimately the fast acting of the doctors and quick delivery that helped save my daughter’s life as every second counted. Did you have an elective or emergency cesarean? Laurence lo...

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BloodSugarEcmoMagik – Page 2 – Care for Rare

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So, we were lucky enough to be selected as Nûby brand reps last month and were sent a box of products to try out… And, we love them all! Here’s some of our favourites:. What a fab idea this is! Laurence loves fruit and in particular bananas, but what a mess they make. They get slimey fast and he would struggle to hold on to them. The Nibbler is a mesh net that the food goes into and then fixes onto a handle so your little one can get a good grip. Yay! No more sticky banana paws! Yes she uses Tresemmé 😂).

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February 2016 – BloodSugarEcmoMagik

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Rare Disease Day and why it’s important. Happy Rare Disease Day! For more info: Hyperinsulinism. February 29, 2016. More Exciting News for Penelope and Friends. Once that’s underway I am putting all proceeds into making more NICU bags! It’s also Rare Disease Day at the end of the month so I’ve been sharing Penelope’s Hyperinsulism story which will also raise awareness and I’m working on ideas with some lovely BWS mums too. Keep your eyes peeled! February 22, 2016. Follow Blog via Email. Giveaway, review,.

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December 2015 – BloodSugarEcmoMagik

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G is for Penelope. That’s an entire year of six weekly blood tests and twelve weekly ultrasounds done! Last ones this week came back fine. Massive phew and now we can begin to enjoy the Christmas period, finally! I said to Penelope she could have an early Christmas present for being so brave but all she wanted was my necklace. So, G is now for Penelope! Only five and a half years left. 😢. For more information on Beckwith Weidemann please visit http:/ www.howbigbws.com. December 19, 2015. I decided the b...

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how big is yours? - Home

How you can help. Video By: Capture the Moment Media. Contact us at : howbigbws@outlook.com. If you, or someone you love has BWS and you would like additional information or support, please find the biggest online support group in the world here:. Https:/ www.facebook.com/groups/78357624606/. 2:0000.0.0.$text0:0:$0:0" 2016 - Designed by Hailey Rankin. 8203;www.haileyrankin.com.

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