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A journey to HSP/FSP

This blog records my journey to Hereditary Spastic Paraplegia (HSP, also known as Familial Spastic Paraparesis or FSP). I was diagnosed with SPG4 in 2009 when my wife became pregnant with our first child. I currently wear insoles, do daily stretches and weekly Pilates. I take medication for my bladder. I tweet about HSP, RareDisease and other things @munkee74.

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A journey to HSP/FSP | hspjourney.blogspot.com Reviews
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This blog records my journey to Hereditary Spastic Paraplegia (HSP, also known as Familial Spastic Paraparesis or FSP). I was diagnosed with SPG4 in 2009 when my wife became pregnant with our first child. I currently wear insoles, do daily stretches and weekly Pilates. I take medication for my bladder. I tweet about HSP, RareDisease and other things @munkee74.
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A journey to HSP/FSP | hspjourney.blogspot.com Reviews

https://hspjourney.blogspot.com

This blog records my journey to Hereditary Spastic Paraplegia (HSP, also known as Familial Spastic Paraparesis or FSP). I was diagnosed with SPG4 in 2009 when my wife became pregnant with our first child. I currently wear insoles, do daily stretches and weekly Pilates. I take medication for my bladder. I tweet about HSP, RareDisease and other things @munkee74.

INTERNAL PAGES

hspjourney.blogspot.com hspjourney.blogspot.com
1

A journey to HSP/FSP: January 2015

http://hspjourney.blogspot.com/2015_01_01_archive.html

A journey to HSP/FSP. This blog records my journey to Hereditary Spastic Paraplegia (HSP, also known as Familial Spastic Paraplegia or FSP). When my wife became pregnant with our first child we decided to find out if I had inherited HSP to know if there was a chance that our child could have it. I tweet about HSP every now and again @munkee74. Saturday, 17 January 2015. Is HSP a disability? Given my current minor symptoms it is clear that I choose "I do not have a disability". Links to this post. Last ye...

2

A journey to HSP/FSP: August 2015

http://hspjourney.blogspot.com/2015_08_01_archive.html

A journey to HSP/FSP. This blog records my journey to Hereditary Spastic Paraplegia (HSP, also known as Familial Spastic Paraplegia or FSP). When my wife became pregnant with our first child we decided to find out if I had inherited HSP to know if there was a chance that our child could have it. I tweet about HSP every now and again @munkee74. Saturday, 22 August 2015. UK Rare Disease Survey open till sept. I saw this rare disease survey earlier in August, and have completed it myself. Links to this post.

3

A journey to HSP/FSP: June 2015

http://hspjourney.blogspot.com/2015_06_01_archive.html

A journey to HSP/FSP. This blog records my journey to Hereditary Spastic Paraplegia (HSP, also known as Familial Spastic Paraplegia or FSP). When my wife became pregnant with our first child we decided to find out if I had inherited HSP to know if there was a chance that our child could have it. I tweet about HSP every now and again @munkee74. Saturday, 13 June 2015. UK Support Group 2015 AGM. There are two presentations this year:. Links to this post. Thursday, 4 June 2015. 100,000 genome project. Genom...

4

A journey to HSP/FSP: AGM2015: Potato Pants - Ian Bennett

http://hspjourney.blogspot.com/2015/08/agm2015-potato-pants-ian-bennett.html

A journey to HSP/FSP. This blog records my journey to Hereditary Spastic Paraplegia (HSP, also known as Familial Spastic Paraplegia or FSP). When my wife became pregnant with our first child we decided to find out if I had inherited HSP to know if there was a chance that our child could have it. I tweet about HSP every now and again @munkee74. Sunday, 9 August 2015. AGM2015: Potato Pants - Ian Bennett. Developing a common symbol/logo for HSP globally, that will signify alignment and collaboration between...

5

A journey to HSP/FSP: 100,000 genome project

http://hspjourney.blogspot.com/2015/06/100000-genome-project.html

A journey to HSP/FSP. This blog records my journey to Hereditary Spastic Paraplegia (HSP, also known as Familial Spastic Paraplegia or FSP). When my wife became pregnant with our first child we decided to find out if I had inherited HSP to know if there was a chance that our child could have it. I tweet about HSP every now and again @munkee74. Thursday, 4 June 2015. 100,000 genome project. I saw new reports the other month about the 100,000 genome project in England. The site indicates that you are unlik...

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A journey to HSP/FSP

A journey to HSP/FSP. This blog records my journey to Hereditary Spastic Paraplegia (HSP, also known as Familial Spastic Paraparesis or FSP). I was diagnosed with SPG4 in 2009 when my wife became pregnant with our first child. I currently wear insoles, do daily stretches and weekly Pilates. I take medication for my bladder. I tweet about HSP, RareDisease and other things @munkee74. Saturday, 24 March 2018. Living with the enemy. The first chapter "knowing the enemy" is about understanding what people are...

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