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Suomen Huntington Yhdistys ry

Tervetuloa Suomen Huntington–yhdistyksen verkkosivuille! Huntingtonin tauti (HD) on harvinainen, periytyvä neurologinen sairaus. Tämä sivusto on tarkoitettu pääasiassa Suomen Huntington-perheille sekä hoitohenkilökunnalle. Suomen Huntington-yhdistys perustettiin vuonna 1997 perheiden yhteydenpidon ja potilaiden hoidon parantamiseksi. Tällä hetkellä yhdistyksessä on 112 jäsentä. Lue lisää jäseneksi liittymisestä ja jäseneduista täältä. Valtakunnalliset ja kansainväliset yhteydet. Lisäksi olemme osana...

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Suomen Huntington Yhdistys ry | huntington.fi Reviews

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Tervetuloa Suomen Huntington–yhdistyksen verkkosivuille! Huntingtonin tauti (HD) on harvinainen, periytyvä neurologinen sairaus. Tämä sivusto on tarkoitettu pääasiassa Suomen Huntington-perheille sekä hoitohenkilökunnalle. Suomen Huntington-yhdistys perustettiin vuonna 1997 perheiden yhteydenpidon ja potilaiden hoidon parantamiseksi. Tällä hetkellä yhdistyksessä on 112 jäsentä. Lue lisää jäseneksi liittymisestä ja jäseneduista täältä. Valtakunnalliset ja kansainväliset yhteydet. Lisäksi olemme osana...

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Suomen Huntington Yhdistys ry | huntington.fi Reviews

https://huntington.fi

Tervetuloa Suomen Huntington–yhdistyksen verkkosivuille! Huntingtonin tauti (HD) on harvinainen, periytyvä neurologinen sairaus. Tämä sivusto on tarkoitettu pääasiassa Suomen Huntington-perheille sekä hoitohenkilökunnalle. Suomen Huntington-yhdistys perustettiin vuonna 1997 perheiden yhteydenpidon ja potilaiden hoidon parantamiseksi. Tällä hetkellä yhdistyksessä on 112 jäsentä. Lue lisää jäseneksi liittymisestä ja jäseneduista täältä. Valtakunnalliset ja kansainväliset yhteydet. Lisäksi olemme osana...

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huntington.fi

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Suomen Huntington Yhdistys ry- Linkit

http://www.huntington.fi/linkit.php

Neuvonta, muut tukitoiminnat ja tietolähteet. SAIRASTAVAT, RISKISSÄ OLEVAT, GEENIVIRHEEN OMAAVAT MUTTA OIREETTOMAT. Huntingtonpotilaiden diagnostiikka tapahtuu neurologian yksiköissä, myös jatkoseuranta mahdollisuuksien mukaan. Huntington-perheillä on mahdollisuus ottaa yhteyttä myös Suomen Parkinson-liiton sairaanhoitajan ja neurologin neuvontapuhelimeen tai hakeutua neuvolavastaanotolle. Yhteystiedot löytyvät täältä:. Https:/ www.parkinson.fi/neuvontapuhelimet. NUORET, LAPSET, PERHEET. Tietoa Huntingto...

2

Suomen Huntington Yhdistys ry- Neuvonta

http://www.huntington.fi/keskustelu.php

Yhdistyksen sääntömääräinen syyskokous ja valtakunnallinen vertaistapaaminen Oulussa 15. -16.10.2016 Lapland Hotel Oulu, Kirkkokatu 3, 90100 Oulu. Hotelli sijaitsee Oulun keskustassa Tuomiokirkon ja historiallisen Ainolan puiston kupeessa. Huoneiden design on saanut vaikutteita luonnosta ja Lapin tarinoista. Ohjelmassa on pääasiassa vapaata keskustelua toistemme kanssa eli paljon vertaistukea. Yhtä lailla voi tulla vain kuuntelemaan luentoja sekä muiden kertomuksia ja kokemuksia. 12:00 Huoneiden luovutus...

