idfephr.org idfephr.org

IDFEPHR.ORG

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Take control of your health. Watch Our Video to Learn More. Did you create an account before September 1, 2014? To reset your password and get started! If you have already reset your password. By signing in, you agree to the revised Terms of Service. Need to create an IDF ePHR account? Take the first step to better management of your health information! If you're a new user, click CREATE ACCOUNT. So, no excuses! Learn More about IDF ePHR. Be a Part of research through PI CONNECT.

http://www.idfephr.org/

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CONTACTS AT IDFEPHR.ORG

Immune Deficiency Foundation

Kim Biscoe

40 West ●●●●●●●●e Avenue

To●●on , Maryland, 21204

US

1.44●●●●2560
kb●●●●●@primaryimmune.org

View this contact

Immune Deficiency Foundation

Kim Biscoe

40 West ●●●●●●●●e Avenue

To●●on , Maryland, 21204

US

1.44●●●●2560
kb●●●●●@primaryimmune.org

View this contact

Immune Deficiency Foundation

Kim Biscoe

40 West ●●●●●●●●e Avenue

To●●on , Maryland, 21204

US

1.44●●●●2560
kb●●●●●@primaryimmune.org

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Take control of your health. Watch Our Video to Learn More. Did you create an account before September 1, 2014? To reset your password and get started! If you have already reset your password. By signing in, you agree to the revised Terms of Service. Need to create an IDF ePHR account? Take the first step to better management of your health information! If you're a new user, click CREATE ACCOUNT. So, no excuses! Learn More about IDF ePHR. Be a Part of research through PI CONNECT.
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7 about idf ephr
8 about pi connect
9 about idf
10 about usidnet
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PHR | idfephr.org Reviews

https://idfephr.org

Take control of your health. Watch Our Video to Learn More. Did you create an account before September 1, 2014? To reset your password and get started! If you have already reset your password. By signing in, you agree to the revised Terms of Service. Need to create an IDF ePHR account? Take the first step to better management of your health information! If you're a new user, click CREATE ACCOUNT. So, no excuses! Learn More about IDF ePHR. Be a Part of research through PI CONNECT.

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idfephr.org idfephr.org
1

PHR

https://www.idfephr.org/AboutIDF.aspx

End of top navigation. Facebook (opens in a new window). Twitter (opens in a new window). In (opens in a new window). The Immune Deficiency Foundation. IDF), founded in 1980, is the national non-profit patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases (PI) through advocacy, education and research. There are approximately 250,000 people who are diagnosed with PI in the U.S., and thousands more go undetected. Helps the...

2

PHR

https://www.idfephr.org/Default.aspx

Take control of your health. Watch Our Video to Learn More. Did you create an account before September 1, 2014? To reset your password and get started! If you have already reset your password. By signing in, you agree to the revised Terms of Service. Need to create an IDF ePHR account? Take the first step to better management of your health information! If you're a new user, click CREATE ACCOUNT. So, no excuses! Learn More about IDF ePHR. Be a Part of research through PI CONNECT.

3

PHR

https://www.idfephr.org/AboutUSIDNET.aspx

End of top navigation. Facebook (opens in a new window). Twitter (opens in a new window). In (opens in a new window). USIDNET was established to advance scientific research in PI and specifically to:. Assemble and maintain a registry of validated data from patients with PI in order to provide a comprehensive picture of each disorder and act as a resource for clinical and laboratory research. Assist highly qualified junior faculty or committed senior fellows for travel grants to attend focused PI meetings.

4

PHR

https://www.idfephr.org/AboutePHR.aspx

End of top navigation. Facebook (opens in a new window). Twitter (opens in a new window). In (opens in a new window). The IDF ePHR is the electronic personal health record designed for the primary immunodeficiency (PI) community. Featuring innovative technology, IDF ePHR uses an advanced online system to transform how patients with PI manage their health! What is IDF ePHR? IDF ePHR is the electronic personal health record developed by the Immune Deficiency Foundation. What type of information can I track?

5

PHR

https://www.idfephr.org/AboutPIConnect.aspx

End of top navigation. Facebook (opens in a new window). Twitter (opens in a new window). In (opens in a new window). Be a Part of Research! An added benefit for users of IDF ePHR is the opportunity to be a part of research by consenting into PI CONNECT, the new IDF Patient-Powered Research Network. PCORI envisions PCORnet to be a secure, national data network that improves the speed, efficiency, and use of patient-centered comparative effectiveness research. Share Your Research Ideas. You can feel great...

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LINKS TO THIS WEBSITE

livingwithcgd.org livingwithcgd.org

Coordinating Your Child’s Healthcare

http://www.livingwithcgd.org/life-with-cgd/children-and-parents/coordinating-your-childs-healthcare

Emotional, Social & Family Life. Coordinating Your Child’s Healthcare. Family & Friends. CGD and Attending School. Passing CGD on to Your Children. For Parents of Young Adults with CGD. IDF Young Adult Program. IDF Reel Stories of CGD. IDF ePHR & PI CONNECT. How You Can Help. About Living with CGD. Coordinating Your Child’s Healthcare. Coordinating Your Child’s Healthcare. Recommended information to record:. Brief history leading to the diagnosis, written by you or your child’s healthcare provider. Take ...

primaryimmune.org primaryimmune.org

Immunoglobulin Therapy & Other Medical Therapies for Antibody Deficiencies | Immune Deficiency Foundation

http://primaryimmune.org/treatment-information/immunoglobulin-therapy

Please Correct the Following Form Errors. President and Founder's Message. IDF Board of Trustees. IDF Staff Management Team. IDF Medical Advisory Committee. IDF Nurse Advisory Committee. Core Service Corporate Sponsors. Learn About Primary Immunodeficiencies. What Are Primary Immunodeficiencies? There are more than 250 primary immunodeficiency diseases recognized by the World Health Organization. Read about specific disease types. Stem Cell and Gene Therapy. Manufacturers and Assistance Programs. Three d...

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Take control of your health. Watch Our Video to Learn More. Did you create an account before September 1, 2014? To reset your password and get started! If you have already reset your password. By signing in, you agree to the revised Terms of Service. Need to create an IDF ePHR account? Take the first step to better management of your health information! If you're a new user, click CREATE ACCOUNT. So, no excuses! Learn More about IDF ePHR. Be a Part of research through PI CONNECT.

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