IEDN.ORG
International Ectodermal Dysplasia NetworkThe purpose of the International Ectodermal Dysplasia Network is to share information and experiences of families with first had experience of Ectodermal Dysplasia (ED).
http://www.iedn.org/
The purpose of the International Ectodermal Dysplasia Network is to share information and experiences of families with first had experience of Ectodermal Dysplasia (ED).
http://www.iedn.org/
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Ectodermal Dysplasia Society
Diana Perry
108 Ch●●●●●●n Lane
Che●●●ham , Glos, GL53 9EA
GB
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Ectodermal Dysplasia Society
Diana Perry
108 Ch●●●●●●n Lane
Che●●●ham , Glos, GL53 9EA
GB
View this contact
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International Ectodermal Dysplasia Network | iedn.org Reviews
https://iedn.org
The purpose of the International Ectodermal Dysplasia Network is to share information and experiences of families with first had experience of Ectodermal Dysplasia (ED).
Startsida, Svenska ED-föreningen
http://www.svenskaed.se/index.htm
Att leva med ED. Vi är en förening som varje år ordnar träffar för familjer där någon i familjen har ED - Ektodermal dysplasi. I föreningen utbyter vi erfarenheter och bevakar vad som händer inom det medicinska området när det gäller ED. Vill du bli medlem eller stödja föreningen på annat sätt? Kontakta oss på styrelsen@svenskaed.se. Har du frågor kring ED kan du kontakta M. 070-622 91 92 eller på mats spjuth@hotmail.com. Vi är medlemmar i. Familjeträffen i Södertälje 2015. Snart är det dags:.
Ectodermal Dysplasia, the Community - RareConnect
https://www.rareconnect.org/en/community/ectodermal-dysplasia
Connecting rare disease patients globally. Search and join a community. Search or start a discussion. Living with a rare disease. Discuss with other patients. Welcome - Ectodermal Dysplasia Community. What is Ectodermal Dysplasia? Published 11 days ago. The midwife said that the kids born that way are born with luck. But when I had him in my arms I felt something different. I told them that somethi. Jose s Testimony in Brief. Enjoy it! Published about 1 month ago. Partners and Patient Groups. Association...
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International Ectodermal Dysplasia Network
Welcome to the International Ectodermal Dysplasia Network. A new version of the website is under construction and will be available shortly. This website has been designed for medical professionals and world leaders of the ED support organisations. If you have come to this site as an individual who has ED please click on the world map, select your country and you will be taken to the nearest support organisation.
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