3

Huntington's Disease Association of Finland

http://www.huntington.fi/yhdistys_en.php

Huntington's Disease Association of Finland. Welcome to the website of the Finnish Huntington Association! Huntington's disease (HD) is a rare, inherited neurological disorder. This website is mainly targeted at families in Finland affected by Huntington's disease and their healthcare staff. The Finnish Huntington Association was founded in 1997 to increase communication between families and to improve the care of HD patients. The association currently has around 112 members. HD is a rare disease which a...

4

Suomen Huntington Yhdistys ry- Vertaistuki

http://www.huntington.fi/vertaistuki.php

Suomen Huntington-yhdistys järjestää eri puolilla Suomea aluekahvila-tapaamisia, 1-2 kertaa vuodessa. Tarjolla suolaista ja makeaa kahvin ja teen kanssa, sekä ennen kaikkea vertaistukea. Tavoitteena on suunnitella tapaamisia myös yhdessä osallistujien kanssa, joten otamme toiveita ja ehdotuksia vastaan, niin paikkakunnista kuin sisällöstäkin. Http:/ www.parkinson.fi/palvelut/neuvontapuhelimet. Potilaiden ja omaisten vertaistapaaminen. Suomen Parkinson-liitto järjestää vuosittain vertaistap...

5

Suomen Huntington Yhdistys ry- Yhteystiedot

http://www.huntington.fi/yhteystiedot.php

358 40 3269 273 (iltaisin tai jätä soittopyyntö tekstiviestillä). C/o Suomen Parkinson-liitto ry. Suomen Parkinson-liiton järjestösuunnittelija Jukka Tauriainen. Toimisto: Kumppanuuskeskus, Isokatu 47, 90100 Oulu. 358 40 085 6004. Built by Andrew Waugh Web Consultancy.

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Huntington's Disease Youth Organization - JHD

http://en.hdyo.org/jhd

Sign up to save your choice. Sign in or join HDYO. You are here: Home. Inside you will find a list of resources for families with JHD. You should also look at the links section.Huntingtons Disease Society of America Guide to JHD Huntingtons Society of Canada Guide. Living in a family with JHD. This section is specifically for young people living in a family with Juvenile Huntingtons Disease (JHD), who dont have JHD themselves. As we take a look at some of the concerns young people. The Basics of JHD.

en.hdyo.org

Huntington's Disease Youth Organization - HDYO Youth Service - HDYO Youth Service (Mid-Atlantic US)

http://en.hdyo.org/eve/service

Sign up to save your choice. Sign in or join HDYO. You are here: Home. HDYO Youth Service (Mid-Atlantic US). HDYO Youth Service (Mid-Atlantic US). HDYO has more information about HD available for young people, parents and professionals on our site:. What is a HD youth worker? A HD youth worker is a professional who is there to provide support especially for young people impacted by HD and their families. Briefly tell us about yourself Chandler…. I’m very excited to be on board with HDYO! Support, informa...

en.hdyo.org

Huntington's Disease Youth Organization - News

http://en.hdyo.org/eve/news

Sign up to save your choice. Sign in or join HDYO. You are here: Home. Australia and New Zealand HD Youth Camp 2017! August 1, 2016 We are absolutely delighted to announce that in January 2017 we will be hosting a HD Youth Camp for young people in Australia and New Zealand! This event will be completely free for. Living at risk of HD - Research study for young people. Survey on how young adults affected by or at risk for Huntington’s disease are thinking about future options. HDYO Hot Seat Judit. We are ...

en.hdyo.org

Huntington's Disease Youth Organization - Store

https://en.hdyo.org/eve/store

Sign up to save your choice. Sign in or join HDYO. You are here: Home. Any money we make (once we've paid for the items, shipping and banking fees) will be spent on the organization and for creating new projects. If you want to order large quantities please contact us directly at store@hdyo.org. We ship around the world but all prices are in American Dollars, the final price will be converted by your credit card company. Pack of 10 HDYO wristbands. One color changing cup. Sounds of Woody Guthrie CD.

eurohuntington.org

Membership Directory – European Huntington Association

http://eurohuntington.org/membership-directory

The EHA Board: 2016 2018. Ing Ernst Aigner Obmann. Mrs Beatrice De Schepper. 9180 MOERBEKE-WAAS, BELGIUM. B 3360 BIERBEEK, BELGIUM. LIGUE HUNTINGTON FRANCOPHONE BELGE. 4BIS MONTAGNE STE WALBURGE,. 4000 LIEGE, BELGIUM. Tel: 357 876 510 846. SPOLECNOST PRO POMOC PRI HUNTINGTONOVE CHOROBE. Belobranske nam 6,. Bystaevneparken 23, 701;. Tel: 0045 52 20 78 50. SUOMEN HUNTINGTON YHDISTIS RY. Suomen Huntington-yhdistys ry,. C/o Suomen Parkinsson-liitto ry. Tèl: 06 83 25 31 48. 5 rue Milton Friedman. Https:/ www&...

en.hdyo.org

Huntington's Disease Youth Organization - Kids - Ask a Question

http://en.hdyo.org/kid/questions

Sign up to save your choice. Sign in or join HDYO. You are here: Home. HDYO Land is an interactive, colourful and fun program aimed to help children learn about Huntington’s disease (HD). In HDYO Land you will be able to visit and explore 5 different areas in which you will meet some wonderful characters who will take you on an adventure! HDYO Land is an interactive, colourful and fun program aimed to help children learn about Huntington’s disease (HD). In HDYO Land you will be able to visit and expl...

en.hdyo.org

Huntington's Disease Youth Organization - Young adults - Ask a Question

http://en.hdyo.org/you/questions

Sign up to save your choice. Sign in or join HDYO. You are here: Home. The panel of experts. Our panel of experts consists of professionals from various fields, to help cover a vast range of potential questions. We also have professionals who can talk to young people and answer questions. What percentage of people fall into the gray area? Q What percentage of people tested fall into the gray area? Either with reduced penetrance or intermediate? Is it very common? Have a question about HD? We try to answe...

en.hdyo.org

Huntington's Disease Youth Organization

http://en.hdyo.org/users/edit

Sign up to save your choice. Sign in or join HDYO. Havent joined HDYO yet? Didnt receive confirmation instructions? Huntington Society of Canada. Huntingtons New South Wales. Huntingtons Disease Association of Ireland. Landsforeningen mod Huntingtons Chorea. Huntingtons Disease Association Northern Ireland. Stiftung der Schweizerischen Huntington-Vereinigung. Lega Italiana Ricerca Huntington. Ding Ding Dong - Institute for the Co-Production of Knowledge about Huntingtons Disease.

en.hdyo.org

Huntington's Disease Youth Organization - Forum

http://en.hdyo.org/eve/forum

Sign up to save your choice. Sign in or join HDYO. You are here: Home. Stop in and say hi! Last Post: Welcome - share your story. Open space to discuss completely random subjects or anything HD. Last Post: Going into HD research at the grad school level? Discuss being at risk for HD. Last Post: Huntington - questionnaire. A space to discuss feelings on predictive testing. Last Post: Waiting for results. Any advice? Discuss your feelings here. Share your feelings here. Last Post: Testing negative. An area...

en.hdyo.org

Huntington's Disease Youth Organization - Young adults

http://en.hdyo.org/you

Sign up to save your choice. Sign in or join HDYO. You are here: Home. Knowing your rights may seem a bit dull for some people, but it’s actually really important to know and be confident about what human rights you have and what you should expect from those people. Young peoples experiences of finding out about HD. Have a question about HD? Get it answered here by HD experts from around the world. Talking about HD with family and friends. Young peoples experiences of finding out about HD. Well, if you b...

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Suomen Huntington Yhdistys ry

Tervetuloa Suomen Huntington–yhdistyksen verkkosivuille! Huntingtonin tauti (HD) on harvinainen, periytyvä neurologinen sairaus. Tämä sivusto on tarkoitettu pääasiassa Suomen Huntington-perheille sekä hoitohenkilökunnalle. Suomen Huntington-yhdistys perustettiin vuonna 1997 perheiden yhteydenpidon ja potilaiden hoidon parantamiseksi. Tällä hetkellä yhdistyksessä on 112 jäsentä. Lue lisää jäseneksi liittymisestä ja jäseneduista täältä. Valtakunnalliset ja kansainväliset yhteydet. Lisäksi olemme osana...

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